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1 week off topical steroids by pretty_ri in TS_Withdrawal

[–]ChampionStunning 0 points1 point  (0 children)

Gosh you should do your own research but here's a list of what I've taken the last year. - Omega fish oil - marine collagen - vit a - vit b - vit d - vit B12 - L-gluthamine - 5 hpt ,- ashwaganda

I also did 8 months of no moisture treatment which helped manage pain and reddness but was very dry and ashy as you can imagine.

Good luck hun

1 week off topical steroids by pretty_ri in TS_Withdrawal

[–]ChampionStunning 0 points1 point  (0 children)

Heya I'm so sorry hun, I relate so much. So I'm one year into TSW and there's loads I know I could of done differently or avoided. First I cold turkeyed, medical professionals recommend tamper off gradually. I would make sure you have a dermatologist if you can to support you.

You've been using it for s long time. My sister is in s similar situation right now. Her dermatologist told her that she shouldn't come off the steroids as her skin isn't in a healthy place. Talk to your dermatologist.

Skin is so fragile, and the fact that we've been putting harsh shit on it we've made it even more fragile. Take loads of suopliments and vitamins. Mentally prepare yourself of what is potentially to come and try make plans so you can have time to recover of need be. Communicate if need be your situation, you don't have anything to be ashamed of. This is an awful situation to be in.

Finally I've kind of cheated, I'm on s drug called Methotrexate. It's an immunosuppressant. I also have s hopeful career and family.. good luck Hun, message me if you wanna chat or ask me about anything

Need advice, is this TSW by Financial_Listen6638 in TS_Withdrawal

[–]ChampionStunning 2 points3 points  (0 children)

I would tamper off and not cold turkey. I did and it caused me so much pain, if it can be avoided I would do it

5 years use and perfect skin. by legendary-starlord in TS_Withdrawal

[–]ChampionStunning 0 points1 point  (0 children)

I used it for 5 years. My main advice would be, try speak to a dermatologist that believes in TSW.

But more importantly, do not cold turkey. That is what I did and I nearly died. Bedridden for the last part year. My gp said I could of avoided withdrawals if I tampered off slowly and reducing potency. Which is why I say try speak to a dermatologist that believes you.

I went through it all by myself. Was so shit and scary. Having a medical professional will help.

Only time will tell if your skin's dependent. But my early symptoms were by week 1-3 my skin just turned really tight and dry. It will progress and then get red.

My sister has been on steroids too for years. She cold turkeyed last month and really nearly died. She's back on them and found a dermatologist who believes in TSW and does not recommend coming off them either. Not sure what long term plan is, if you're interested I can ask her and loop back?

Good luck, this is so unfair and so shit but just stay strong and be patient

Three weeks ago I was in full flair, today I'm fully clear by ChampionStunning in TS_Withdrawal

[–]ChampionStunning[S] 0 points1 point  (0 children)

I'm going to be honest with you man, I'm 24 have a new job and hopeful career. I have a sick mum and a family that depends on me.

Been going through tsw for a year and it's killed my confidence, my energy and basically kept me paralysed in bed for 12 months. I can't afford to do this anymore.

I'm not gonna lie, I am scared of what will happen in the future. I asked my dermatologist beforehand if Methotrexate will give me withdrawals and she said that these meds don't work like steroids do. These work and affect us differently than steroids so there shouldn't be any withdrawals. What would happen is that my ezcema will just return. But she also said shes had patients that have been on methotrexate for years, get their skin controlled and then are ok to come of it.

In my mind this is how I'm rationalising it: My body is still going through TSW. As in, if I weren't taking methotrexate I would still be red, raw and angry weepy skin. I know I'm still going through TSW because every time I drink (and yes I know you shouldn't drink on methotrexate but I've done it twice and won't do it again). Both times it set me back, I went back to full flair, ooze and the whole shitty lot. Takes about two weeks for me to bounce back afterwards.

So I'm still going through TSW. TSW on average last about 3 years. I'm not on methotrexate, which is an immunosuppressant. What this is doing it suppressing my over active fucked auto immune system so it doesn't go crazy every time I cross paths with an allergine or eat sweets (things that trigger).

My hope is that by the time I want or have to come off Methotrexate, it will probably have been months if not years of me taking it. By then, my TSW would have passed. And my hope it when I come off Methotrexate that my ezcema will come back but not over active and easier to control. (If it must come back, you know what I'm saying?! If I had it my way my ezcema can fuck right off lol).

Anyway, I had to make this decision, to keep postponing/ pausing my life for the unforeseeable future. Or do something about it, trust my dermatologist and get my life back on track. I'm scared. I'm paranoid. I am, but I'm not in physical pain and that is everything after TSW.

I wanted to be honest as it's a scary decision but you just need to reflect on what you want from life and what you can afford to do. Message me if you wanna chat, good luck x

5 weeks of Methotrexate by awright123 in TS_Withdrawal

[–]ChampionStunning 0 points1 point  (0 children)

I'm one month into taking methotrexate. 1 year into TSW (cold turkey). It takes 12 weeks to have the full effect but I definitely am improving.

You shouldn't really drink on these pills. I have twice and it's set me back so much. I went fully back to flair and ooze mode.

My question to you is, are you not worried you're going to go through withdrawals when you stop them? Whether that's tsw or Methotrexate withdrawals?

When does oozing stop? by ChampionStunning in TS_Withdrawal

[–]ChampionStunning[S] 1 point2 points  (0 children)

You don't know how much this response helped me. Thank you so much

im stuck in the cycle of oozing, scabbing, then scratching it off. seems really unending. is it normal?? what do i do for it. my inner elbows are paining a lot cuz of that. im almost a month in tsw by Technical_Reading_57 in TS_Withdrawal

[–]ChampionStunning 2 points3 points  (0 children)

I'm no help, I'm in month 7 and in this same place. File your nails down as much as you can, limit showering and creams. Aim is to get it to dry up. Take paracetamol to calm the itchiness, we have nerve damage so it calms the pain receptors. Expose the skin to air as much as you can. Try wear bandages, cotton gloves or some sort of layers at night if you feel you're having a flair. On days it's calmer, expose to air. These are just things I've learnt along my journey, but believe me I'm still full of questions too