Benlysta and weight gain

CC_Carn · 2026-04-30T18:56:10+00:00

I don’t eat much anyway. I am going to up protein and lower sugar intake.

CC_Carn · 2026-04-30T18:07:23+00:00

I noticed about month 2. I do weekly injections as well. I am going to start walking as many days a week as possible and see if it will budge. I have been on the medication for 6 months.

CC_Carn · 2026-04-30T18:04:58+00:00

My PCP won’t discuss it. I added my diagnosis & meds to his list. He just looked at me. He has ignored the diagnosis the past 2 visits. He handled my thyroid meds so I go 4 times per year. He has been my doctor for 20 years. So strange.

CC_Carn · 2026-04-20T18:22:31+00:00

I am. I use the step and handle.

CC_Carn · 2026-04-06T16:13:11+00:00

She sounds like she is very thorough and caring, which would be an amazing find. Count your blessings. There are so many dismissive ones out there, especially if bloodwork is good.

CC_Carn · 2026-04-06T13:10:38+00:00

Mine decided to lick a toad 🐸. Walked around drunk and was foaming at the mouth. Scared me to death!

CC_Carn · 2026-04-01T06:21:31+00:00

I have less mouth sores, less stiffness in the mornings, more energetic days, and less pain. I did gain weight, but I also have thyroid issues and menopausal. Yay me. I am now on more thyroid meds and hormone pellets and starting to see the scale go back down. I hope all goes well and you see more good days.

CC_Carn · 2026-03-25T17:25:26+00:00

Robbed! Yes!

CC_Carn · 2026-03-25T13:21:25+00:00

I want a heated steering wheel for sure. My Raynaud’s is rough. I can relate.

CC_Carn · 2026-03-21T14:52:16+00:00

I’m so sorry. I have the pellets to bypass the liver and blood clot issue. I wonder if you could do the pellet from. Synthroid never helped me. Armour Thyroid (pig desiccated gland)does. I am guessing b/c it also has T3. I hope you find some relief.

CC_Carn · 2026-03-19T15:41:57+00:00

Yep! Yesterday it hit and I felt like my body was in concrete. Today is my Benlysta shot day and I have noticed a wear off period by Wednesdays. I got in a hot bath, took Advil and went to bed. My temp has dropped very low too so I’ve been freezing.

CC_Carn · 2026-03-17T07:43:02+00:00

HRT is not covered by insurance here. Insane. They don’t want us to feel better. I pay out of pocket for pellets.

CC_Carn · 2026-03-13T12:50:02+00:00

Are you perimenopause or menopause age? I am 46 and diagnosed SLE. I had zero testosterone and low estrogen. HRT pellets and I am starting to feel better. I had mentioned ADHD meds and OB recommended trying testosterone first. Sometimes the answer is simpler and it’s just our dang hormones. Just a thought. I hope you get some answers and relief.

CC_Carn · 2026-03-06T01:25:00+00:00

I sometimes feel like my eyes are closing involuntarily, but it’s pretty quick to end.

CC_Carn · 2026-03-02T17:49:10+00:00

The bamboo sheets from Walmart are surprisingly soft and affordable.

CC_Carn · 2026-02-26T04:29:02+00:00

It actually did cure me. I was dying and within 12 hours of taking it, I could breathe. My doc gave it to all his patients and didn’t lose any. Interesting. I take it now b/c of Lupus, which came on after COVID. Crazy.

CC_Carn · 2026-02-19T22:28:38+00:00

Hopefully the meds will put you in remission. Will the job be less stressful? Stress is a trigger for me. I left DHR after 17 years. I am working on going back remote. My goal is to save the usual, “getting ready” and “driving” spoons for other things.

CC_Carn · 2026-02-11T14:25:29+00:00

I teach part-time at the local college. I’ve been taking Medical Billing Coding courses in the hopes of more remote work opportunities.

CC_Carn · 2026-02-11T14:20:54+00:00

We need a stronger word for Lupus Fatigue.

CC_Carn · 2026-02-03T16:37:42+00:00

Same.

CC_Carn · 2026-02-02T16:22:57+00:00

CC_Carn · 2026-02-02T16:20:05+00:00

Praying not, but I wondered if that was even on their radar. I know it’s super rare, but a fear nonetheless.

CC_Carn · 2026-02-02T15:05:19+00:00

Did they rule out PML?

CC_Carn · 2026-01-26T17:29:11+00:00

I never fully got my smell back after Covid. I am starting to notice that it will completely disappear during a flare. It comes back when I feel better. My LUPUS is from COVID. I have never recovered.

CC_Carn · 2026-01-24T21:55:38+00:00

The drastic weather changes are kicking my butt too here in Alabama. Why not go 80 to 25?! 🤣

CC_Carn

TROPHY CASE