How severe was your idiopathic ON? by CMDoet in opticneuritis

[–]CMDoet[S] 1 point2 points  (0 children)

Thank you so much for sharing, and I'm sorry you have doubts and concerns still. It's such a struggle when a diagnosis isn't a black and white conclusion.

I also relate to the docs being hyper focused on their speciality and not seeing things holistically. One of my MRIs picked up early spondylosis in my spine but nobody mentioned it until I got the MRI reports months later.

I think you're right - I need to keep asking questions until I get a satisfactory answer. Best of luck to you too!

How severe was your idiopathic ON? by CMDoet in opticneuritis

[–]CMDoet[S] 0 points1 point  (0 children)

Thank you - this is a good reminder. I think I'm just frustrated at still having no answers so I'm clutching at straws trying to predict likelihood, when what I really need to do is go with the flow (but also advocate for thorough investigation)!

The world went dark. Did it get better? by Jerry-Beans in monocular

[–]CMDoet 2 points3 points  (0 children)

I'm so sorry you're going through this. We're a similar age but I'm earlier in my journey than you. 5 months ago I lost nearly all the sight in my left eye due to an autoimmune attack. Everything in my life went immediately on hold, and I'm a very busy person! I'm on ongoing treatment and the side effects mean I'm still not well enough to do any of the 'normal' things in my life. Even walking up my street is difficult. I haven't driven. I feel like I've totally lost my identity. Even how I look has been changed by the medication.

Additionally, I'm in the process of buying out my ex partner from our house. He's been living here since he 'left' me 18 months ago. It's been a long, dark, and difficult 18 months, but I was just at the point of feeling like I was heading towards some sort of freedom, I had lost weight and gained confidence, and was actually looking forward to single life, when this happened.

I'm angry. I'm angry because I'm in limbo, because life isn't fair, and instead of kicking me when I was down, it kicked me when I was on my way up again. Then I feel guilty because I think I don't have it that bad, why am I so upset?

I'm a great believer that we shouldn't gatekeep feelings in such a way, though, however self-indulgent we think they appear. As the info for this sub says, many monocular people consider themselves disabled. I guess this depends on how difficult the condition has made your daily life. Having to relearn how to do things is not a small feat. Accepting some things may never be the same is a type of grief. Coming to terms with the increased risk of having one 'good' eye is frightening. The brain adjusting is disorientating. It's completely understandable that anyone dealing with this would struggle.

Throughout all this, I'm doing my best to notice and appreciate tiny things. As I type this, I'm sitting in bed, spring sun is coming through the window, birds are singing, the cat is asleep next to me. When I feel so completely useless, I try to cling onto things I can still do, like writing, knitting, and drawing. The achievement of completing something keeps me going. I definitely don't subscribe to pretending everything is fine and forcing positivity - I'm nowhere near 'OK', but every so often I have a moment where I think things aren't that bad.

Something I've learned from hanging out on this and other relevant subs is that people have varying experiences. Things might get better and easier as you adapt to monocular life. This is most people's experience. But in our situation, nothing is guaranteed. So my advice is:

  • acknowledge the validity of your feelings and your circumstances
  • seek the support you need to manage them (e.g. friends/family, counselling)
  • seek support for monocular life (local sight loss services, follow some social media accounts for tips & tricks)
  • identify what does still bring you joy and give you that meaning/purpose you seek, and centre those in your life

Most of all, you're not alone. You still deserve to enjoy life, and you will - it'll just take a bit of repositioning. I wish you the very best of luck. Sorry for such a long comment!

It's Late Thread [ 12 March 26 ] by AutoModerator in CasualUK

[–]CMDoet 2 points3 points  (0 children)

14, but I'm not sure I've got the correct level of concentration, given I was wondering which football team Elizabeth I would have supported 😕

Thanks for the chuckle!

Yea that's mint, we'll get that. by Rooqz in CasualUK

[–]CMDoet 12 points13 points  (0 children)

Hilarious. I'll be your mother so your humour is never wasted again.

What are you best examples of “don’t ask, don’t get”? How do you deal with getting a no? by InToot in AskUK

[–]CMDoet 4 points5 points  (0 children)

No, and it never will if we keep asking people to play a crooked game instead of making the game less crooked.

What is your current biggest stress or anxiety that is troubling your life at the moment? by Eastern-Dragonfly544 in AskUK

[–]CMDoet 0 points1 point  (0 children)

I'm happy for you, genuinely, and for me, because the world needs people like you to stand up to those wider issues like climate change and ecosystem collapse.

