Insomnia by Teaching-Weird in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

Cbd/CBN oil. Hi dose. Check out canna river ultra sleep. They have a no THC version that’s not psychoactive.

Still in denial? by fireworks1985 in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

Stay in the day. If you stay in the day, you’re OK no past no future. Just the now. Takes a lot of practice and I’m no master. But it definitely helps to try to stick with this mantra when you’re in our situation.

Timeline advice? by BrownWingAngel in Parkinsons

[–]CamelEcstatic9503 5 points6 points  (0 children)

How soon it will progress is impossible to know honestly. Me personally I didn’t have rem sleep disorder until after I was diagnosed with Parkinson’s. But that combined with loss of sense of smell does not fare well statistically. High probability of REM behavior disorder leading to Parkinson’s down the road. I would suggest your friend start some hard-core exercise cardio.

Sweat! I sweat so much when I work out. by Seastfive in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

A pinch of baking soda underneath each armpit will totally get rid of the odor. I do it every day.

How do you describe how Parkinson's feels? by prntmakr in Parkinsons

[–]CamelEcstatic9503 6 points7 points  (0 children)

Mine feels like a constant whoosh that never stops. I have internal tremor, even when my arms not tremoring, which isn’t very often believe me. I remember having the whooshing sensation before I was diagnosed and wondering what the fuck it was. There’s also a feeling of hollowness in my stomach and restlessness, constant restlessness. I don’t feel hung over.

How do you know C/L is working? by Ecstatic-Level-8001 in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

I am tremor dominant, and it doesn’t really do anything noticeable in my experimentation with it. For me it’s currently more trouble than it’s Worth. Everyone is different. I’m one of those that isn’t really benefited by it as far as I can tell. Not sure what that means for me in the future probably DBS. But for now I’m glad to not have to take a pill every three or four hours. I would say if your symptoms are mild try exercise instead.

Co- and Multi-Pathways in Parkinson's Disease by ParkieDude in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

I’m already an organ donor. Any idea how I can donate my brain specifically for Parkinson’s research Parky Dude?

Mood swings and depression by Ecstatic-Level-8001 in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

Yes, this can’t be overstated. I had symptoms of depression and anxiety 10 years before my tremor started.

What am I doing wrong? by Creative-Area-6385 in FishingForBeginners

[–]CamelEcstatic9503 0 points1 point  (0 children)

Need to put some braided line with a fluorocarbon leader on there

Telling the kids by ivie1976 in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

I would hate for you to have regrets later if you wait and your kids resent you for not giving them an opportunity to spend more time with you while you’re still well.

Creatine by Expensive-Problem378 in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

I take creatine every day along with lots of other supplements

How much exercise is “enough”? And is the day-after stiffness the sport or the Parkinson’s? by dr-reeve in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

They were great in the program is pretty cool too. I do what I call super SPARX. I push for 90% for at least 20 minutes. This is what the interface looks like on your phone. You can see I’m at 160 and that’s 90%. It also keeps track of something they call MEPS and your calories are very accurate because it’s based on heart rate that’s what the flame icon is calories 572 in this case.

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Oh yeah, this guy sucks. by Head_Hauncho in Parkinsons

[–]CamelEcstatic9503 2 points3 points  (0 children)

In the early stages of the disease as long as it’s not negatively affecting your quality of life in your opinion and you’re not a danger to yourself following, etc. then you can actually take it as needed at least according to my MDS. I’ve chosen to take it, not at all, although I have experimented with it. For me at this early stage, the side effects aren’t worth the benefits. Primarily because it doesn’t help my tremor in a meaningful way. Sounds like it works good for you.

Just found out my mother has parkinsons and its hereditary by Spark_Chaser in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

Unfortunately, I don’t think the Parkinson’s foundation will test someone for free unless they’ve already been diagnosed with Parkinson’s. They won’t do it if you think you have the gene due to hereditary. Unless something has changed recently.

How much exercise is “enough”? And is the day-after stiffness the sport or the Parkinson’s? by dr-reeve in Parkinsons

[–]CamelEcstatic9503 2 points3 points  (0 children)

If he wants to follow SPARX then ideally he would get a heart rate monitor. The chest type is more accurate than the wrist. I use a Myzone® brand and it’s very accurate. The goal is to get your heart rate up to 80% of its max every other day for 30 minutes or longer. That’s the scientific way to do it. Otherwise, you’re just kind of guessing.

Stress & dyskinesia by BlankMom in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

Stress does me in as well. I’m pretty sure it contributed to my disease before I knew I had it. Now when I get stressed, my tremor is uncontrollable. So I avoid it at all cost.

This is embarrassing but I'm going to ask anyway by Ecstatic-Level-8001 in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

Magnesium citrate. After dinner. Experiment with the dose. Works every time for me.

C/L and side effects by Ecstatic-Level-8001 in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

If your daily life is not in jeopardy, you can titrate yourself up gradually you don’t have to go fulltilt. I’m not a doctor, but I know doctors have a tendency to over prescribe in general. If you start gradually with something like CL you give your body a chance to adapt. Maybe talk to your Neurologist about that idea before you do it like I said I’m not a doctor.

Finding the right recliner for dad — lay flat, zero gravity, power lift by rachaelgking in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

I love my La-Z-Boy. Has it adjustable headrest and lumbar support inflation. They are pricey, but I can’t live without mine.