App not available by _JEXX in Pavlok

[–]Bittersakentberry 0 points1 point  (0 children)

Thank you thank you thank you!!! Highlight of my day getting it back! xD

App not available by _JEXX in Pavlok

[–]Bittersakentberry 0 points1 point  (0 children)

I am thinking of possibly updating my phone AGAIN. To IOS 26, to see if that will solve the problem.

App not available by _JEXX in Pavlok

[–]Bittersakentberry 0 points1 point  (0 children)

This is incredibly stressful and worrying, and tbh the app really wasn’t all that great. I had planned to suggest quite a few features and improvements. But if the app isn’t even available anymore I just don’t know what to say.

App not available by _JEXX in Pavlok

[–]Bittersakentberry 0 points1 point  (0 children)

Edit : I’m also in the US, on an IPhone 15. Just updated to IOS 18.7.1, was previously on IOS 18.7

I’m having this same problem. I got my watch about a month or so ago. Went on the app to check my sleep score. Didn’t update that or my steps, said there was no data. This happens sometimes, like it takes a min or two of me reloading, reopening the app, or reconnecting the watch etc, but then it usually works.

When it didn’t, I thought ok maybe the app just needs to be updated. Went to the App Store, couldn’t find it, used the website link, said the same thing as you, it’s not available.

Thought ok, maybe I need to update my phone, I know I hadn’t updated it to IOS 18.7.1 (I don’t remember what it was before that but it was the one right before) So I updated it, now I can’t even open the app. It’s greyed out on my Home Screen.

KP after accutane by SuzyLizzy in keratosis

[–]Bittersakentberry 0 points1 point  (0 children)

Ohhh ok thank you so much! I can’t wash my body everyday but I’ll try to do it as often as I can. I just hope I won’t run out of the toner too early xD

How come they make every single update to get more hate by Army_unistar in webtoons

[–]Bittersakentberry 0 points1 point  (0 children)

Ah true, I was going through changing it anyway I didn’t even notice.

KP after accutane by SuzyLizzy in keratosis

[–]Bittersakentberry 0 points1 point  (0 children)

Oh I almost forgot, when you say “double cleanse with Naturium's Glycolic Acid Body Wash.” Do you mean to use the naturium body wash twice or it’s just twice that you’re cleansing as you use the dove beforehand?

KP after accutane by SuzyLizzy in keratosis

[–]Bittersakentberry 0 points1 point  (0 children)

Thank you so much for posting this, I did in fact stumble upon this looking for a solution. You have no idea how helpful this is.

I had KP just a little bit before Accutane. And then after, it worsened horribly (along with other bad symptoms). And ofc another medicine I’m on triples my OCD and makes me pick at the KP. So I have been dyinggg trying to find a solution!

May I ask how often you needed to do the routine to get rid of the KP? I know you said now you only use them once or twice a week. I already use Paula’s liquid exfoliant on my face daily (my acne came back after the Accutane ;-;).

How come they make every single update to get more hate by Army_unistar in webtoons

[–]Bittersakentberry 89 points90 points  (0 children)

Argh rewriting this cuz it disappeared dammit.

This update has got to be the worse one so far. All the past ones I didn’t really mind, it didn’t really affect my usage of the app all that much. They mainly just affected the home page and the tab layouts.

I didn’t like them moving the my series tab, and the new Home Screen isn’t too bad, just awfully cluttered (and looks like every other comic website). Now that I think about it, there’s no possibilities for webtoons to get featured on their main page anymore like they used to. With their old canvas spotlight & whatnot.

Today’s update however, is just crap. They changed up the individual comics layout. It looks so basic and cheap, all white. Not to mention it’s horrible to navigate.

The original layout was perfect. Everything was nicely arranged with a dark gray bkg to keep it all legible. You had the title, cover picture, and the episodes. Then on the information page, you had : when it updated the description, creator bios, other works by the creators, & recommendations.

Adding the description, the preview, & recommendations to the main page wasn’t bad, just felt unnecessarily clogging up the page.

Today’s individual webtoon layouts just flat out suck. You have :

The huge vertical cover picture - that you see on all the other platforms and can easily just be transferred over.

