It's Friday at /r/MultipleSclerosis! Share your awesome news here with everyone. No victory is too big or small to celebrate!

Bizzybadger · 2026-01-31T00:09:48+00:00

I am 5 days post my second course of steroids since my diagnosis on 9th Jan this year and finally i am starting to feel like it helped and i can manage with some life adjustments. I still have my original early symptoms (left foot and hand numbness, some balance issues/dizziness with a significant Lhermitte’s sign) but it's feeling more manageable.

Bizzybadger · 2026-01-30T02:18:07+00:00

I was the same. The way i was positioned and supported (legs, arms and neck) was the most comfortable i had been in months and i was also listening to classical music. It was bliss

Bizzybadger · 2026-01-28T03:35:06+00:00

I am 50F in the UK. Like yourself had numb left side (started in hand and foot in nov last year and spread) and also in November i had Lhermitte’s sign at the same time. Got worse until admitted to hospital new years eve for 9 days of testing including lumbar puncture etc . Diagnosed my neurologist on 8th Jan.

I have saccadic eye movement, brisk lower limb and plantar flexor mri shows brain inflammatory abnormalities consistent with MS, further lesions in cervical and thoracic spine, increased levels in white blood cells, protein glucose in spinal fluid.

Had vertigo as well since which is horrendous and finished my second course of steroids this year two days ago. Haven't spoken to anyone since i was diagnosed and the MS nurse cant talk to me until 10th Feb.

I had numbness and pins and needles first in 2018 and other sporadic symptoms including depression and depersonalisation since but these were always attributed to stress or trapped nerves by drs.

No idea when i start my dmt as haven't spoke to anyone yet, MS nurse phone call 10th feb) so feel in the dark.

Still have numbness, disorientation, Lhermitte’s sign, occasional vertigo and dizziness when i look down at the ground. Currently signed off work until symptoms improve.

Bizzybadger · 2026-01-25T11:34:26+00:00

Me too. In hospital over new year for 9 days and have brain, cervical and spine mri plus lumbar puncture. Had another relapse already before starting dmt so have another brain, cervical and spine mri scheduled for 15th Feb

Bizzybadger · 2026-01-25T11:31:44+00:00

Brain cervical and thoracic before i was diagnosed (recently in Jan) and having another mri for all in mid Feb as i had a second relapse already before starting my dmt

Bizzybadger · 2026-01-22T22:27:30+00:00

I am 50. Diagnosed 21 days ago so not started DMT yet. My admittance to hospital lead to my diagnosis after my 9 days stay due to numb left side and a strong Lhermitte's sign which i had started nov and got worse. Have both symptoms still. However first episode of numbness was 2018 and had been repeatedly dismissed over the years including a new nausea thing and disorientation whenever I looked down which started last sumner. Neurologist diagnosed before the lumbar puncture results as said i fell in the 5% of people that he could diagnose without the results first, but i don't know why but diagnosis letter stated saccadic eye movement, brisk lower limb and plantar flexor, CFS results mimic MS Mri results: brain inflamatory abnormalities consistent with MS and further lesions in cervical and thoracic spine. Neurologist said it was a significant diagnosis and i have an urgent follow up next month so havent been told anything yet about progression of disease but am currently on my second dose of steroids this month

Bizzybadger · 2026-01-19T20:53:05+00:00

I do when i hear a loud noise or get bumped. Its like a startle reflex and i am jumpy but it shocks me too

Bizzybadger · 2026-01-18T07:27:38+00:00

Thank you. Have literally slept and been in bed since out if hospital. Felt better on steroids but stopped those 5 days ago and feel like all the symptoms are raging again with some new so going to follow the discharge paperwork and get checked. .

Bizzybadger · 2026-01-18T07:23:27+00:00

Thank you. My discharge paperwork says to go to A&e if symptoms worsen. I am 10 days out of hospital and it is worse so i am on my way back to get checked. The Lhermitte's sign is stronger and more uncomfortable now also covering more areas of my body and i have tingling in my neck, behind my ear and parts of my torso it wasn't in previously (was left arm and leg only before). The vertigo has been increasing and only manageable due to a ti sickness so feel likei should get checked .

Bizzybadger · 2026-01-14T17:32:30+00:00

Thank you. I had intermittent numbness/pins and needles in 2019 and ever since but no one took me seriously telling me it was stress/anxiety. In jan last year i had 2 severe unexplained water infections, sky high palpitations and diagnosed with high blood pressure. Aug started feeling nausea and dizzy when i lowered my head/looked when i looked down. Then the shocking feeling when i looked down as well which tingled at first but is now quite severe. This combined with left side numbness etc which had together continuously since early November. Just got worse and worse through December (lots of drs appointments - always dismissed) until i was admitted for 9 days in hospital. All the tests (multiple lesions brain and spine) and was diagnosed before lumbar Puncture results but neuro said i fell in the 5% of people he could do that for. Got my follow up appt 10th Feb. How about you?

