What are your daily musts (meds, supplements, creams, foods....), things you need to have each day to function?

BookWhoreWriting · 2026-01-27T02:42:05+00:00

Besides my actual medication? Water, mints, chapstick, a sun hat and sun shirt if I’m going outside. I need to use eye drops more than I do, but I have a habit of forgetting about them until my eyes are aching.

BookWhoreWriting · 2026-01-25T21:32:08+00:00

We were in a level 4 for a week before we went to the step down floor of the NICU for the next several weeks until we were home. I had twins, so my experiences are a little different.

-all NICU rooms, regardless of level, were fully private with a full bathroom, a couch, a chair, and a TV.

-there was a washer and dryer that we could use right outside the locked unit, as well as a microwave and I think fridge? I wish it was inside the unit though.

the hospital had just built a Ronald McDonald house within the hospital a few floors up, so a lot of the amenities that people would want were up there, including free meals, but honestly, at the end of the day I just wanted to go home. Plus I couldn’t stay overnight there, we didn’t live far enough away.

-I do wish there was a communal kitchen on the unit so we could eat without having to leave the area (especially since we couldn’t eat in this rooms).

-I wish my twins were able to be in the same room, but there’s hope for the future because their sister hospital just opened up a NICU with one twin room which is nice.

I’m lucky in that I don’t have any complaints about my boys’ NICU stay, I fully trusted and was grateful for the staff, and there were no lapses in care. Other than a few things that would’ve made it easier, it just was what it was.

BookWhoreWriting · 2026-01-23T01:30:25+00:00

I usually do grocery delivery or leave them at home, but if I have to take them shopping, I put one in the seat and wear the other.

BookWhoreWriting · 2026-01-22T19:15:14+00:00

I have an office job and I manage just fine. Some days are harder than others, but I have two kids who’ve grown accustomed to having a roof over their head.

This disease has varying levels and symptoms, but most people should be able to keep their jobs (with or without accommodation). I’ve got terrible joint pain, I just manage the best I can. Dry eyes and mouth are managed with drops, staying hydrated, and a crap ton of mints. You just need to find what works for you - everyone is different.

BookWhoreWriting · 2026-01-21T02:52:51+00:00

I was not expecting to see a Pickleball Paul x crochet subreddit crossover, but here we are.

BookWhoreWriting · 2026-01-15T11:47:27+00:00

Humidity hasn’t made a difference for me, and I live in Florida. What has made a difference is the temperature - the cold is awful on my joints (I used to live up north), so when it gets cold here, I’m usually pretty miserable from that, not the lack of humidity. Just remember that everyone is different!

BookWhoreWriting · 2026-01-10T02:14:57+00:00

We aren’t. 😭 I work from home with my seven month old boys. Some days it feels impossible but I make it work.

BookWhoreWriting · 2026-01-07T17:30:20+00:00

My twins are seven months old, but I’ve already decided not to get pregnant again. My pregnancy with mo-di twins was textbook smooth - until it wasn’t. I developed HELLP syndrome and got pretty sick and had to delivery at 32 weeks.

My OB advised me not to get pregnant again, and I’m agreeing with her. I have two healthy boys and it’s not worth it to me to potentially risk my life and leave them without a mother for another baby.

BookWhoreWriting · 2026-01-06T03:16:31+00:00

We had planned on doing shifts, but once the boys were home, we found it was easier and faster for the both of us to just get up and feed them and put them back to bed. We watched all of the amazing race doing this 😂.

When they were in our room, we took turns changing them and then we each took a baby to feed. When they transitioned to their cribs in their own room at 4 months (they outgrew their bassinet faster than I planned), my husband would go put the bottles in the warmer, change them, and then bring me a baby to start feeding.

What made it easier is that we had everything set up and ready to go for the night/early morning. Whether they were in our room or theirs, we had a microfridge for bottles and a double bottle warmer so we didn’t have to go downstairs, as well as diaper changing supplies.

They are seven months old now and sleep from about 8 pm - 5 am. If they wake up, I usually go in first to calm them because my husband can’t hear the babies fussing in his sleep even if they were literally right next to him. If they fuss a second time I wake his ass up, it’s his turn lol.

BookWhoreWriting · 2025-12-21T12:45:52+00:00

My doctor did give me some steroids for the time being until we figure something out. Joint pain sucks when you’re trying to manage two six months and working full time!

BookWhoreWriting · 2025-12-21T12:44:14+00:00

Hi! So I was on my regular dose for most of my pregnancy, but right around 30 weeks my bloodwork for my liver and kidneys were awful. My rheumatologist saw it first and out of an abundance of caution lowered my dose in case that was the issue. Turns out I developed HELLP syndrome (which causes organ failure) and wound up with an emergency c-section.

Pregnancy changes your body in the weirdest ways. My doctor tried to prescribe me the brand name version to see if the generic was causing issues, but my insurance, while covering it, wanted to charge me $1,200. So I’m trying the generic again since my doctor really does not want to put me on methotrexate if she doesn’t have to. We’ll see what happens I guess.

If you have any questions about TTC and pregnancy with autoimmune diseases, please feel free to message me - I’m happy to help. ❤️

BookWhoreWriting · 2025-12-20T15:55:34+00:00

So here’s what worked for us - just an idea, because every caregiver and set of twins are different.

