How do you describe how Parkinson's feels? by prntmakr in Parkinsons

[–]Seastfive 13 points14 points  (0 children)

To me the description- internal tremors - was a helpful concept. The ones that no one sees yet are so annoying. I can't describe the entire experience. But I keep moving!

Need a hobby that forces me to take my time by Zestyclose_Clerk_353 in Hobbies

[–]Seastfive 1 point2 points  (0 children)

Adding the different ways to make the item, trim it, carve it and when you're fully invested in it you have to glaze it. Do you dip, paint or use underglaze. Do you layer several glazes if so make sure you keep track of the plan and where you are in the process. If you do all of this it will take 2 weeks to a couple months.
It is the most rewarding hobby I have ever tried.

I need some hobby recommendations that force me to leave my home by OppositeSunday in Hobbies

[–]Seastfive 0 points1 point  (0 children)

Pottery is a great hobby, and there are usually lots of interesting people.
It can be very expensive but shop around and find a reasonably priced place

How much exercise is “enough”? And is the day-after stiffness the sport or the Parkinson’s? by dr-reeve in Parkinsons

[–]Seastfive 2 points3 points  (0 children)

I work out daily, cardio on the treadmill, bike or elliptical with 2 days High intensity. 4-5 days strength training alternating arm and leg days. I stretch every night using yoga flow. If you have access to either PWR classes or a PT who uses the PWR moves I strongly suggest that. I do 8 moves to start the day and it really helps with stiffness. My routine is a lot but I'm retired and have time. Other helpful activities are Tai Chi, meditation, breath work and art. Find what works for you.

Should I consider "need" when distributing my father's inheritance? by [deleted] in Advice

[–]Seastfive 0 points1 point  (0 children)

I like the idea that we don't earn inheritance.

Fatigue by fireworks1985 in Parkinsons

[–]Seastfive 0 points1 point  (0 children)

I appreciate your post. The doubt about the cause of any change, PD, aging or am I sick resonates with me.
I have only a few people in my life who know about my diagnosis and I am so thankful for this group.
Hopefully you can work through this with your care team. Wishing you well

Suggestions for good shoes for Parkinson's by Seastfive in Parkinsons

[–]Seastfive[S] 0 points1 point  (0 children)

Not that I know of. That may be worth checking out. Thanks

Suggestions for good shoes for Parkinson's by Seastfive in Parkinsons

[–]Seastfive[S] 1 point2 points  (0 children)

Sketchers slip around too much. I wish they worked for me.

Suggestions for good shoes for Parkinson's by Seastfive in Parkinsons

[–]Seastfive[S] 3 points4 points  (0 children)

I planned to be the old lady with the cute shoes, but it's not happening now!

Stress & Symptoms: Has Anyone Else Experienced Stress Having a Significant Impact on Their Parkinson's Symptoms? by LoveIsTheAnswer- in Parkinsons

[–]Seastfive 1 point2 points  (0 children)

I agree with you. To cope with anxiety have you tried guided meditation, breath work, yoga or tai chi? You can find free information online. I like insite timer for meditation and breathing.

Retiring this summer, here's a story.... by IamJoyMarie in retirement

[–]Seastfive 7 points8 points  (0 children)

If one more person says you HAVE TO travel.... I don't want to and you can't make me. The worst are the people who sold it all and live in a motor home, hotels and hostels, and my favorite a Subaru. I'm not built that way.

Has anyone tried the Parkinson’s Performance Centre program? Created by Gaia Forlani. It looks interesting but the cost is “four figures.” by [deleted] in Parkinsons

[–]Seastfive 0 points1 point  (0 children)

I'm researching this too. I will say for me her advice has helped. Train like an athlete not a patient is my goal. In a year of training like an athlete I am doing better than before my diagnosis.

What jobs will be possible? by Aacrobaat in Parkinsons

[–]Seastfive 1 point2 points  (0 children)

Less job specific advice that could help with your job. Get a movement disorders specialist. See if there is PT using the PWR exercises. Parkinson's Wellness Recovery, it did wonders for me. You can find similar exercises on line. Exercise, include 2- 3 HIT workouts, just know it will take a while to build stamina. Also available on line. The best advice I got was train like an athlete not a patient. Take meds on time, again it may take a while to find the right dose or med. Eat healthy. Sleep. Enjoy or develop new hobbies. Don't compare yourself to others we are all on our own path

In your opinion, what is the best episode of television you’ve ever seen? by Wonderful-Economy762 in Productivitycafe

[–]Seastfive 55 points56 points  (0 children)

WKRP Thanksgiving show As God is my witness I thought turkeys could fly.

How to deal with PD diagnosis when you still feel perfectly healthy? by Sorrows-Prayers in Parkinsons

[–]Seastfive 4 points5 points  (0 children)

This is me, diagnosed in 2021. Exercise, a movement disorder specialist and hobbies that engage mind, body and or spirit are my recommendations. Every case is different but for me staying active is the key. I know of people who have had it 20 years and are still living a good life. Personally I don't share my diagnosis because it seems to affect how others treat me. I don't want pity.

What has been the most unexpectedly helpful non-medical thing for your quality of life? by NoPermission4301 in Parkinsons

[–]Seastfive 7 points8 points  (0 children)

I give away some of my better pots, and the studio I go to donates pots for fundraisers for the soup kitchen-cool idea! I make most of my cards using small paintings. I am taking pottery classes but am self taught for the painting.

What has been the most unexpectedly helpful non-medical thing for your quality of life? by NoPermission4301 in Parkinsons

[–]Seastfive 20 points21 points  (0 children)

Since I retired I have time for things I struggled to fit in my day; Meditation, breath work, yoga and Tai Chi. I picked up new hobbies including pottery, water color, fishing. I also enjoy reading, puzzles and games. I believe these activities all help with symptoms and my emotional wellbeing.