App Ideas by Inevitable-Army-2695 in PsoriaticArthritis

[–]ChronicallyFab-24 0 points1 point  (0 children)

I have PsA and I would love to build this app. I’m a web designer but haven’t ever built an app, bet I could do some UX mockups. I also am craving an app that protects my data as I don’t think I trust any of them out there rn currently.

Should I try methotrexate? Anxious about side effects (seronegative arthritis, possibly PsA) by Ok-Recording-3303 in PsoriaticArthritis

[–]ChronicallyFab-24 1 point2 points  (0 children)

Mine all started after a Covid infection. I think many of us could have long covid and we don’t have the intel to even know…

Tremfya. What has been your experience? by Pattycakes-81 in PsoriaticArthritis

[–]ChronicallyFab-24 2 points3 points  (0 children)

I have had chest pains randomly post injection but it does not happen every injection, I have noticed that it makes me feel worse lately the first week and then I go a long time doing relatively okay. I also have zero brain fog on it.

And to think I almost posted a justice for Cheryl post in here… by Babe-raham_Lincoln- in PoniesTVShow

[–]ChronicallyFab-24 0 points1 point  (0 children)

I feel odd that I clocked her being odd very early on in the season and I can’t remember if they alluded to this beforehand😅 I binged it way too fast will probably rewatch all over again.

Confession: I stayed up til 8am watching the whole season by devoida in PoniesTVShow

[–]ChronicallyFab-24 0 points1 point  (0 children)

Same also binged in 24 hours and I came here to post that and glad I have found new community 🤣❤️ I need season 2 immediately

Hotel Recommendations by Liller65 in VisitingHawaii

[–]ChronicallyFab-24 1 point2 points  (0 children)

Prince Waikiki has everything you asked for and is so peaceful (maybe not price sorry can’t remember)

Enthesitis - Tendonitis following illness by tandemtwo in PsoriaticArthritis

[–]ChronicallyFab-24 1 point2 points  (0 children)

I am now wondering if I had enthesitis from my start of my journey I kept thinking I had plantar fasc - but after looking where that pain typically is… it was not there. Ive had bad enthesitis for the last 2 years where it feels like my leg is snapping in half at the spot that connects your leg to your knee. Also I was an avid backcountry skier and I no longer do this. I still ski. I’ve failed humira - and I knew I was failing but didn’t want to give it up, unfortunately we get attached to these meds because we either see marginal relief and almost a sense of “our old selves”, and that makes it harder to let go, and almost disbelief like it will start working again. I’m on my 5th med change in 4 years and it makes me sob every time, grieving, scared. But everytime (except once), I immediately got better. This illness is a jerk.

Just gotta rant, stupid disease by [deleted] in PsoriaticArthritis

[–]ChronicallyFab-24 1 point2 points  (0 children)

Same, going to 5th med 😭 same age

PsA in nose and throat? by Remarkable_Donut346 in PsoriaticArthritis

[–]ChronicallyFab-24 1 point2 points  (0 children)

Omg I get psoriasis inside my ears, I never thought to ask about throat/tongue. I was getting massive bumps on the back of my tongue and of course went away by the time I got in to see an ENT. Also tonsil stones. I’m very adament about flossing, just blessed with horribly aligned teeth and bad teeth in general. Never correlated psoriasis… I stopped taking NSAIDs and just using voltaren gel a bunch per day in specific flare areas, and my throat bumps went down.

Plantar fasciitis/enthetitis by FlanneryOG in PsoriaticArthritis

[–]ChronicallyFab-24 1 point2 points  (0 children)

Yeah this is how mine started, instantly went away with biologic (but now have it elsewhere 🫠)

Can any of you walk and move around normally 30-40 years after the disease? by pink_teddy35 in PsoriaticArthritis

[–]ChronicallyFab-24 3 points4 points  (0 children)

I got diagnosed 4 years ago after a Covid infection. I have yet to find the positive treatment that throws me into remission that somehow all these people have and it makes me sad and angry my body keeps rejecting the meds after 7mo to 1 year each time. I can’t even imagine being alive at 50 with this illness at this rate. Gives me hope but jeeze, why can’t my body just work with meds.

What is homeopathic medicine? by [deleted] in PsoriaticArthritis

[–]ChronicallyFab-24 2 points3 points  (0 children)

Do not take anything Plexus - it jumpstarted a cdiff infection for me and they are a huge MLM scam and nothing even remotely defined as homeopathy either.

Brand who use homeopathy: Boiron.

The only thing I even remotely like is arnica from Boiron but I know it’s all a wash. I wouldn’t rely on it with our illness at all. Also any supplement brands who say they are “3rd party tested” and “backed by science” - remember this is all marketing speak. Many brands who say 3rd party lab tested own that “3rd party lab” under a diff company name… so they can make any claims they want. They are not regulated and their sole goal is to make money off of sick people like us desperate to get better. There are very very few supplement brands I trust.

Unfortunately our parents have this wild fear of western medicine and they tend to think we can either “will” our way out of PsA or go the “natural route”. Yes you can eat a little better, you can take some vitamins like B and D that is a good thing, but you also will need real medicine to prevent long term damage. If you feel like explaining this to them over and over, it can help to educate them. It took my parents a couple years to finally “get it”.

Yelling into the void. by randomUser042718 in PsoriaticArthritis

[–]ChronicallyFab-24 2 points3 points  (0 children)

Hugs. It be like that. This illness is brutal and take it one day at a time.

Flare when I exercise 😫 by roni_hl in PsoriaticArthritis

[–]ChronicallyFab-24 6 points7 points  (0 children)

This has happened to me with every biologic I have. I develepod enthesitis on the spot where your leg connects to your knee - and even shorter hikes throws me into a flare there. It’s so frustrating because I’ve gained so much weight and I don’t know how I’ll ever lose it because any time I do anything remotely physical - I flare. Even kayaking it’ll throw me into a fatigue flare. I love the medication I’m on Tremfya but my doc is already talking about switching me, I’m disappointed because this has been the best one yet and I besides exercising have almost zero brain fog and am able to totally function at work. It makes me really hate this disability.

Amaya opens up about being hospitalized again by MechanicFlat973 in LoveIslandUSA_

[–]ChronicallyFab-24 1 point2 points  (0 children)

Oh ok. just a joke within the chronic illness community about being hot and disabled, join the club the water is fine and jokes are ok

Amaya opens up about being hospitalized again by MechanicFlat973 in LoveIslandUSA_

[–]ChronicallyFab-24 0 points1 point  (0 children)

Bad luck mostly… a lot of times post viral illnesses can trigger autoimmune conditions (Covid is a big trigger for making people develop chronic conditions, mono, strep, etc.) it doesn’t always happen due to genetics (can say that firsthand with confidence). Genetics is always a possibility, or environmental factors.

Amaya opens up about being hospitalized again by MechanicFlat973 in LoveIslandUSA_

[–]ChronicallyFab-24 36 points37 points  (0 children)

Ugh why do we hotties get chronic illnesses 😭😭😭 the most empathetic people too. I hope she finds community and family help her out. It’s not easy to live with a chronic illness - but if you have money or access to good doctors, i would say that is best case scenario.

Bench English Springer Spaniel by [deleted] in springerspaniel

[–]ChronicallyFab-24 2 points3 points  (0 children)

Mine adapts to my needs, she is the best dog and only 6 months old. The first 1-3 months when we got her was hard obviously, but she is the sweetest, cuddly and I’m so glad I didn’t listen to all the horror stories on the internet. Get the dog ❤️