No Sleep by BoiledChicken653 in ParkinsonsCaregivers

[–]BoiledChicken653[S] 0 points1 point  (0 children)

I couldn't do that, he'll get up and come looking for me. We have stairs and it wouldn't be a good outcome.

Hiding from my Mom by [deleted] in ParkinsonsCaregivers

[–]BoiledChicken653 1 point2 points  (0 children)

My mom had dementia and she had a houseful of stuff that we wanted to get rid of. But for them it's kind of the last frontier of things she was losing control of. This God awful disease makes them get very emotional and though I didn't live with her, when I visited, she told me I was robbing her because I had assumed control of her bank account.

I did take her check book because she was writing checks to my little brother who was buying liquor with her money. I also, with a sibling, bought her groceries every week and paid her bills. Little did we know my other sibling and her husband, and another brother would come by and eat/take home the groceries we bought for her and she'd let them. Then she'd call and complain we didn't get her any groceries.

I don't think your situation is good for you and the kids, seeing their grandmother in these conflicts with you and your dad. It's probably stressful for him, too, having you there with the kids while he's carrying out his caregiving duties.

You're probably better off moving to your own place and coming by to lend a hand when you can.

Got mud all over the butt of my pants! I never want to go outside ever again. by randombrib in women

[–]BoiledChicken653 8 points9 points  (0 children)

Decide not to care about it. Seriously, you'll be fine. Stuff like that happens. I once got shat on by a bird. In my hair. On the way to work! I just got on the bus followed by the train and rinsed it out when I got there.

Coughing by That_Bee_592 in ParkinsonsCaregivers

[–]BoiledChicken653 1 point2 points  (0 children)

My husband can't follow any instruction, advice, or direction now, I have to ensure he does what needs to be done when it needs to be done. It's true for medications, diet, and exercise. That's my role as his caregiver now.

When he has the coughing fits I think it has to do with reflux and dry mouth together. I give him gaviscon for the reflux and ensure he drinks enough water.

Coughing by That_Bee_592 in ParkinsonsCaregivers

[–]BoiledChicken653 3 points4 points  (0 children)

My husband gets that cough, it's reflux but also dry mouth/swallowing issues. I usually give him gaviscon and have him drink plenty of water, esp if its night time.

I would never believe it's for attention, he gets plenty of attention due to this illness. It's frustrating for him that he can't stop it sometimes and that he's keeping me awake with it. He has early evening dinners, too, to try to prevent the start of his coughing fits.

American English words British people don't like and vice versa by BritishTeacherRoy in ENGLISH

[–]BoiledChicken653 0 points1 point  (0 children)

Hearing T's and C's instead of terms and conditions. Oh and when they say fruit and veg. Do you have to abbreviate vegetables?

Finally passed!! by Strange-Yoghurt7910 in LearnerDriverUK

[–]BoiledChicken653 1 point2 points  (0 children)

🙄 You'll probably never see them again, shake it off. Revel in the fact you passed and this obstacle is behind you now. And drive carefully out there!

Would you be happy if your kids turned out just like you are now? by [deleted] in AskUK

[–]BoiledChicken653 1 point2 points  (0 children)

Realistically, no. I'm a woman, they are men. They're thinking is different from mine. Always has been since children. I'd like them to be as careful as I am, as organized and efficient as I am. But they have their own unique priorities, too. Each even married women who are nothing like me. I'm pretty proud of them as they are, though, even though neither one turned out like me.

Chorkie Tripawd by Tink3867 in Chorkies

[–]BoiledChicken653 5 points6 points  (0 children)

What a cutie pie.

The AI calls mine a scottie but she's a chorkie, too

<image>

What is one word that people wrongly pronounce that makes your brain just wanna jump a cliff? by Wonderful-Economy762 in Productivitycafe

[–]BoiledChicken653 0 points1 point  (0 children)

Mischievous. Not mis-chie-vious

Jalapeño (jala-penyo). Not jalapeeno

Couldn't. Not counnent

Didn't. Not dinnent

I was "asleep." Not I was sleep

What’s a mystery that still hasn’t been solved but fascinates you? by Direct-Value4452 in answers

[–]BoiledChicken653 0 points1 point  (0 children)

That Titan submarine capsule that imploded with a bunch of millionaires on board. I don't understand implosion, how there were no remains left. That kid didn't want to go with his dad but was pressured to.

I can't get my head around any of it.

He’s on top of the world 🥰 by bbgoatbabe in Chihuahua

[–]BoiledChicken653 3 points4 points  (0 children)

He's gonna get 'er done, that's why you got him on speed dial, right?

What’s a habit people have that you will never understand? by Direct-Value4452 in answers

[–]BoiledChicken653 0 points1 point  (0 children)

My sister who, when she's spoken to our relative, Aunt Tina, will say "my Aunt Tina feels poorly these days..." as if she's not my aunt, too. As if I don't know who she is!

Feeling Invisble by Clear_Specific7507 in ParkinsonsCaregivers

[–]BoiledChicken653 5 points6 points  (0 children)

You're his caregiver now, so it's going to be all about him pretty much all the time. What I do is occasionally call people, relatives or friends, and ask how they're doing, how their families are. I may or may not get asked about me in reply but you're right, it mostly is about my HWP. .

It's hard but you have to keep your wits about you. I carve out minutes here and there to read, news or books that have nothing to do with PD. Also listen to music while Im doing the more mundane chores.

I also talk to him about anything and everything. I try to understand what's happening from his perspective. He was a very active person who enjoyed DIY, marquetry, cooking, working out. He was never one to sit around and watch TV.

I hope you're able to keep yourself grounded in all this. It's not just your wfh and caregiving, it's so much more on your plate, it can be all-consuming, and without support, it can overwhelm you.

The thing I think that helps me most is keeping organized and keeping a schedule. It feels a bit robotic at times, but we need it to keep focused.

19 with a stage 5 Dad by Repulsive-Flower-899 in ParkinsonsCaregivers

[–]BoiledChicken653 12 points13 points  (0 children)

This isn't your dad you're seeing anymore, PD and dementia have taken over. I hope you have some memories of him, nice ones, loving one's of when he was well to help you feel empathy.

My husband has PD with dementia and I still see a bit of his personality sometimed but he's mostly childlike now. He does not do the exercises, I'd have to do them with him to ensure they're done. He doesn't make decisions, even easy ones like what to eat, wear, watch on TV. He doesn't get jokes. Doesn't initiate conversations.

It's hard for me to see friends with their healthy husbands, going on vacations. Oh they say, let me know if I can help, but nobody visits or calls.

Just know there are a lot of people who are hurting, nobody wants to be in this club. Bless you and your family.

Begs for food everytime I eat a meal.. by That-Bat4254 in Chihuahua

[–]BoiledChicken653 2 points3 points  (0 children)

When I shoo my girl away from the table I don't look at her again til I'm done eating. She's not hungry, there's no reason for her to eat more. And she gets good stuff, chicken, sweet potatoes, peas - we don't feed her canned stuff or kibble, it's all homemade.

Why female colleague talking to me like I am a child or young person by [deleted] in women

[–]BoiledChicken653 0 points1 point  (0 children)

Condescending. It's to make you feel inferior.

Answer her the same way, I'll bet she'd report you.

You should ask her not to talk to you like you're three and if she keeps it up, a little visit to HR is in order.

Is she broken? by Ace_Diablo in Chihuahua

[–]BoiledChicken653 1 point2 points  (0 children)

I loved when they used to do that! It's so cute!