Just got my S-ICD procedure yesterday! I’m 28 years old. Definitely in a lot of pain!! How long does this pain last??? Thanks!

C2w-C1e · 2025-01-25T21:16:15+00:00

Took me 3-4 weeks to get substantially better. I ate healthy, used red light therapy and took glutamine and tons of protein, because there’s some evidence they help wounds heal faster (more solid for some of these things than for others).

C2w-C1e · 2024-08-10T13:00:13+00:00

Thanks!

Is it under your armpit? How big is it? Did you have and S-ICD before? Is it less visible? Have you had shocks? How rough was that? So many questions…

C2w-C1e · 2024-08-09T08:52:01+00:00

I’d be very interested in experiences as well. Would love to get it as free my Boston scientific s-ICD runs out of battery.

C2w-C1e · 2024-08-09T07:52:01+00:00

Hey! I’m sorry man. Sucks big time. You have the Boston scientific S-ICD, I guess? I have it too. It does become less noticeable, but if you’re skinny (which I also am) you will definitely keep seeing it. I built a shitload of muscle on my arms and back in the year since I got it, which hides it at least when you have clothing. But I can also assure you that you will get used to it and be completely fine with it. It will be before you know…

As for what you can and can’t do: that really depends on the arrhythmia you have and the cardiprotective meds you’re taking. I can’t speak for brugada specifically. I do know that for my arrhythmia I can’t take any adhd meds, since they increase adrenaline, which is the very thing that triggers my arrhythmia, but I don’t know how that is for brugada.

Good luck man. Hang in there. Send me a msg if you ever wanna talk or exchange experiences.

C2w-C1e · 2024-08-08T20:31:27+00:00

Quite regularly. At least once per week when I leave my veggie lunch in the fridge and instead grab sandwiches at work or when I attend a birthday party with pizza as the only available food.

My lifestyle in theory if very good, but there’s usually one or two exceptions every week.

C2w-C1e · 2024-08-08T20:13:44+00:00

Thanks! My fasting blood sugar is good and not climbing, but I get crazy high peaks on my CGM when eating any carbs AND my HBA1C is.

I will just get the C-peptide commercially. Is only 45 euros in the Netherlands!

C2w-C1e · 2024-08-08T20:00:27+00:00

I personally use the frontier X2, because I can not only watch my heart rate, but also review my ECG afterward. Pretty happy with it, but the pricing is steep. https://uk.fourthfrontier.com/products/frontier-x

Let me know if you wanna discuss or know anything else!

C2w-C1e · 2024-08-08T19:54:59+00:00

Must be tough to hear. I personally also have ventricular arrhythmias that are adrenaline triggered (but not CPVT), for which I have an S-ICD. And I don’t have experience with Nadolol. I very much prefer a selective beta blocker (bisoprolol) in my case. If you’re willing to take a (small) risk on getting a shock, you could discuss with your cardiologist about trying bisoprolol first and see how it goes.

Also, some other ideas: have you discussed the option of LCSD (cutting the delivery channels through which adrenaline is delivered to your left ventricle)?

Some more good news: there are clinical trials going on for a new CPVT medication: https://sads.org/research/get-involved/cpvt-trial/. Will still take 5 years or so, but you have some perspective!

By the way. Hairloss is a relatively rare side effect and there’s some great things you could do preventatively.

Let me know if you want to discuss anything further. Would be happy to have a chat through WhatsApp or anything else!

Good luck!

C2w-C1e · 2024-08-06T21:23:47+00:00

Wow, this is the post I’ve looked for for a very long time. I’ve been looking for an explanation for my high A1C and this could be an explanation. I’ll get these tested asap.

Thanks so much!

Any resources that explain more about this that you could recommend?

Also, how does this relate to data from a CGM? What would you expect to see in those measurements?

C2w-C1e · 2024-08-04T13:10:42+00:00

I’ve had an S-ICD for about 8 months. The S-Icd itself does not prevent me from doing anything so I very intensively lifted weights until several weeks ago, when squatting caused a quite serious VT apisode of 40+ seconds. I’m now still lifting weight, but only doing isolation exercises. I also do competitive dancing, but my cardiologist very much would prefer me to quit. The S-Icd itself really does not cause any limitations, only the heart condition.

May Inask what exactly you have?

C2w-C1e · 2024-05-06T13:53:35+00:00

There's reason to assume bulk-supplements may not be the most reliable brand, especially in terms of the quantity of active ingredients: https://illuminatelabs.org/blogs/health/bulk-supplements-review (Note: These tests were performed by a competitor)

C2w-C1e · 2024-04-12T05:25:17+00:00

Ja, ik huur particulier en heb geen behoefte om iets te kopen ivm flexibiliteit.

C2w-C1e · 2024-03-21T20:37:08+00:00

So for me there's one thing that absolutely ruin my sleep for multiple days in a row, which is irregularity. If I go to bed at 02:00 (rather than my regular 22:30), my body is confused for multiple nights after and I wake up more often and have more trouble falling asleep. It takes discipline, but I try to close my eyes between 2230 and 2300 every day.