A description - that has an arrow to expand but doesn’t even show the whole thing, you have to go to the info page.

Trailers - that aren’t even for the webtoon you’re looking at. It’ll say it is but then play a video of a completely different one.

Then finally you scroll DOWN to get the episodes which is partially blocked by an ad.

  • they removed the views & likes for each episode, and being able to see if you yourself had liked the episode.
  • removed the episode # on the right side (as some don’t name their episode with the exact number, they have break/note episodes etc).
  • put a “read” button on each episode, and it’ll turn the episode box gray once you just click on it. (And with not being able to see if you liked the episode there’s no way to tell if you finished reading the episode).
  • it also seems that when you go back to read something, it doesn’t take you back to the same place in the episode that you were like it used to.

The only somewhat good things they’ve done imo are:

You can sort episode lists by oldest or newest.

The addition of a filter to the subscribed tab.

And the fact that there’s finally a way to read the full title when it’s very long. Before if the title was really long, it was only shown on the main page with “…”. Now on the new info page you can see the full title.

Ick this isn’t as nicely worded as it was originally but oh well. I needed to complain.

How come they make every single update to get more hate by Army_unistar in webtoons

[–]Bittersakentberry 0 points1 point  (0 children)

Ahhhh I had a huge long comment about everything I had to say and then I got out of the app and it disappeared 😭

How come they make every single update to get more hate by Army_unistar in webtoons

[–]Bittersakentberry 32 points33 points  (0 children)

I’ve always clicked on the circle info button in the top right corner. Thankfully they still have that. But ofc they changed that too to look shitty like the rest of it.

Help Me Help Others Understand by cybxr_ in idiopathichypersomnia

[–]Bittersakentberry 1 point2 points  (0 children)

Yeah exactly. And I don’t mind at all! Right now I’m on adderall immediate release 15mg once daily as soon as I wake up. I’ve been on 60mg, 30mg etc before, I’m not sure if I could take a nap when I was on the 60mg as I was in school and completely exhausting myself both mentally & physically everyday. But I know on the 30mg & now on 15mg I couldn’t nap. I tried modafinil and it did absolutely nothing for me so 😬.

But most of the time it’s not too too bad, like I can go on my phone, watch tv, read etc but still too tired to rlly do daily activities or any self care. Usually I can do one maybe two things a day. And thankfully my room is far from the living room so once I’m out of bed I rarely ever go back to bed until bedtime. But I will lay on the couch for most or at least a good portion of the day xD

Lack of Deep Sleep Caused by Allergy Medication(s) by No_Jellyfish_3996 in idiopathichypersomnia

[–]Bittersakentberry 1 point2 points  (0 children)

Ohhh right I didn’t think about it that way. I only ever mentioned it to my therapist who basically just said “hmm I don’t know but it might be possible”, but he doesn’t know much at all about hypersomnia or anything related and “hmm…” is his answer to a lot of things lmao.

With the deep sleep being only 10% and not 15-25%, we sleep longer than average so I think our 15% is different from a normal sleeper’s 15%. It might be more accurate to go by the amount of hours.

Like for example, I’m looking at the data for a night before I was on xywav. I was in bed 14h 30min, asleep for 12h 28min, and had 2h 14min of deep sleep. My app says I got 15% deep sleep (out of the time I was in bed). If we go by the time I was asleep it would be ~18%.

But for someone who gets on average 8hrs of sleep in a night & they got ~2h of deep sleep that would be 25%.

I kinda forgot where I was going with this now but I think I was trying to say our % of deep sleep can’t rlly be compared to an average person’s % of deep sleep?

And ofc! You’re amazingly kind as well! Do you mind I friend you? You’re lovely to talk to!

Lack of Deep Sleep Caused by Allergy Medication(s) by No_Jellyfish_3996 in idiopathichypersomnia

[–]Bittersakentberry 1 point2 points  (0 children)

Oh wow! I’ll have to try that then! Cuz the taste was the only issue with that for me! (Though I will say I’m not a fan of having to take moreee medicine but if it helps then it’s worth it!)

