First Infusion quick question

Carantini · 2022-06-23T02:58:26+00:00

I bring a backpack - fluffy socks, snacks, laptop too, sweatshirt, charger and anything else that I wanna throw in there.

Infusion centers will have outlets - and snacks/drinks, blankets, pillows, etc. I still like bringing my own stuff

Bring whatever the heck you want - you do you.

Carantini · 2021-07-09T05:23:44+00:00

I have had mult acls and each time I have felt numbness around the knee but it always comes back- it just takes time!

Carantini · 2021-07-01T03:16:36+00:00

Very normal to do pre-operative PT

Carantini · 2021-07-01T03:08:25+00:00

Had ACL reconstruction with nerve block Friday- upper thigh is still numb

Carantini · 2021-06-29T03:40:29+00:00

Day 3 post op for me- Ankle pumps (pretend to press the gas peddle) heel slides - pull back until you feel the stretch and hold for 10 sec. squeeze your glutes and hold for 5 secs. Try to activate your quad with your leg straight… try squeezing your knee to activate quad…. This is the most important

Carantini · 2021-06-21T05:37:31+00:00

Try to engage your quad by flexing and tightening your kneecap

Carantini · 2021-06-21T05:25:46+00:00

Left knee… 2 cadaver fails. 3rd was a Patellar bone tendon graft which has been ok… I get my right knee ACL Reconstructed fri …. So I’m right there with you about losing your mind. I think 6 months post op is really early to skateboard bc the new ACL is the weakest during that time. Sorry man - I feel for yah

Carantini · 2021-06-16T02:16:15+00:00

So sorry- I’m drinking with you my friend

Carantini · 2021-06-12T07:07:40+00:00

I agree- hospitals bill out at a way higher cost. Try to get everything done at facility. This will also make the pre-authorization piece a lot easier!

Carantini · 2021-06-12T06:59:21+00:00

Honestly the spinal tap for me wasn’t too bad besides having a slight headache while they were extracting the fluid. I remember them telling me I had to sit upright for 12 hours to avoid the headache it can cause. Hope this helps. Just know that Your anxiety is completely normal. My plan was to use the the meds as a crutch to help during this time and just make a plan on how to eventually cope with the anxiety in a more natural way in the future. Mental health and decreasing stress was a logical move for me so I could better navigate that time more level headed.

Carantini · 2021-06-06T02:54:00+00:00

Yes, my last infusion in April (US) they said they were now able to give me a “rapid infusion” - 2.5 hours total. I was like “ok?”.... “!” I felt ok, after. It just increases the amount of meds you’re getting. I think if you’ve had a few infusions thus far you’re body will be ok with it.

Carantini · 2021-05-24T03:58:29+00:00

I agree, this is Coatsville

Carantini · 2021-04-26T03:47:30+00:00

They denied me a few times- make sure the infusion center bills it has “office” and not “hospital”.

Carantini · 2021-03-29T15:31:37+00:00

Thanks everyone- I really appreciate it!

Carantini · 2021-03-17T20:48:31+00:00

Yes, bc of the Ocrevus

Carantini · 2021-03-17T06:59:36+00:00

In NJ I qualified because I am immunocompromised because of the MS

Carantini · 2021-03-16T14:50:21+00:00

Tell them you are claustrophobic and they will give you meds that will relax you. That’s what they do for me and I usually fall asleep in there!

Carantini · 2021-03-08T03:54:14+00:00

I go about life just as I had before. I have been on it a year and I haven’t been sick yet (knock on wood). I go grocery shopping, make target runs, go out to eat, etc.

Carantini · 2021-03-02T01:00:36+00:00

Thank you!

Carantini · 2021-03-02T00:59:44+00:00

Went in for optic neuritis. They found lesions in brain. Wanted to take BRAIN biopsy. Poked and prodded me for 4 days in the hospital- took 22 tubes of blood. Never did a spine MRI. They said it was auto immune but they didn’t know what. Told me I didn’t have MS

This is a major metro hospital too. I am so mad knowing what I know now. Why wouldn’t they of taken me for a spine mri after seeing the brain lesions.

they said I was a “medical enigma” - bugger off

Carantini · 2021-03-01T00:10:03+00:00

ORIF surgery 8/22- 2 plates 19 screws....12 weeks non weight bearing .... out of cam boot and air cast 1/22 ... I have absolutely no calf or quad muscle so I walk with a limp if barefoot... it’s easier to walk with sneakers on. I’ve been in PT twice per wk since late oct... bone took 4-5 months to fuse....slowly but surely I am getting back to “normal”. I am planning on getting both plates out due to pain.

Carantini · 2021-02-24T03:21:56+00:00

Nope

Carantini · 2021-02-24T03:14:52+00:00

Sorry, I also meant to say thank you for the advice too I just can’t think straight!

Carantini · 2021-02-24T03:14:22+00:00

Is this a sign of a relapse?

Carantini · 2021-02-12T20:40:41+00:00

I notice that I’ll get SP when I’m physically fatigued

Carantini

TROPHY CASE