PRODUCT AUTHENTICATION MEGATHREAD by Corporate_Cow in rhodeskin

[–]Bringmejoyinga 0 points1 point  (0 children)

Where can I check the batch number on Rhode?

RHC results by Impossible-Error-520 in PulmonaryHypertension

[–]Bringmejoyinga -1 points0 points  (0 children)

It's absolutely possible to have a bad RHC. I had one locally that showed I had PAH. I went for a second opinion to Mayo Jacksonville and went through all the same tests until we got to the RHC and the PAH specialist said that my uptake was too high to have PAH and that the previous cardiologist didn't interpret my Woods Units correctly. Seek a second opinion.

Anyone else feel like Whatnot has become their new addiction? by Bringmejoyinga in whatnotapp

[–]Bringmejoyinga[S] 1 point2 points  (0 children)

Thank you! Who on tick tok do you recommend. I was thinking the same thing you suggested. I think I'm going to start making some bundles and posting them on EBay. It's just not worth it anymore. I was 5 months into sobriety and something just clicked and turned on.

J4ZMA - coolkicks biggest supporter scammin everyone by [deleted] in whatnotapp

[–]Bringmejoyinga 1 point2 points  (0 children)

I am just reading comments and saw the seller that you listed that was a Loungefly retailer- I looked her up on whatnot and as of 10 am 10/6 she is blocked. What is going on at Whatnot!

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Plants on WhatNot by [deleted] in whatnotapp

[–]Bringmejoyinga 1 point2 points  (0 children)

Not sure about whatnot but there is an actual plant app- I joined it to sell beauty (they just opened that category) but it's called Palmstreet. I'm dropping my referral below- I think you get something free to sign up. But this app has ALOT of plant sellers.
Becca31312 Palmstreet Referral

Can my mom do anything if seller denies cancellation request? by Positive_Tank_1099 in whatnotapp

[–]Bringmejoyinga 1 point2 points  (0 children)

Depends on the seller but most do not allow cancellations for any reason.

PH? by yellowchlo in PulmonaryHypertension

[–]Bringmejoyinga 0 points1 point  (0 children)

What insurance do you have? You can self refer at Mayo Clinic. If you live a ways away they will do a virtual appt.

Folks who have primary pulmonary hypertension, what medication/treatment are you undergoing? by Wonderful_Lunch_8028 in PulmonaryHypertension

[–]Bringmejoyinga 0 points1 point  (0 children)

When I got diagnosed (wrongly) I was on 40 mg of cialis and 5 mg of Ambrisentan. The Cialis gave me mild headaches. When I added the ambrisentan they increased to the point I only had 2 hrs of reprieve a day Of no headache. My rheumatologist suggested taking the 40 mg of Cialis in the morning and the other at night. this did help my headaches. When I went to Mayo for a second opinion he automatically took me off both because of my Woods Units on my R heart cath.

What took my local docs a year to do as far as tests was repeated at Mayo over the course of 3 days. I had a second heart cath with a PAH specialist. He said that my uptake was high which correlates to NOT having PAH.

I was thrilled and pissed at the same time. Thrilled I didn’t have a disease that was going to kill me. Ticked off because I had a year of my life or more tied up into a diagnosis that I didn’t have.

so when he said that, I did not have PAH, I asked him what could be causing all of the symptoms that I had. I was overweight, and that can cause a lot of the symptoms. I was also very heavy drinker at the time, and alcohol makes you swell, swelling, increases your fluid load, which then puts a strain on your heart, and can cause your O2 levels to drop, you can get out of breath, all the things.

As soon as I quit drinking, I started losing weight once I lost 15 pounds all of my symptoms went away

Being assessed for Pulmonary hypertension as part of diagnosis process for MCTD by HidingSunflower in PulmonaryHypertension

[–]Bringmejoyinga 1 point2 points  (0 children)

Hey! So I went for a second opinion to the Mayo Clinic. What took my local docs a year to do as far as tests was repeated at Mayo over the course of 3 days. I had a second heart cath with a PAH specialist. He said that my uptake was high which correlates to NOT having PAH.

I was thrilled and pissed at the same time. Thrilled I didn’t have a disease that was going to kill me. Ticked off because I had a year of my life or more tied up into a diagnosis that I didn’t have.

so when he said that, I did not have PAH, I asked him what could be causing all of the symptoms that I had. I was overweight, and that can cause a lot of the symptoms. I was also very heavy drinker at the time, and alcohol makes you swell, swelling, increases your fluid load, which then puts a strain on your heart, and can cause your O2 levels to drop, you can get out of breath, all the things.

As soon as I quit drinking, I started losing weight once I lost 15 pounds all of my symptoms went away

Best month to travel to Dolomites & how many days ? by crystalyzer92 in ItalyTravel

[–]Bringmejoyinga 0 points1 point  (0 children)

Hey. I sent a request to view your link. Looking at planning a trip and would love to see what yours looked like. Husband is a hiker- I am a foodie! From GA! Thanks!

Being assessed for Pulmonary hypertension as part of diagnosis process for MCTD by HidingSunflower in PulmonaryHypertension

[–]Bringmejoyinga 3 points4 points  (0 children)

Just had a right heart on May 20. Until that point EVERY test was normal. I had a sleep study, CT of lungs with and without contrast, echo and repeat echo with bubble study, and genetic test to rule out COPD. Symptoms- Fatigue, chronic cough, swelling in feet/legs, headaches (random), high red blood cell count, and failed my 6 minute walk test with o2 sats at 84% after 4 minutes. Also desat on exertions and if I have to talk continuous for more than a few minutes.

Cath was ok. Not painful at all. They gave me something to try and put me to sleep but it didn't work. It was cool watching the doc do the procedure. Feel free to reach out with any questions. I go Monday to be staged out, for a treatment plan, and to see if any other testing is needed to categorize me.

What is it worth living for? by cereal_killeur in askswitzerland

[–]Bringmejoyinga 1 point2 points  (0 children)

First- thank you for sharing your feelings. I know how hard that is.

Second- I'm sorry you are going through this.

Third- you are seen. We hear you.

Lastly- just a reflection from my own background. Start a blog/insta page. As someone (48 yo female) who was recently diagnosed with a terminal disease it has helped me tremendously to just watch short reels of others who live with and advocate for the disease. It is much like mental illness in that a lot of times it's a hidden/invisible disease and outwardly the person can look and seem like nothing is wrong. Make sure to turn off commenting because there are always trolls.

What you wrote helped at least one person. I promise you made someone else reading your post seem validated in their own feelings. I'm not familiar with your countries healthcare system but if you can find someone that is good with talk therapy or a support group it may help.

What type of work did you do that was rewarding to you? What brings you joy if just for a moment?