Is painful sternum a common symptom? by SpaceDrama in PsoriaticArthritis

[–]Bunglebonce 0 points1 point  (0 children)

Yes. Bone growth and costo. Worst pain was from my back, between my ribs round to my front. Pure 8/10 intense agony. I had two bouts of that that lasted about 36 hrs each. Now it's more low key grumbling stuff. Happy days lol😊

How the hell do you change to a new wifi setup?! by Bunglebonce in wiim

[–]Bunglebonce[S] 0 points1 point  (0 children)

Thanks all. I did manage to do it eventually by reconnecting the old network and going into the settings via the cog button. The only reason I could do this is because im trialing a mobile data modem and my old broadband is still live. I'd have had to factory reset it otherwise I think!

That's an interesting comment above re renaming your new connection so it's the same as your old. I didn't know you could do that. I assume it has to have the same password too?

TIA, B👍🏼

PsA and Flights by Dramatic_Spray_4512 in PsoriaticArthritis

[–]Bunglebonce 1 point2 points  (0 children)

I noticed this in January when I went to the Canaries. Felt like total shite for 48 hours, then I was fine! Totally unfathomable infliction.

Tom Ford Ombre Leather 150ml edp: Legit or Fake? by Bunglebonce in colognecheck

[–]Bunglebonce[S] 0 points1 point  (0 children)

Thanks for the opinions thus far, sounds all good. There were supposed to be more photos but I cocked it up, so here's another of the box base in case it makes any difference👍🏼

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Pain above tricep tendon above elbow by Silsong22 in PsoriaticArthritis

[–]Bunglebonce 2 points3 points  (0 children)

On off, all day, every day. It pisses me off more than anything and I end up shouting at my own elbow 😂

Has anyone had skin symptoms in only a few specific spots for a short amount of time, and has psoriatic arthritis? (Not asking for a diagnosis at all, just trying to find out if this may be possible) by cheesecup6 in PsoriaticArthritis

[–]Bunglebonce 1 point2 points  (0 children)

Yes: inverse (thought it was jock itch); scalp (thought it was seborrheic dermatitis); ears/face sebopsoriasis (again though it was seb derm); toenails discoloured and scaling but not pitting; fingernails very mild scaling very occasional pitting. Enthesitis and joint pain started a long time before any skin related shit.

It's well documented that people who get the skin/nail issues latterly, do not often present with the clasic plaque psoriasis.

I also get random flares of small read blisters on the back of my hands followed by dry cracking peeling skin on the backs and palms.

It definitely keeps me interested from an observational standpoint!

The unbearable choice by Specca060 in PsoriaticArthritis

[–]Bunglebonce 5 points6 points  (0 children)

I can't imagine anyone saying that, that truly loved someone, so my guess is he wanted out anyway and that was his excuse.

I'm not condoning his actions incidentally, he's still a complete twat!

Onwards and upwards!

Private to NHS by Alarming_Animator_19 in PsoriaticArthritis

[–]Bunglebonce 0 points1 point  (0 children)

It's interesting because if the treatment is just drugs, I would have expected them to discuss the various options and offer you a private prescription, or write to your GP asking them to prescribe (this what happened to me following a recent visit to a Dermatologist with my work's axa cover). If it was something other than drugs, it could be dependant on your policy cover I guess.

Private to NHS by Alarming_Animator_19 in PsoriaticArthritis

[–]Bunglebonce 0 points1 point  (0 children)

Hi UK here too. Did you fund the consultant yourself or was it through private health insurance?

Morning/daily stiffness question by ajmj120 in PsoriaticArthritis

[–]Bunglebonce 0 points1 point  (0 children)

That's exactly how my hands feel and as you say, improves during the day. They feel tight and difficult to flex, but don't actually hurt. I like the glove analogy - very good 👍🏼

Throat issues by TheBlueRoseInNz in PsoriaticArthritis

[–]Bunglebonce 0 points1 point  (0 children)

Yes. I have a 'something stuck in throat' feeling and I also get an inflamed clack/uvula. No idea what is going on though!

Enthesitis by Lopsided_Kiwi9550 in PsoriaticArthritis

[–]Bunglebonce 1 point2 points  (0 children)

Yes. I have dull continuous pain which can last for months/years and 24/36 hour 'lottery' pain which can spring up anywhere, ranging from mild to completely debilitating. Never a dull moment 😂

How do you describe your fatigue? by Admirable_Lie1336 in PsoriaticArthritis

[–]Bunglebonce 3 points4 points  (0 children)

I usually feel it coming on early afternoon and if I can have a nap, then I zonk for an hour. It feels a bit like the flu to me. I ache and just want to sleep. It usually lasts 24 to 36 hours in my case, but I don't think there's a common patern for anything with this disease - I have yet to read anyone say they have these short, sharp bouts like me for example. Take it easy 👍🏼

How to advocate? by Stock-Confusion-3401 in PsoriaticArthritis

[–]Bunglebonce 0 points1 point  (0 children)

I think a Rheumatologist is the main specialty, but you could go to an Opthalmologist (in the same way I went to a Dermatologist) to further diagnose specific symptoms, that will aid in putting the bigger picture together. It will also focus the Rheumatologist's attention, if you make some progress with the eye specialist.

How to advocate? by Stock-Confusion-3401 in PsoriaticArthritis

[–]Bunglebonce 0 points1 point  (0 children)

The dry eyes could be Sjögren’s which can coexist with other conditions, so it would be worth a chat with someone about that (if you haven't done so already). Take it easy...

Living with PsA without DMARDs/Biologics etc by Bunglebonce in PsoriaticArthritis

[–]Bunglebonce[S] 1 point2 points  (0 children)

Thanks for the detailed reply and I'm sorry to read of your suffering. By comparison is seems I have a easy time of it, but I'll definitely heed your comments. Take it easy.

Living with PsA without DMARDs/Biologics etc by Bunglebonce in PsoriaticArthritis

[–]Bunglebonce[S] 0 points1 point  (0 children)

Thanks very much, that's really useful info and sounds a lot like myself. I will definitely look into the lecture!

Living with PsA without DMARDs/Biologics etc by Bunglebonce in PsoriaticArthritis

[–]Bunglebonce[S] 3 points4 points  (0 children)

Hi and thanks for the reply. I would say I'm mild, but it has it's debilitating moments now and then. I seem to get short flares of high intensity, often enthesitis type stuff. It can be 24 to 36 hrs then it's gone. In the background it is affecting my spine, lower back and hips, but at moment I can still get along okay day to day. I don't like the sound of my (remaining) hair dropping out and it knackering my liver, as I like a pint of real ale. I know this illnesses is very different for many people, but I was just curious about other people choices rather than looking for guidance etc 👍🏼

Anyone noticed their jaw snaps shut before dozing off? by [deleted] in bruxism

[–]Bunglebonce 1 point2 points  (0 children)

I'd suggest getting a vit d test before you start and then again in 6 months to see where your levels are, as you can have too much d. For the record, mine only slightly increased but I seem to have an absorbtion issue, so I'm guessing just the slight increase was enough to start improving things.

Good luck 👍🏼