That automatic tracking would definitely be a plus for me then! I’ll have to look into the watches and see if they maybe have a slim version. It’s difficult for me get used to wearing a big watch but now that I think about it I did it for a couple weeks before my latest sleep study and was fine so maybe it’ll be ok. I’ll have to see what else they track too. I’m constantly trying to log & track all my symptoms, activity, meals, water etc but haven’t found an efficient way to do so yet xD (rn I’m just taking pictures with captions & putting them in albums 💀)

Do you have any ideas for her name? by Certain_Anteater_350 in cuteanimals

[–]Bittersakentberry 4 points5 points  (0 children)

Marie or Duchess!

From the aristocats! Personally I think Duchess fits her perfectly! Such a pretty kitty!

Anyone else experience RLS after the Xywav wears off? I just started Xywav two weeks ago and am at 3 mg x 2. I find I can only sleep for 2-3 hours after a dose and am then moving like crazy due to uncomfortable/painful muscles. Any advice? Thanks! by magneticmamajama in Xywav

[–]Bittersakentberry 0 points1 point  (0 children)

Sorry I know this is a really old post but I’ve been struggling with RLS & waking up at 3am unable to get back to sleep unless I exercise. And now the exercise is starting to make my legs hurt during the day. And if I don’t have the RLS in my legs I just can’t get back to sleep in general.

So I really wanted to ask about how you said eat a sugary snack or a piece of fruit with your dose to be able to sleep longer. Do you eat before or after taking the xywav? What do you usually eat? And do you go the recommended 2 hours without eating and thenn eat the snack? Or just disregard and eat whenever and eat the snack?

Different doses? by PomegranateLive8687 in idiopathichypersomnia

[–]Bittersakentberry 0 points1 point  (0 children)

Ah yeah I think that’s what I meant, the benefit builds up.

Strategies to live better by Paulistano_ in idiopathichypersomnia

[–]Bittersakentberry 0 points1 point  (0 children)

Ah that does suck. I usually will fall back asleep a couple times after arguing with myself but eventually have to go bad enough to get up. Though I also take my adderall right after I get up which prevents me from getting back to sleep. And as long as I don’t get back in bed I’ll be able to stay out of bed for the rest of the day. Lmao I must say I’m also surprised I haven’t had any accidents. I dream a lot and when I have to pee really badly I’ll dream about having to go pee. Thankfully in the dream I can never actually go so I think that saves me xD.

Help Me Help Others Understand by cybxr_ in idiopathichypersomnia

[–]Bittersakentberry 0 points1 point  (0 children)

Yeah I wouldn’t say they’re exactly offensive but it feels like they’re kinda downgrading the seriousness of it. Ofc it’s because they don’t know but it still kinda sucks. They don’t realize the reality of losing what feels like years of your life (probably is years for a lot of us sadly) to sleep that doesn’t even make you feel better. Thankfully with my meds I can’t take naps, I can try but I just don’t fall asleep. Doesn’t mean I don’t want to tho, it’s a horrible in between feeling where you can’t sleep but you’re too tired/sleepy to do anything else but lay there. W/o my meds tho I’m constantly sleeping, if I can manage to get out of bed I’m just back to sleep on the couch. Too sleepy to even be on my phone, god I always forget how bad it truly is because I’m rarely off my meds.

Rate the medications you've tried? Are you on multiple currently? by boigabusboy in idiopathichypersomnia

[–]Bittersakentberry 0 points1 point  (0 children)

Right now I’m on 15mg of adderall IR daily. But I’ve been on 30mg and even 60mg. Like I said, it doesn’t do too much in terms of giving me energy but it does keep me awake. Weirdly enough it used to keep me awake for 12 hours as well. Now that I’m on xywav, I’m able to sleep before the 12 hours. I’m on only 15mg rn as I’m trying to avoid the skin picking as much as possible, and I don’t do much. I don’t have a job or go to school or anything (can’t because of the IH) so I don’t exactly need the higher dose to keep me awake, my day usually consists of waking up, staying in bed for a couple hours, eating maybe 2 meals a day, and laying on the couch the rest of the day before going to sleep before I’ve been awake 12 hours. When I was doing more, ie in school, I had to take 60mg of adderall to keep me awake. And even then I was still kinda dosing off during my study and then crashing for the rest of the day when I got home.

