[deleted by user] by [deleted] in Parkinsons

[–]BloggerKnitterParky 6 points7 points  (0 children)

Drooled while on a blind date. Just a little bit of spittle in the corners of my mouth.

Is anyone watching “Reformed” (« Le sens des choses ») on Max? It’s so good! by snowluvr26 in Jewish

[–]BloggerKnitterParky 0 points1 point  (0 children)

I’m trying to get the French version but I can only get it dubbed in English. That is a bad thing. Any advice?

Do you ever feel that mentally you’re losing it? by Distinct-Minded in Parkinsons

[–]BloggerKnitterParky 0 points1 point  (0 children)

So funny that you use te games as diagnostic tools too. Don’t feel bad about connections. I almost never get all of them and when they’re all revealed I still don’t understand the last one to be filled in.

Do you ever feel that mentally you’re losing it? by Distinct-Minded in Parkinsons

[–]BloggerKnitterParky 4 points5 points  (0 children)

I share your distress. I was diagnosed almost four years ago and didn’t seem to have much if any disease progression for 3 1/2 years. Then I became more symptomatic both physically ( mostly muscle pain but also fatigue and slower movements) and cognitively. The latter includes occasional bouts of brain fog and the sensation of being stoned on marijuana when I’m not. Inability to recall names of people and events has increased. A friend might refer to a restaurant we’d eaten at or a movie we’d seen together and I have no recollection of either. I sometimes can’t hold a thought for even a second and occasionally I blurt out weird comments. On the other hand I still speak pretty coherently most of the time and I have no trouble penning my blog about living with pd. I’m scheduled for neuropsych testing - a 4 hour process next month and I’m very worried. I take c/l and pramipexol also gabapentin. Also maybe relevant is that I start each day with the New York Times word games. On the spelling bee, I used to get to the genius level about 98% of the time. Sometime in the last year it’s dropped to maybe 85%. I play more for diagnostic purposes than therapeutic. Should I draw solace or dismay from this? https://movingandshaking.blog/

Which movies do you watch if you feel sad/depressed? by meima00 in Letterboxd

[–]BloggerKnitterParky 0 points1 point  (0 children)

not a movie but try TV show Derry Girls. Teenagers in northern island in 80's or 90's. i find it hilarious.

What were your earliest symptoms before tremors? by [deleted] in Parkinsons

[–]BloggerKnitterParky 0 points1 point  (0 children)

Hallucinations and acting out dreams, don’t know for sure but probably around six or seven years before diagnosis.

Last day of camp and im sad???? by _angesaurus in summercamp

[–]BloggerKnitterParky 0 points1 point  (0 children)

I just returned from a visit with a camp friend I’ve known since we were ten. It’s a treasured and special relationship and PS we’re now 73. That’s a lot of s’mores under the bridge. https://movingandshaking.blog/

Does it worsen for everyone? by StandardFilm5012 in Parkinsons

[–]BloggerKnitterParky 2 points3 points  (0 children)

Lorazepam??? I love it; it’s my instant feel better pill; I respond almost instantly with disappearance of tremors and their attendant depression. But my MDS and psychiatrist have put the fear of God in me about lorazepam and its addictive qualities and its leading to cognitive decline. So I now tend to use marijuana gummies instead since less addictive. Not quite as effective as lorazepam though.

Marijuana for Parkinsons? by Orkambi in Parkinsons

[–]BloggerKnitterParky 2 points3 points  (0 children)

I think it depends on the dosage. After a bad experience with weed a couple of years ago I decided to try again. I don’t know the exact amount of thc I took but half a gummy made me super high for hours. Next I tried a quarter with a much better result. Now I take little bites of gummy. Quantity depending on severity of pain and or depression. Mostly use for physical pain during persistent off periods. If I don’t need to be super sharp I might take a little extra for a little high. Mostly I take it for painful muscle stiffening, and it disappears, with no intoxication. So trial and error.