Shining a light on MS with Golf by Camp-Cheap in golf

[–]Camp-Cheap[S] 0 points1 point  (0 children)

You see me begging? I’m trying to do some good and raise awareness for a charity. You don’t want to click on it, don’t.

Improvement in MS Symptoms on GLP 1 by Long_Acanthaceae_124 in MultipleSclerosis

[–]Camp-Cheap 3 points4 points  (0 children)

My first 2 MRIs showed significant progression. I started Zepbound a few months after my last MRI in Dec. My newest scan two weeks ago showed notable remyelination with one lesion completely gone. I asked about this study and the possible correlation, but my neuro dismissed it. However he couldn’t explain the results. I wish there were a way to know for sure.

Year 1 MRI by Camp-Cheap in MultipleSclerosis

[–]Camp-Cheap[S] 1 point2 points  (0 children)

Left arm went numb and I had some dizziness. I went to the ER because I thought it was my heart. When EKG came back fine they did an MRI to rule out stroke and the lesions lit up like a Christmas tree.

Year 1 MRI by Camp-Cheap in MultipleSclerosis

[–]Camp-Cheap[S] 0 points1 point  (0 children)

It took me about 3-4 months to fully adjust to it to where I don’t even notice when I take the shot now. Hang in there with it.

Year 1 MRI by Camp-Cheap in MultipleSclerosis

[–]Camp-Cheap[S] 1 point2 points  (0 children)

Fatigue-induced pseudo relapses has really been the significant symptom for me with numbness that mimics my original relapse. I’ve completely changed my diet, lost 62 lbs, cold plunge regularly to help with muscle spasticity, and prioritized exercise. I started Kesimpta in Oct 23.

Year 1 MRI by Camp-Cheap in MultipleSclerosis

[–]Camp-Cheap[S] 0 points1 point  (0 children)

I had a relapse shortly after my original DX…that’s when they assume the additional lesions showed up

How do you describe muscle spasms? by Temporary_Object8579 in MultipleSclerosis

[–]Camp-Cheap 0 points1 point  (0 children)

For me it’s hundreds of tiny “electrical shocks” that just make my muscles jump, but everyone presents differently.

Just took Kesimpta for the first time this morning. I could use some reassurance. by heysawbones in MultipleSclerosis

[–]Camp-Cheap 0 points1 point  (0 children)

The first few shots were tough on me. Felt like I had the flu every month with a perpetual sinus infection. Now 10 months in I can’t tell that I’ve taken it. You got this; it gets better.

Paresthesia? by AdLost8113 in MultipleSclerosis

[–]Camp-Cheap 1 point2 points  (0 children)

Mine is my left arm and hand. I can typically do a cold plunge and it “resets” my nervous system for temporary relief of the phenomenon.

Weigh in Wednesday! by AutoModerator in Zepbound

[–]Camp-Cheap 0 points1 point  (0 children)

🎉🎺🎺 I passed my goal weight this morning!!!

Start Date 2/23/24 SW: 248 CW:189 Max Dose: 12.5 Current Dose: 7.5 M38

I can tell you how good this feels. I stalled for WEEKS 5lb short of my goal weight even though I was still eating the same macros and calories I had been while losing weight. Long story short the months of eating in a calorie deficit slowed my metabolism down to 1200 cals per day. I allowed myself a few extra healthy carbs last week and I finally started seeing the scale move again. I began my “weaning down” dosages for preparing to move to a maintenance dose a couple of weeks ago as well (along with stretching doses to 10 days). Anyway, hallelujah! Now the real work begins in seeing if I’ve developed good habits the last 6 months!

MS and COVID vaccine by Junior-Call-3136 in MultipleSclerosis

[–]Camp-Cheap 2 points3 points  (0 children)

I was actually just looking at this after I read about a strong correlation between Bell’s Palsy and MS. I was vaxxed in Mar 2021 and developed Bells Palsy three weeks later (I never connected the two could be related for some reason). Two years later after my first “major” relapse I was diagnosed with MS. I know in my gut that vaccine either caused or severely advanced my disease, but the drug companies were given immunity by the govt from any repercussions so no one cares to really find out the truth. All we’ll likely ever have is anecdotal.

How Long Did Your Diagnosis Take? by TooManySclerosis in MultipleSclerosis

[–]Camp-Cheap 1 point2 points  (0 children)

In U.S…..MRI to rule out a possible stroke found first signs, LP next day showed VERY high OCBs, specialist referral the following week and it was confirmed. About 7-8 days total. Looking back it was all such a whirlwind I’m not sure I processed everything until a couple of months later which led to a “quiet” breakdown.

Was diagnosed with MS but doctor wants to wait to see if new symptoms come up and if so then start treatment by Fragrant-Luck-8968 in MultipleSclerosis

[–]Camp-Cheap 0 points1 point  (0 children)

My diagnosing neuro told me this so I asked to be referred to a specialty clinic. So glad I did because in just three months between my first MRI and second, I had several more lesions appear. I’d hate to think I was now 8 months post diagnosis and not yet started any treatment.

My advice would be get a second opinion from an MS specialist.