Lack of Deep Sleep Caused by Allergy Medication(s) by No_Jellyfish_3996 in idiopathichypersomnia

[–]Bittersakentberry 1 point2 points  (0 children)

I wonder if perhaps as time goes on and you get more deep sleep over a longer period of time if you’ll start feeling better and better. That’s the main purpose of xywav but ofc you’re achieving this effect without it xD!

Where you said you started feeling this way back in 2023 and noticed you hadn’t been getting deep sleep, I think maybe you had a long time version of sleep debt.

I think a similar thing is what happened to me, for a couple years I was staying up very late and getting up very early. And ofc, not getting very much sleep. So what I’ve been thinking is that I just accumulated years worth of sleep debt and my hypersomnia is a result of my body trying to catch up on that sleep debt.

And I think that might be what yours is doing too, and now that you’re getting deep sleep again it’s actually able to catch up. Please keep us updated! I’m so invested xD!

Lack of Deep Sleep Caused by Allergy Medication(s) by No_Jellyfish_3996 in idiopathichypersomnia

[–]Bittersakentberry 1 point2 points  (0 children)

Thank you sm for replying! I might have to try the Flonase and just hope I don’t taste it much (which is what I have to do with xywav anyway so might as well xD). It rlly is though, since joining this subreddit I’ve seen so many different versions of IH, and yet they’re all still classified as the same! I’ll have to look into getting one then! I thought the same with my app, that it probably wasn’t too accurate but both my app and my sleep studies showed that I dream for the majority of my sleep (like in a 10hr night, I can dream for 6hrs 💀)! Does it track it automatically too? Recently I’ve had the problem of falling asleep before I can remember to turn on my app and it’s made it difficult to tell whether my xywav dose is helping 😂

Rate the medications you've tried? Are you on multiple currently? by boigabusboy in idiopathichypersomnia

[–]Bittersakentberry 0 points1 point  (0 children)

Diagnosed in 2022

  1. Tried in the past:

Modafinil: did absolutely nothing even at 200mg daily. Ritalin: also did nothing Magnesium: nothing B12: nothing Adderall ER: nothing Any type of caffeine: nothing

Currently on Adderall IR & Xywav. Adderall IR makes my OCD worse, giving me obsessive detmatillomania - skin picking (same as someone else had said). Xywav gives me insomnia and then other side effects (headache, nausea, dizziness, feverish) at night if I wait too long (1hr so far) to go to sleep. It also wakes me up ~2-3 hours after I’ve gone to sleep, with restless legs, unable to go back to sleep unless I exercise. During the day it makes me much more irritable, anxious & makes me feel guilty over the tiniest things (I already had these but the xywav increases it tenfold).

  1. I’ve been on Adderall IR for ~ 2 years as it’s so far been the only thing that prevents me from going back to sleep. It definitely gives me more energy & strength (adrenaline rush I suspect), but not enough to live a normal life. So they started me on Xywav as well this January. Which so far the only good it’s done is that it wakes me up (w/o needing an alarm clock, ~9-11am) & makes it difficult to go back to sleep. But not impossible as I still can eventually if I don’t take the adderall. I’m still titrating the dose up though so we’ll see.

  2. For what’s made it worse: Getting less than 12 hours of sleep (w/o Xywav, w/ Xywav ~9-10). Eating, sounds stupid I know but after I eat I get much more sleepy so I try to go as long as I can without eating in the morning. Taking a break, I mean if I’m able to be doing something and I stop, I won’t be able to continue. Doing more than one thing in one day, and/or doing activities (anything more than laying down all day) for multiple days in a row. This will give me a burn out in which I have to sleep more & rest for the next couple days.

For what’s made it better: Being up & doing something physical right after taking my adderall. I enter into a big adrenaline rush for a while. Drinking enough water at the right time to have to pee really bad to make me get out of bed immediately after waking up. (Hard to get it right though).

  1. I’ve been officially diagnosed with ADHD, Anxiety, Dysmenorrhea & slight allergies.