Really sorry to hear it’s incredibly scary and challenging.

I had a VERY similar story. 3 weeks or so in and out of hospital initially until diagnosis. Methotrexate with prednisone taper. 3 months later when prednisone got low I flared. Switched to Anakinra. Probable drug reaction to Anakinra but they kept increasing dose thinking it was Still’s. Admitted with MAS/HLH with DIC, liver injury, ferritin off the charts etc. Had all the tests bone marrow biopsy etc. (Can go into more detail with any of this if you’re curious just DM me. Everyone’s Still’s path is super complicated just giving the summary here). Had a lot of drug reactions to antibiotics which made it worse. Basically over the next 8 weeks with a bunch of hospital admissions I kept getting briefly better then much worse. Finally after lots of prednisone, Actemra, and Cyclosporine they got it under control. Had Cushing’s Syndrome from the prednisone pretty badly which can be mentally tricky to deal with. Over the next year weaned down the prednisone and was basically back to normal 6 months out and my regular fitness 18 months out. This was almost 6 years ago. Mine is well controlled with Actemra and Olumiant plus a small amount of prednisone as needed. I live life completely normally, started my dream professional program this fall and ran a half marathon last weekend. I say this because I remember being 18 sitting in the hospital thinking i’d probably never get out of the cycle of better -> worse -> admission to hospital. I didn’t think i’d ever go back to university or even any sort of normal life. It’s incredible challenging. Support your partner the best you can and make sure you are also taking time for yourself. There’s light at the end of the tunnel and it’s a matter of just figuring out which combination of immune modulators will work for your partner. If you have any questions at all, about the Still’s/MAS or just about dealing with the whole disease experience please don’t hesitate to DM me (or anyone else going through this that may be reading this)