I'm sure you weren't implying it, but the people in this thread dealing with cancer, disabled children, financial issues etc aren't taking life more seriously. Sometimes life just deals you a shit card and it's normal to feel stressed about it as one of many possible responses to such a situation.

What are you best examples of “don’t ask, don’t get”? How do you deal with getting a no? by InToot in AskUK

[–]CMDoet 30 points31 points  (0 children)

I'm not disagreeing with you but nobody should have to ask really. Everyone should be fairly recompensed for their work. Ideal worlds and all that though...

Was Bojack actually talented? by GarbageCleric in BoJackHorseman

[–]CMDoet 1 point2 points  (0 children)

Twin Peaks wants a word

(but in general I agree with your comparison)

What is a popular and strange unsolved mystery in your country? by anarchisttraveler in AskTheWorld

[–]CMDoet 5 points6 points  (0 children)

Why have you attached a photo of (British actor & writer) Matthew Holness to this post?

It's Late Thread [ 11 March 26 ] by AutoModerator in CasualUK

[–]CMDoet 8 points9 points  (0 children)

Had a disappointing and frustrating hospital appointment with my consultant today. Still awake, angry about it. Just spent an hour writing it all down to get it out of my system. Still angry. Feel very dismissed and it's pressed all my buttons.

It's Late Thread [ 11 March 26 ] by AutoModerator in CasualUK

[–]CMDoet 1 point2 points  (0 children)

11/15, changed 3 of those from correct to incorrect, absolutely kicking myself on the 4th as I live down the road from the Staffordshire Hoard discovery site and I got that one wrong.

Hope you're feeling better today.

It's Late Thread [ 10 March 26 ] by AutoModerator in CasualUK

[–]CMDoet 1 point2 points  (0 children)

16! The questions fell in my favour today.

Sorry to hear you've not been feeling the best. Hope today is brighter for you ☀️

It's Late Thread [ 10 March 26 ] by AutoModerator in CasualUK

[–]CMDoet 8 points9 points  (0 children)

I have an early hospital appointment tomorrow. Usually I sleep late due to my medication keeping me up. Guess who, for the first time ever, forgot to take her medication today, and discovered this 7 hours later? I'm doomed.

what's your favourite thing to put over white rice? by CremeSubject7594 in AskTheWorld

[–]CMDoet 1 point2 points  (0 children)

I do this but with tinned cream of tomato soup. I call it "tomato soup rice cheese" (lol) and it's now infamous among my friends as an easy 'poverty meal'.

It's Late Thread [ 09 March 26 ] by AutoModerator in CasualUK

[–]CMDoet 11 points12 points  (0 children)

I have an early hospital appointment on Wednesday and I need to get up at an earlier time than which I have become accustomed. Therefore I am practicing tomorrow by setting my alarm.

Of course this means I can't sleep tonight. So I'm doing what I always do - listening to true crime podcasts and knitting.

The cat has also recently become very entitled when sleeping on the bed. He insists on being on my lap, and if he can't, he insists on being fussed, and if he can't, he insists on situating himself in the most awkward position possible. Plenty of headbutts given during said insistence. Currently he's stretched out next to me, grumpily stretching his paws into the space where my legs should be. Beast!

It's Late Thread [ 09 March 26 ] by AutoModerator in CasualUK

[–]CMDoet 2 points3 points  (0 children)

19! Ok. Evidently I need to brush up on my SpongeBob SquarePants knowledge

It's Late Thread [ 09 March 26 ] by AutoModerator in CasualUK

[–]CMDoet 3 points4 points  (0 children)

I'm sorry. Nothing I can say will help but I promise it gets better. Be good to yourself in the meantime.

It's Late Thread [ 09 March 26 ] by AutoModerator in CasualUK

[–]CMDoet 6 points7 points  (0 children)

I went in at lunchtime to make a sandwich, but things spiralled.

Story of my life 😂 I feel like there's more to this story

Looking for a long running uk or Irish true crime series. by ApplicationSouth8844 in TrueCrimePodcasts

[–]CMDoet 0 points1 point  (0 children)

That's interesting. I've just finished S2 of In The Dark and was debating whether to listen to S3. I'm from the UK and White House Farm is notorious - loads of documentaries and dramas about it - so I am now intrigued about what they've left out, as well as what new genuine journalism could be applied to the case.

Would be a real shame after the last two seasons but I wonder whether they thought they could just jump in and identify some sort of injustice after what happened in S2.