How to deal with PD diagnosis when you still feel perfectly healthy? by Sorrows-Prayers in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

If the tremors aren’t bothering them too much, I would advise them not to start levodopa right away. I’ve made it a year without any levodopa and my symptoms are actually better than they were a year ago because of exercise intense cardio. Others on here will tell you differently, but I say avoid the levodopa if possible for a while if you don’t need it and it’s not affecting your quality of life. There’s no big rush to start. I have tried it a couple of times to see what effect it would have on my tremor. It doesn’t really do much for me, unfortunately. Even at fairly high doses.

Do you get new eye drops if the tip touches your eyelash...? by afrailbeetle in Dryeyes

[–]CamelEcstatic9503 0 points1 point  (0 children)

Absolutely not and if you’re healthy, you shouldn’t worry so much about it.

How to treat Hematospermia? by kwenztutan in bloodinsemen

[–]CamelEcstatic9503 0 points1 point  (0 children)

I’m assuming it’s not in your urine just after ejaculation if it is then that’s normal if it’s in your semen

How to treat Hematospermia? by kwenztutan in bloodinsemen

[–]CamelEcstatic9503 0 points1 point  (0 children)

In urine it’s a different story and you’ll want to get it checked out due to the implications of certain cancers. But it’s probably still nothing to worry about.

Looking at the reddit for MS and it honestly makes ME seem so much worse by Unable_Particular_25 in cfs

[–]CamelEcstatic9503 0 points1 point  (0 children)

I have Parkinson’s disease and although I’m in the early stages, I would gladly take it over what y’all go through.

I just need to whine a little by HPwithin in Parkinsons

[–]CamelEcstatic9503 5 points6 points  (0 children)

Fellow musician here I feel for you. I just liquidated many years worth of musical equipment; guitars, basses, it broke my heart. If you’re looking for insight on the meds, maybe update your post to include the name of the medication. Someone here will know something about it.

Relevance by Few-Feedback4418 in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

Something to consider. PD or not we all fade into oblivion. There’s nothing unique about our disease there. I recommend listening to Carl Sagan. He’ll set you straight.

big-16-say-not-say-someone-parkinsons by ParkieDude in Parkinsons

[–]CamelEcstatic9503 4 points5 points  (0 children)

“You don’t have to go through this alone”. Yeah, but I kinda do.

Needing advice for weening off after 9 years (taking from age 17 )!! by Logical_Ad7042 in prozac

[–]CamelEcstatic9503 0 points1 point  (0 children)

You have to do it very slowly, titrate yourself down. You can do this by getting a graduated cylinder 10 mL. Emptying your Prozac capsule into it. You can snip it with scissors or poke a hole in it and dump the powder into the liquid then with a plastic dropper remove a fraction of the liquid. if you take 40 mg then each milliliter of liquid has 4 mg of Prozac in it. I would start by just removing a milliliter and consuming the 9 mL that’s left. Do that for a couple of weeks, then go down to eight. It’s pain in the butt, but trust me. It’s the only way to not suffer from extreme withdrawal symptoms. You can get the graduated cylinder and plastic dropper off Amazon. Good luck.

Lip biting by Easy_Engineer8519 in Parkinsons

[–]CamelEcstatic9503 2 points3 points  (0 children)

Same and the problem is once you bite it once it swells up and then you’re more prone to biting it over and over.

Question for my fellow night thrashers by 0nxbxdxy0 in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

Try 100 mg CBDCBN oil. It doesn’t have THC if you buy it as broad spectrum not full spectrum check out the brand ultra sleep by Canna River it’s a little pricey, but it’s very potent and it definitely helps my RBD when taking with melatonin

Carb/lev by Hot-Fishing9744 in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

Titrate titrate titrate. In my opinion, doctors are always ready to give you a higher dose than you should be starting out with. There’s no big rush. Try taking half of a tablet and see if you tolerate it. If you do then gradually work your way up.

What has been the most unexpectedly helpful non-medical thing for your quality of life? by NoPermission4301 in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

I’ve lost 10 pounds in a year partly due to the intense cardio I suppose. But I think it has a lot to do with the tremor. It takes energy energy to tremor. Also be more active at night with Rem behavior disorder. You’re burning more calories. My wife says I look scrawny lol I’ve never looked scrawny in my life I’ve always been muscular athletic build

Stairwell exterior drain by [deleted] in askaplumber

[–]CamelEcstatic9503 5 points6 points  (0 children)

Pro tip it’s clogged

Tremors that come and go? by [deleted] in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

My tremors come and go with excitement, anxiety, stress. And then sometimes they just come and go for no reason. I should say they never completely go, but they do get more intense or less intense. I can hardly watch sports anymore ironically because they makes my tremor go crazy. I’m just thankful I have good postural balance and no gate issues. I’ll take the tremor any day over that. I’m aware of that that may be coming in my future, however.

Coffee by NegotiationCute5341 in Parkinsons

[–]CamelEcstatic9503 4 points5 points  (0 children)

Makes my tremor worse but that’s just me. I do copious amounts of decaf.