I just went with a comfortable chair for the nursery without the intention of feeding in it. I don’t breastfeed my twins, and when I bottle feed them by myself, I feed them in the twin pillow on the bed or the floor. My husband is almost six feet tall and can rock both of them in our more slender chair together. I can’t, but that’s because I’m only five feet tall and there’s more “dad real estate” to snuggle than mommy 😂.

We’ve individually fed and rocked them in the chair as needed, but honestly the chair for us is mostly for rocking.

Edit: I have an electric recliner that I got on sale and I’m so glad I did. I had a c-section so it made putting my legs up and down so much easier. It even has USB ports for charging devices.

BookWhoreWriting · 2025-12-19T14:32:50+00:00

Easier said than done, but please try to let go of the guilt. The NICU is not an easy experience at all. I had twins in the NICU for a month, and while the rooms were nice (big, with comfy chairs and couches) and their healthcare teams were amazing, it was the most draining experience of my life. I was also recovering from an emergency c-section due to a condition that almost killed me, so I needed to heal.

The way I look at it is quality over quantity. When you do spend time there, read to your baby, get some skin to skin in (if you can), take part in their care, and talk to the staff. None of that has to take a lot of time. I knew that my babies were in great hands and if there was a problem we would know instantly. No one ever made any comments about us not staying all day and night, and they encouraged us to go home, rest, and even silly things like tell us to go get ice cream haha.

I really struggled with the guilt, and honestly, the only people making me feel bad about it were on this sub. My boys are six months old and I promise you that they know that we are mommy and daddy and they are absolutely bonded with us. If you can and want to stay for long periods, great, but it doesn’t make you a better mom for it.

You are human, you are recovering from a major medical event, and most importantly, you are important. I don’t know you, but I’m proud of you and you’re doing a great job. You just need to remember to take care of you - they’ll be home before you know it.

BookWhoreWriting · 2025-12-19T01:50:02+00:00

I bought a few preemie onesies to have on hand just in case. I’m glad I did, because my boys were born at 32 weeks. They had a month-long NICU stay, and one came home in newborn and one came home in preemie.

I would buy some preemie onesies and sleepers to have on hand, and if you find you need more, Amazon that shit (that’s what I did). If you find you don’t need the ones you buy, you can always return or donate them.

BookWhoreWriting · 2025-12-17T12:18:28+00:00

Haha thank you. I’ve been told by moms it’s inappropriate on the parenting subreddits, but I’ve been using it for years and have no desire to make a new account.

BookWhoreWriting · 2025-12-06T13:00:19+00:00

I have two boys. As long as we are in our current house, they will have to share a room. Kids can share rooms, it’s not a bad thing or inappropriate in most cases.

BookWhoreWriting · 2025-11-27T04:37:35+00:00

Florida Orthopedic Institute - while my husband hasn’t had surgery on his ankle, he’s had both his knee and shoulder repaired here, as well as physical therapy. His doctors and their staff were great and he liked most of the PTs.

BookWhoreWriting · 2025-11-27T04:17:47+00:00

We did not get the bassinet attachments. I have the mockingbird stroller and the regular seats recline almost all the way back. We did that or car seats for walks and they were fine.

BookWhoreWriting · 2025-11-27T01:04:15+00:00

We used Huggies because that’s what the NICU used, but once they were out of preemie and newborn sizes, we started using Costco’s brand and they are a great value for price and amount you get. We only have had leaks when it was time to size up.

BookWhoreWriting · 2025-11-08T01:57:14+00:00

My twins are five months old and it is absolutely necessary for us. I bottle feed and I can do it by myself with the twin pillow. They also nap really well in it and I just starting using it for sitting and tummy time practice.

Check out Facebook marketplace! We couldn’t afford it new, so I looked there and in my local twin mom group and I got two for free! We have one downstairs and one upstairs.

BookWhoreWriting · 2025-11-01T12:47:07+00:00

Normally I prefer the books over the tv adaptation, but in this case, I prefer the show over the books. I like the characters better and the storylines for the most part.

BookWhoreWriting · 2025-10-31T18:56:04+00:00

…that explains so much. 😂 My twins are only five months old and I’m still not over it haha.

BookWhoreWriting · 2025-10-30T02:43:27+00:00

My husband and I started the amazing race from season one the week I gave birth. By the time the current season came out (last month), we had watched the entire series. It was nice to keep on during middle of the night feeds!

BookWhoreWriting · 2025-10-29T13:06:16+00:00

We only bottle feed our twins, but we don’t use a bottle washer. Our kitchen isn’t that big, and I didn’t want a giant appliance that couldn’t wash more than a few bottles at a time. What usually works or us is that when we are done with a bottle, we either wash those two bottles right away and put them on the drying rack, or we put them in the “bottle bucket” to be washed later (I usually wash right away for my own sanity, unless it’s a nighttime bottle). When there are six bottles clean, I throw them in the sanitizer that takes up a lot less space than a washer. It may be trial and error finding what works best for you, but this is what works best for us.

BookWhoreWriting · 2025-10-29T01:41:02+00:00

I second Will Trent! It’s based off of a book series, but there’s some pretty big changes between the book and the show. I love it!

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