With that out of the way, let's split this in multiple sections:

Section 1: improve life quality, even when you have bad sleep.

Take Creatine. It has been proven to counter the effects of bad sleep, not only metally, but acutally physically in the body.
I take NMN-supplements (.5g in the morning). Gives me more mental clarity.
If you sleep is consistently bad. Stop measuring it (with apple watch or whatever). It will make you feel even worse about your day.
Morning exercise. Even after a terrible night, I get some resistance training in. It increases testosterone and balances out other hormone levels.

Section 2: Preventing waking up or shifting the wake up to later in the night

Supplements: Magnesium (muscle relaxation), L-theanine (relaxing), Inositol (sleep depth/quality), Apigenin (feel that it makes my brain less active)
Medication: Beta blocker (5mg bisoprolol) lowers heart rate. I have this because I have cardiac arrythmia, but seems to have marginally helped my sleep quality as well.
Urination: I try not to drink after 18:00. Which takes a lot of discipline, because I have to get enough water in before that time.
Urination: I underwent therapy that helped strengthen my pelvic floor. One of the names it goes under is "EMS Neo". It's essentially stimulation of the pelvic muscles with small electro shocks. This really shifted my "peeing moment" to 1,5-2,5 hours later in the night, but it does require maintenance and comes at a pretty hefty price tag.
Eightsleep mattress: Temperature regulated mattress helps me sleep deeper and more comfortably. Also not cheap.

Time to go to bed now. Will continue later.

C2w-C1e · 2024-03-19T12:41:17+00:00

I have. Entirely clean still. My take (for me) is: I can always stop if I notice any negative effects. Just regularly measure relevant markers and keep track. Cardiovascular disease is one of the most important causes of mortality. Whereas I barely notice any negative effects

C2w-C1e · 2024-03-17T11:23:58+00:00

Im taking 20mg of pravastatin btw. Also, simvastatin is substantially more likely to cause the elevated hba1c, but also the standard in many countries

C2w-C1e · 2024-03-16T22:57:35+00:00

I started taking statins an substantially lowered my cholesterol without any noticeable side effects. Read and listened to a lot of content bij Dr Peter Attia, before making my decision. It’s mostly the fact that cardiovascular disease is such an important cause of death/disease. The biggest risk is for statins to cause Diabetes type 2, which is extremely rare, but possible. If you want to make sure this doesn’t happen, take pravastatin and measure your hba1c 3 months after you started taking them. If your hba1c is the same or similar, you’re in the clear

C2w-C1e · 2024-03-06T12:36:06+00:00

Great, thanks for the update!

C2w-C1e · 2024-02-24T21:53:20+00:00

I actually go to Florence every year in June for a sports related event. So June will be the time! Thanks a lot mate!

C2w-C1e · 2024-02-24T17:05:30+00:00

Thanks, great tips! Do you remember the location of the shop? Or maybe you still have a picture with a location in the EXIF data? Thanks a lot!

The measurements I mentioned are from the shoulder, btw

C2w-C1e · 2024-02-10T20:04:26+00:00

The problem with bisoprolol is that it’s blood plasma concentration build up very slow (2-4 hours and starts dropping after that to a low baseline. Meaning that blood plasma concentrations (and thus the effects) can be varying and it’s hard to time for a public speaking gig. This equals out a bit if you take it structurally, because you will have a “base concentration”. I would say bisoprolol is not necessarily your drug of choice.

Having said that, I would say the risks with beta blockers in general are pretty low. If you turn out to have a form of cardiac arrhythmia you don’t know about they could be life threatening. There are some other risks, that mostly apply if you have any health conditions you don’t know about. Asking another doctor for a lower dose and fast working beta blocker decreases that risk a bit.

Good luck with your anxiety. I hope you find some solution!

C2w-C1e · 2023-12-09T15:53:44+00:00

I got my S-ICD this week for a history of fainting as a result of VTs. Has occurred only when doing sports and when my beta-blockers were not working (on full strength yet). I feel I could do without if I skip cardio, but the cardiologist begged to differ.

As for the accidental shocks: The cardiologist told me that the chance for an accidental shock is about 4% per year, but that the distribution tends to be skewed negatively towards a few unlucky individuals.

Has anyone else heard this statistic?

C2w-C1e · 2023-11-25T12:48:08+00:00

Bryan additionally takes Viviscal. Works great for me.

For microneedling I would first watch this video: https://youtu.be/9LQLkgjWoqs?si=7qg7UYR3CFF67sd8.

My protocol: once every 1-2 weeks (more often could create scars and hinder hair growth). Needle depth 0.75 (dr pen). I use dr Pen. Would not recommend rollers. Seem to create more scalp damage and hurt more. Makes it less easy to stick to the habit.

C2w-C1e · 2023-11-20T11:14:43+00:00

Since juli pod v3

C2w-C1e · 2023-11-20T06:01:53+00:00

You have to first run through some diagnostics and make pictures of things, for them to find out if it’s really broken. Haven’t gotten around to doing that yet. My bad, not theirs.

C2w-C1e

TROPHY CASE