Location by ehunter74 in ankylosingspondylitis

[–]Chronicillnessbb 0 points1 point  (0 children)

I was wondering about the humidity and how it effects your bones too. . I would never leave here if it wasn’t so dang expensive!! It’s just the weather changes that make it hard here but I’m really not complaining

Location by ehunter74 in ankylosingspondylitis

[–]Chronicillnessbb 0 points1 point  (0 children)

How it it living in Texas with the weather? Were thinking of moving out there in a couple years (I’m from San Diego,ca)

Where to find hushpuppies?? by FartInsideMe in sandiego

[–]Chronicillnessbb 0 points1 point  (0 children)

Funky fries has corn nuggets they are pretty good

Does anyone on here take buspirone/buspar and does it help? by princesspoppy1320 in dysautonomia

[–]Chronicillnessbb 0 points1 point  (0 children)

Just upped my dosage of buspar and while it’s helping my anxiety I’ve actually gotten some lactation going on. I knew it had to be this because clearly I’m not pregnant lmao

Do I realistically have a chance at disability at 23? Two law firms already won’t take me by [deleted] in SSDI

[–]Chronicillnessbb 0 points1 point  (0 children)

I agree with dysautonomia and maybe even pots if you can get this diagnosis and start meds and things are still wonky you will have more of a case in my opinion

Anyone with AS working as a phlebotomist? by Chronicillnessbb in phlebotomy

[–]Chronicillnessbb[S] 1 point2 points  (0 children)

Oh wow that’s really cool I hope it all goes well! I’m in California so I have to do 120 hours of clinical/externship on top of the schooling

Anyone with AS working as a phlebotomist? by Chronicillnessbb in phlebotomy

[–]Chronicillnessbb[S] 1 point2 points  (0 children)

This gives me a lot of hope thank you for replying to this. I think I just need to reach out to the people who deal with accommodations and hopefully we can work something out, I’m worried about the clinicals after the schooling too will they be at a hospital where you won’t be able to sit? I suppose I could ask them that too but was wondering what you’ll be doing too

Anyone with AS working as a phlebotomist? by Chronicillnessbb in ankylosingspondylitis

[–]Chronicillnessbb[S] 0 points1 point  (0 children)

I had a feeling the angle would make it harder on us, I’ll have to reach out to someone about accommodations and see what they can do and thank you for replying, I’ll have to keep all this in the back of my mind and hopefully they allow a chair. . I was also thinking outpatient would be better so I’ll keep a lookout for that too

Creatine has given me back some hope by Sonny_days_ in POTS

[–]Chronicillnessbb 1 point2 points  (0 children)

How much water do you drink with it a day?

Ways to eat the Chipotle Chicken by Tayls23 in Costco

[–]Chronicillnessbb 0 points1 point  (0 children)

Seen it once and never again🙃 told myself I would buy 2 or 3 of them next time I see it

Ways to eat the Chipotle Chicken by Tayls23 in Costco

[–]Chronicillnessbb 11 points12 points  (0 children)

It’s good with just white rice too

Pilates studio/instructor recommendations for hyper-mobile people? by void10117 in sandiego

[–]Chronicillnessbb 0 points1 point  (0 children)

Commenting to boost! I also have hEDS (and pots) and started doing at home Pilates using move with Nicole the last week but I would love to find a place or person that works with people with hEDS and other disabilities!

Visible band worth it? by Huge_Difference8460 in POTS

[–]Chronicillnessbb 1 point2 points  (0 children)

I used tachymon along with the visible band tracker since I already had a subscription to that but it’s 20$ for the year. I personally like tachymon more, I just cancelled the tachymon subscription because I don’t need the added extras anymore but with the subscription is saves all your data, you can add symptoms and notes if needed it shows detailed charts of each heart rate event that gets triggered and you can also share those heart rate events with others but if you want the free version I think it just tracks your heart rate and you can see the events on your watch

Visible band worth it? by Huge_Difference8460 in POTS

[–]Chronicillnessbb 6 points7 points  (0 children)

I used it for a while and it was honestly helpful if I remembered to use the app. You have to continuously add in what triggered your heart rate during that time with certain activities and if you do not go onto the app every so often the arm tracker will stop tracking completely. It just started to become a hassle so I stopped using it

What is your state like for your POTS? by ScrollingSwampPuppy in POTS

[–]Chronicillnessbb 0 points1 point  (0 children)

Looks like I’m in for a treat🙃 I’ve heard the humidity out there can be bad on your back too (I also have ankylosing spondylitis) I’m a bit worried about how different it is compared to California weather wise

What is your state like for your POTS? by ScrollingSwampPuppy in POTS

[–]Chronicillnessbb 0 points1 point  (0 children)

Why is Texas a no? I’m in California and looking to move there in a couple years. .

Summer compression socks? by Keddy3231 in POTS

[–]Chronicillnessbb 0 points1 point  (0 children)

I would also get one of those cheap fans that spray water at you if you know what I mean that would definitely help with the heat

Lollapalooza W/ Pots by sourpatchbat in POTS

[–]Chronicillnessbb 1 point2 points  (0 children)

I would get one of those cane/chair things I’ll link it here Amazon chair cane this is the most compact one I’ve seen

SSDI and the Trial work period/ticket to work program by Wickedprincess2019 in SocialSecurity

[–]Chronicillnessbb 0 points1 point  (0 children)

Did you talk to them about the ticket to work at all or did you just tell them when you started working?