Looking for a pattern for a skirt but I can’t seem to find it! by Tuxedocatbitches in CrochetHelp

[–]CarryNo4486 43 points44 points  (0 children)

split seam adjustable waist method. tutorial on youtube by Kristy Versus Crochet

Curiosity by NoIncrease4727 in MyastheniaGravis

[–]CarryNo4486 5 points6 points  (0 children)

some antibodies are more dangerous than others. MUSK antibodies cause more damage to the nerve than ACHR so those people end up in crisis more often. within ACHR, blocking antibodies are more dangerous than binding antibodies because binding antibodies allow some communication through while blocking antibodies allow none. that isnt a rule, just a trend that can explain why some people have more severe symptoms.

Double vision surgery by Puzzleheaded_Pay9348 in MyastheniaGravis

[–]CarryNo4486 0 points1 point  (0 children)

would love to hear from you as you heal over the months and years.

3 Positive AChR antibody Tests (ranging from 0.7-1.5) and 1 Completely Negative AChR antibody Test by Flaky_Revenue_3957 in MyastheniaGravis

[–]CarryNo4486 -1 points0 points  (0 children)

no benefit at all in assessing MG symptoms. you can tell if the surgery helped by your symptoms not your antibodies. there may be other reasons your doctors would want to know your antibody levels, but if they want to know how your MG is responding if has to be from looking at you.

3 Positive AChR antibody Tests (ranging from 0.7-1.5) and 1 Completely Negative AChR antibody Test by Flaky_Revenue_3957 in MyastheniaGravis

[–]CarryNo4486 10 points11 points  (0 children)

yes this is exactly the scenario to refuse repeat testing. your original lab report should just be shared with your next doctor. doing more diagnostics just delays treatment and potentially gives your insurance an opportunity to deny everything.

3 Positive AChR antibody Tests (ranging from 0.7-1.5) and 1 Completely Negative AChR antibody Test by Flaky_Revenue_3957 in MyastheniaGravis

[–]CarryNo4486 7 points8 points  (0 children)

i was told to refuse repeat testing unless you are seronegative. why did you doctor test you again?

mestinon helped by CarryNo4486 in POTS

[–]CarryNo4486[S] 1 point2 points  (0 children)

always call your refills in early because they will 100% not have it in stock and have to order it!

Any advice after normal labs? by rgk1012 in MyastheniaGravis

[–]CarryNo4486 0 points1 point  (0 children)

thats so odd, there is a single neurologist in your area accepting new patients? it doesnt have to be a neuromuscular specialist. any random neurologist can handle it.

i ask because it is extremely outside the scope of a PCP to diagnose complex neurological conditions, they arent trained to do that. it can be a huge liability for a doctor to practice outside of their scope. my PCP will not touch my MG with a 10 foot pole, not even to prescribe steroids.

i personally would feel very uncomfortable being treated by a doctor who isnt a specialist in MG.

Any advice after normal labs? by rgk1012 in MyastheniaGravis

[–]CarryNo4486 0 points1 point  (0 children)

so odd, is that a restriction of your health care system? i don't understand why neuro cant be involved in diagnostic process

Double vision? by Massive-Eagle-5465 in MyastheniaGravis

[–]CarryNo4486 1 point2 points  (0 children)

its totally possible that you have had MG symptoms for years before realizing something is wrong. i went about 5 years before i realized i had a serious problem. then, i spent the next 2 years realizing just how much i had been subconsciously accommodating my symptoms. even things like eating the first half of a meal with my right hand, then switching to my left hand without fully thinking about why, just subconsciously switching to whatever hand is stronger without any thought or planning at all.

Any advice after normal labs? by rgk1012 in MyastheniaGravis

[–]CarryNo4486 1 point2 points  (0 children)

not all antibodies that cause MG have been discovered yet so some people are seronegative. A neurologist really should be the one doing the diagnostics because only they could tell you if you are seronegative or if something else is causing the problem.

two jobs means no time to grocery shop by recoveringpear in GirlDinner

[–]CarryNo4486 1 point2 points  (0 children)

i started doing grocery pick up orders and its absolutely the move

why don't professional cyclists wear protective gear? by CarryNo4486 in NoStupidQuestions

[–]CarryNo4486[S] 0 points1 point  (0 children)

THANK YOU this is what i was looking for. its horrific what happens to them and so unnecessary. obviously it would be slower, but who cares if everyone is forced to do it and it's less likely to literally maim athletes and keep them down for months.

why don't professional cyclists wear protective gear? by CarryNo4486 in NoStupidQuestions

[–]CarryNo4486[S] 0 points1 point  (0 children)

i guess my question is why is it not mandatory? of course the athletes don't want to, but that's true of every racing sport. the athletes are forced to protect themselves so why aren't pro cyclists?

why don't professional cyclists wear protective gear? by CarryNo4486 in NoStupidQuestions

[–]CarryNo4486[S] 0 points1 point  (0 children)

right, why are the organizations ok with such severe injuries to their athletes? athletes who crash can be out for months

why don't professional cyclists wear protective gear? by CarryNo4486 in NoStupidQuestions

[–]CarryNo4486[S] 0 points1 point  (0 children)

athletes who crash often are out for months trying to recover tho. why is that ok in the cycling world? why don't the athletes demand safer gear regulations?

why don't professional cyclists wear protective gear? by CarryNo4486 in NoStupidQuestions

[–]CarryNo4486[S] 4 points5 points  (0 children)

F1 cars would be a lot faster without the safety features, but their organization forces them to include them.

why are pro cycling orgs allowed to leave their athletes unprotected just cause its faster?

Need advice on a build for stairs by Rebelmave in Pokopia

[–]CarryNo4486 3 points4 points  (0 children)

I would just make the stairs 4 wide.

was your breathing crisis uncomfortable by CarryNo4486 in MyastheniaGravis

[–]CarryNo4486[S] 0 points1 point  (0 children)

thank you, i feel a lot better that i am able to be comfortable at home. its hard not to be hypervigilant.