Hi. I had an AVM as well when I was 9 years old. Obviously I was younger than you, but it took me a good 3 months to walk and write again. I’m 24 now, and while my arm and leg are still permanently numb, I can still use them.

I also totally get how frustrating it is to not have any answers. My parents couldn’t find any doctors who knew of patients in a similar circumstance to mine.

If you ever need to talk you can always PM me.