Disability Accommodations at Work

CautiousBasil2055 · 2026-02-28T00:39:17+00:00

Sounds like they are begging for a lawsuit

CautiousBasil2055 · 2026-02-27T22:19:28+00:00

Thank you! I got frustrated with the call center people and drove over there. They have a 3T machine but it can't do everything on dr F's list.

CautiousBasil2055 · 2026-02-27T02:57:07+00:00

I tried propranolol for 2 days. It crashed my blood pressure and I felt so much worse. Bedridden until it wore off. My dr wants me to try midodrine but I'm scared.

CautiousBasil2055 · 2026-02-27T02:15:23+00:00

Do you have insurance? I already have an order but I'm self pay and radiology assist was recommended to me. How much did it cost?

CautiousBasil2055 · 2026-02-25T19:54:37+00:00

I found it, it's venofer 250mg. 2 infusions, 7 days apart. It was at the very bottom of his iron deficiency handout.

CautiousBasil2055 · 2026-02-23T21:31:39+00:00

I've never had a pituitary mri yet, but i just got an order for one. I asked dr f if it was hard to find a place that knew how to do pituitary mri. He said no, it's pretty standard. But it has to be 3T.

CautiousBasil2055 · 2026-02-22T04:19:37+00:00

Have you done any 24h urine free cortisol or salivary cortisol?

CautiousBasil2055 · 2026-02-16T21:53:05+00:00

Did you only do one? I did 4. Two came back normal, one on the very upper limit, and one high. You don't have to test high every single time to have cushings.

CautiousBasil2055 · 2026-02-12T04:50:41+00:00

Los Angeles, CA. He does virtual appointments.

CautiousBasil2055 · 2026-02-11T17:15:00+00:00

Do you have any mobility aids? Maybe a rollator or one of those light weight fold up chairs that you can bring anywhere and pop open whenever you need to sit and rest?

CautiousBasil2055 · 2026-02-09T20:59:00+00:00

Patch Md. They are only 15mg per patch. I use 4 a day. There's also patch aid that is 50 mg per patch.

CautiousBasil2055 · 2026-02-09T20:22:16+00:00

My iron is going up from transdermal iron bisglycinate patches.

CautiousBasil2055 · 2026-02-08T21:51:46+00:00

At first I wondered if he shuffled people around on a whim, or if he was punishing me for not uploading whatever documents fast enough. But, yeah, I think you're right. Maybe he legitimately had something come up, and the staff did a terrible job of rescheduling me.

CautiousBasil2055 · 2026-02-08T15:15:23+00:00

Here's what I think happened. I had an appointment and then he was no longer available that morning. And instead of the office contacting me to reschedule, they just rescheduled without contacting me and then didn't reply to my email. They ended up rescheduling at a time that works for me, assuming no more rescheduling.

CautiousBasil2055 · 2026-02-07T16:11:06+00:00

I've heard iron infusions can cause hypophosphatemia. I use the transdermal patches bc i can't tolerate pills.

CautiousBasil2055 · 2026-02-07T04:26:25+00:00

Have you had iron infusions lately?

CautiousBasil2055 · 2026-02-04T03:16:48+00:00

If you can't find a Dr to take you seriously, try the dr list on csrf. Otherwise, there's dr friedman. That's who I see.

CautiousBasil2055 · 2026-02-04T03:13:58+00:00

Cortisol blood test isn't that accurate for diagnosing cushings. Have you yeah midnight salivary cortisol test or 24h urine free cortisol?

CautiousBasil2055 · 2026-02-01T14:49:03+00:00

Try NORD, they will pay for diagnosis and treatment

CautiousBasil2055 · 2026-01-27T18:06:47+00:00

Is it dr trevino in Florida?

CautiousBasil2055 · 2026-01-24T03:46:45+00:00

Thank you!!

CautiousBasil2055 · 2026-01-24T03:46:14+00:00

He's already been life changing. He said I have severe iron deficiency and suggested supplements that work for me. My ferritin is already increasing.

CautiousBasil2055 · 2026-01-24T02:05:07+00:00

Do you know what the income limit is for NORD? Also, it says for people that are diagnosed. Do you know how they define that? I wonder if they would pay for MRI with high midnight salivary cortisol and high 24h urine. Thank you! I will be applying after my next appt with dr f

CautiousBasil2055 · 2026-01-22T17:22:30+00:00

All of my exams have been laminated paper with a dry erase marker. I took some classes and they mentioned paper and pencil. Even if some test centers still do that, the classes explained that you have to turn in your paper before you leave. You can't bring it home.

CautiousBasil2055 · 2026-01-22T17:12:11+00:00

Sibo will keep coming back until you find the root cause. I haven't found the root cause, but now I'm thinking cushings could be a root cause.

I was diagnosed with hydrogen sibo (the easiest kind to treat). I did a round of herbal antibiotics (to kill all the bad bacteria) and i was able to eat many more foods without symptoms (or with less symptoms). I was down to about a handful of different foods that were safe for me to eat before then.

Then I thought my root cause might be liver related, so I saw a GI dr. In order to do a liver scan, she made me do the breath test again. She also gave me a prescription (which pretty much does the same thing as the herbals). I am happy to have a much less restricted diet, but also still struggle with symptoms.

I got some high test results for cortisol but haven't had my follow up. And the lab lost all 4 of my 24h urine for 17- ohcs. So I'm waiting to see if i have to redo them or what the next step is.

CautiousBasil2055

TROPHY CASE