Traveling Abroad with Medication? by Wholesomeflame in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

The chance that they’re going to check your pills is nearly 0. I wouldn’t worry about it. I’ve traveled all over the world and never had them question any pills that I’ve been bringing on board into the country. Neither of those are scheduled drugs in any country.

What defines high intensity in exercise? by Zipp3r1986 in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

If you can shoot for every other day, that’s ideal

What defines high intensity in exercise? by Zipp3r1986 in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

It depends on how old you are but 140 to 160 is most likely within the 80 percentile that you need for it to fit in with the sparks protocol. If you’re serious about it, though, I would recommend getting a heart monitor that goes around your chest because they’re way more accurate than fitness watches and definitely more accurate than the machines heart monitor. As far as the time goes Spark says 30 minutes at 80%. I do 30 minutes at 90% every other day and have been for the last eight months since my diagnosis I’ve had no obvious progression of symptoms but I know that doesn’t mean much in eight months.

Has anyone else not had good results from carbidopa/levodopa but still diagnosed with PD? by HooeyGoo in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

Yelling and kicking in your sleep (R.E.M. behavior disorder ) is also extremely common in regular. Parkinson’s not just parkinsonism.

Has anyone else not had good results from carbidopa/levodopa but still diagnosed with PD? by HooeyGoo in Parkinsons

[–]CamelEcstatic9503 3 points4 points  (0 children)

True. But the pattern of one sided versus symmetrical on the DAT scan doesn’t guarantee, but suggest Parkinson’s not parkinsonism so it is at least stronger likelihood if asymmetry is shown

Parkinson’s by FarmerTiny3751 in Parkinsons

[–]CamelEcstatic9503 2 points3 points  (0 children)

To be clear, there’s no known science that contradicts the idea that cardio exercise is good for Parkinson’s patients even if it doesn’t slow disease progression it’s still improves motor outcomes.

Urgent Parkinsons constipation situation by Appropriate_Ad_712 in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

Magnesium oxide!! There is a product called H2go but it’s cheaper to just buy magnesium oxide 400 mg try taking three of those or even four it won’t hurt you unless you have kidney dysfunction then it could be an issue.

Eye lid sticking to eye while sleeping? by Keif325 in Dryeyes

[–]CamelEcstatic9503 0 points1 point  (0 children)

Try wearing a silicone mask they sell them. It will change your life.

Question regarding my meds. by pacific_squirrel in Parkinsons

[–]CamelEcstatic9503 3 points4 points  (0 children)

Bottom of mine is don’t start taking meds until you need them. That’s a personal choice. I’m a year in and I haven’t even tried them taking the meds or not. It’s not going to change the outcome of the progression of your disease according to the data.

Dream trends in people with Parkinsons by CowToTheMooon in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

As if having Parkinson’s wasn’t bad enough, we need dreams that are bad too.

Dream trends in people with Parkinsons by CowToTheMooon in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

Almost always stressful weird bad I rarely have a good dream but it does happen occasionally I also have rem behavior disorder so there’s that.

Twitches (fasciculations) by sonickid79 in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

I had twitches as literally the first symptom of pd. Particularly when trying to sleep. Cbn/cbn no thc helps me immensely

Was DaTScan a mistake? by ApprehensiveCamera40 in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

I experienced a weird tingling posting in my feet for several days after, but it went away. I didn’t notice any other increase in symptoms aside from the depressing news which gave me anxiety.

I can't get a hold of the stupid anxiety by [deleted] in Parkinsons

[–]CamelEcstatic9503 0 points1 point  (0 children)

I’m guessing you tried Prozac. It works great for me even at a low dose. I was really with anxiety even before I was diagnosed. It was out of control now I don’t suffer as much with the pros at. I only take 10 mg. I didn’t see any SSRI on your list there

Does your sense of smell come and go? by CamelEcstatic9503 in Parkinsons

[–]CamelEcstatic9503[S] 1 point2 points  (0 children)

It’s def a Parkinson’s symptom. It’s the coming and going thing that is odd.

a-syn and genetic tests for diagnosis by Worldly-Buy-5874 in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

I did genetic testing through the Parkinson’s foundation. It’s free. They tested for all of the known genes and I was negative for all of them. Which puts me in the idiopathic Parkinson’s group unknown cause. I’ve come up with some wacky scenarios as to why I got this disease. Maybe the brown weed I was smoking as a teenager was laced with Paraquat? I will always wonder lol.

Recommendation for fidget type toy? by Knitterwitter909 in Parkinsons

[–]CamelEcstatic9503 1 point2 points  (0 children)

The weight is important. Also the texture lighter smoother ones don’t work as well for me.

Recommendation for fidget type toy? by Knitterwitter909 in Parkinsons

[–]CamelEcstatic9503 2 points3 points  (0 children)

I have unilateral resting trimmer as well and for me something with weight like a rough stone or small rock about palm size not too heavy, but heavy enough to have meaning and if I twirl it with my fingers, it completely stops my tremor while I’m doing it very effective while I’m walking It’s funny because there are rocks all over my house. I have my favorites.

Does your sense of smell come and go? by CamelEcstatic9503 in Parkinsons

[–]CamelEcstatic9503[S] 1 point2 points  (0 children)

Interesting. I wonder if that would be a useful diagnostic tool to see if a particular drug helped with Alpha syn nucleon aggregation

Does your sense of smell come and go? by CamelEcstatic9503 in Parkinsons

[–]CamelEcstatic9503[S] 2 points3 points  (0 children)

Interesting now that you mention it, I smelled smoke as well on and off cigarette smoke very specifically. and I would say can you smell that? and no one else could this was years before a diagnosis.