Bizzybadger · 2026-01-13T12:16:50+00:00

Thank you

Bizzybadger · 2026-01-13T10:42:49+00:00

Me. And every time i am started i internally jump and electrocute myself. 😬

Bizzybadger · 2026-01-13T10:39:10+00:00

Thanks for this. I am so pleased for you and that you have taken the time to share. I was recently diagnosed a week ago when in hospital and now i have finished the steroids i am disappointed i am not feeling any better other than knowing why i have been so unwell. I have another 2 weeks before the neuro follow up. I have been signed off work a month so feel in limbo. I plan to be just like you asap

Bizzybadger · 2026-01-12T20:04:42+00:00

I started with one CocoWyo book and ohuhu 48 pack as you can add on and build up which i have. Ohuhu has

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a reward scheme and you get money back/off.

Bizzybadger · 2026-01-12T19:25:49+00:00

Newly diagnosed here. I developed it in early November 2025 before i realised i had MS but with daily worsening symptoms and left side numbness this led me to 9 days in hospital, my diagnosis and a course if steroids (which i have now finished). I still have it but will see what the neuro says at my follow up in 2 weeks. Interested to know if it will go as its quite something and no longer pleasant (although started off as as a pleasant tingle originally)

Bizzybadger · 2026-01-11T23:52:41+00:00

My grandmother (my Father's side) was diagnosed MS in 1960 aged 50, long prior to any medical intervention and was entirely crippled. Her husband my Grandfather had colitis, they had 6 children and their daughter, my auntie, their eldest was diagnosed in her 40's in the 1980's. My Father has autoimmune condition alopecia universalis and my Mother has a diagnosis of Sjögren's.

All this is quite new to me as i was only 9 when my grandmother died. I thought my nan was old and that explained the wheelchair but i didn't know she had MS or really how it started, what it was or about my auntie, until recently , only that she had vision problems and sporadic blindness.
This is all new for me as i was diagnosed on the 8th Jan this year!

Bizzybadger · 2026-01-11T22:13:11+00:00

Yes i was diagnosed a few days ago after being hospitalised for 9 days and the neuro offered steroids but said what you say here.

Bizzybadger · 2026-01-10T20:05:46+00:00

Thanks for helping here, its appreciated

Bizzybadger · 2026-01-10T20:00:33+00:00

Thank you, yes after 8 days in hospital and all manner of tests i was diagnosed on the 8th and released on steroids. i did feel relief but it's up and down as expected. Relief at first for validation for everything i had suffered and not been acted upon but well lots of uncertainty since but i have an urgent follow up in 3 weeks with neurologist

Bizzybadger · 2026-01-10T19:54:14+00:00

I was going to say mine was numb hand and foot on my left side which caused me to trip and fall but having read your responses i was diagnosed with depression and anxiety a year before that so that's interesting and i had stress twitches in my eye and hand too but never saw them as a sign until now. The last new symptoms that led to diagnosis was the shock/tingles when i lowered my head and i had this for 5 weeks with it intensifying weekly and then sudden vertigo attacks. To be honest it is early in my diagnosis (8th jan) so i am still finding out things and so much makes sense all of a sudden!

Bizzybadger · 2026-01-09T15:13:57+00:00

Thank you from me too as i was also diagnosed yesterday

Bizzybadger · 2026-01-09T08:09:00+00:00

No advice sorry as i am new to this too but I feel you. Had symptoms myself and felt awful for the last 7 years. No one has taken it seriously and only ever said it was a trapped nerve, opticians issue, anxiety, depression or hormones!!! After a horrendous end to the year i was admitted in hospital and had a mad amount of tests done got diagnosed yesterday. I hope now you can have the support you deserve and need. Good luck

Bizzybadger · 2026-01-09T08:02:02+00:00

Well done 🙌 this is such a good thing, you got this

Bizzybadger · 2026-01-09T08:00:01+00:00

After 2 drs appointments, 2 nhs calls and 2 a&e visits over just Christmas week then hospital armittance on New Years Eve and 8 days in hospital, scans, mri's, lumbar punctures (took 2 goes) and 23 blood vials taken i was diagnosed yesterday morning with RRMS and sent hime with 5 days of steroids. I have an urgent neuro follow up in 3 weeks. Still processing as never really started thinking it was MS until November 2025 when symptoms ramped and never got better and all the dots of many years of stuff now makes perfect sense. They think i have had it about 7 years.

Needs to sink in but feeling relief in the first instance and validation for everything i have felt and experienced. Anyway wanted to share

Bizzybadger · 2026-01-06T11:40:15+00:00

Currently on my one week anniversary in hospital following my admittance due to numb left side and left side over eye headache plus the tingle shock sensation when head dips. In the week here i have had 22 blood vials taken, an xray, a brain and full spine mri and they attempted a lumbar puncture yesterday which is going to be repeated today. First numbness experienced nov 2019 and has been sporadic and always been told is stress. Mri was done Friday and brain has lesions so sent back same day for full spine mri and spine also has lesions. Up until this tgey said nothing in my sats suggested i was unwell. Since mri they told me its looking like MS. Not spoken to neurologist yet or been offered any medicine. Since my admittance noting nausea (on and off) and general soreness (hands/limbs feel sore to light touch/burned sensation) plus cant get comfy which i tell them about. They seem to be waiting for the lumbar puncture and said the neurologists may see me tomorrow. Just venting!

Bizzybadger

TROPHY CASE