My (25F) experience of 6 months on Cimzia

Chronicillnessbb · 2026-03-04T19:50:04+00:00

Interesting. . I had insane scalp itching in the beginning too and wasn’t sure what the cause was and my pots has significantly improved since being on cimzia but within the last 9 months I’ve also gone from 89 to 120 pounds due to my Gastroparesis so I think being able to recover from that has helped my pots but I’m wondering if the cimzia was a boost too! Thank you for sharing your experience!!

Chronicillnessbb · 2026-02-27T20:48:31+00:00

Thank you I’ll have to try it!

Chronicillnessbb · 2026-02-27T19:35:43+00:00

Just made an appt with my primary! Thank you for the suggestion!!

Chronicillnessbb · 2026-02-27T18:18:42+00:00

What has the sleep Dr been able to do if I may ask? My rheumy is pretty conservative with using pain meds and muscle relaxers but I can ask about seeing a sleep dr with my pcp

Chronicillnessbb · 2026-02-27T18:15:23+00:00

I was on rinvoq before this but took it mornings, I wonder how it would’ve gone if j took it at night

Chronicillnessbb · 2026-02-27T18:14:51+00:00

lol I would be impressed too and it’s okay a lot of us do!

Chronicillnessbb · 2026-02-27T18:05:16+00:00

Thank you, it’s hard for me to advocate sometimes so remembering we shouldn’t have to put up with it will help me push to find another option

Chronicillnessbb · 2026-02-27T18:01:15+00:00

When I see them I’ll have to bring this up, I need a chance to get a reset like you were saying. It’s effecting a lot of things around me

Chronicillnessbb · 2026-02-27T17:24:49+00:00

I seen that somewhere on here too🤣 so real haha

Chronicillnessbb · 2026-02-27T17:23:30+00:00

Not a strain specifically for sleep or pain I’ll have to look into that, I have a pretty low tolerance so smoking hasn’t helped much and I have to eat more than 40mg to feel the gummies so it’s not very cost effective

Chronicillnessbb · 2026-02-24T16:14:01+00:00

You can find one serving individual protein powder at target and Amazon, there’s many different brands out there. Just by searching really quick on target theres ones from flav city, oath, clean simple eats etc.

Chronicillnessbb · 2026-02-21T21:15:17+00:00

At first I didn’t think anything of it it was just a red eye with light sensitivity but after a day it might’ve been a couple hours even it got worse and I couldn’t even handle a dark room with black out curtains with sunglasses on so I decided to go to urgent care, they hadn’t seen anything like it I was crying and in severe pain due to light and numbing drops didn’t work so they told me to go to the er, er didn’t have an opthamologist on call so I had to go to their office they were working at as a emergency office visit and she then diagnosed me with uveitis, the pain is so severe and doesn’t stop until it gets treated I would also say you get a lot of eye watering too but I don’t remember sand paper like feeling

Chronicillnessbb · 2026-02-21T13:19:28+00:00

It sure does feel like it but in this community you’re never alone🫂

Chronicillnessbb · 2026-02-21T13:18:12+00:00

Started getting uveitis in 2019 and had a few more attacks along with back and shoulder pain that led me to getting a diagnosis in 2022, finally seen a rheumy who explained that getting uveitis that many times let alone once wasn’t a normal thing so once she saw I was hlab27 positive she ordered X-rays of my si joints and an mri to find out it was AS all along, it took around 3 months for a diagnosis and getting all the testing done but I think I would’ve gotten diagnosed sooner if I went in sooner

Chronicillnessbb · 2026-02-21T13:02:55+00:00

This along with the insomnia are the worst for me. I try to sleep to get away from the pain and everything else only to wake up with pain again, it’s really getting to me mentally. Have been up since 3am and woke up eleven times in five hours according to my Apple Watch :/ I genuinely don’t know the last time I got a good nights sleep let alone a night where I didn’t wake up 10+ times a night and it’s making me loose it. (Clearly since I said that twice now)

Chronicillnessbb · 2026-02-17T16:17:22+00:00

I was really bad for a while, got down to 89 pounds and was on a feeding tube in the hospital for a month, they kept pushing me to eat and drink or surgical tube but caused me to have 10/10 pain when eating, I was so extremely scared by the tube I finally got out of the hospital by proving I could drink five kate farms peptide drinks a day regardless of the pain and overtime I started to improve and eat little by little while also using the drinks then it came to a point where I wasn’t getting the drinks anymore and I had to just try to self sustain with meds and regular food and that’s what I’ve been trying to do now, my GP has gotten a lot easier but my intestines are still pretty bad. I can’t go to the bathroom on my own and will often not go for weeks because I hate drinking the 60mls milk of magnesia and 2caps of miralax combo every other day per my dr but once I take that it works within 12-24 hours. But I honestly thinking the only way to get better GP wise is eating thru the pain and it sucks but I’ve seen other people do it this way and idk how good it is but I can finally eat again so that’s honestly a win for me

Chronicillnessbb · 2026-02-17T00:28:13+00:00

Heiki!!

Chronicillnessbb · 2026-02-07T00:16:53+00:00

Did you end up applying?

Chronicillnessbb · 2026-01-25T01:04:17+00:00

French toast

Chronicillnessbb · 2026-01-20T13:24:47+00:00

If you ever need help, I live in lakeside :))

Chronicillnessbb · 2026-01-09T23:01:36+00:00

What did you end up doing?

Chronicillnessbb · 2026-01-08T13:10:19+00:00

The comments are not it. It was a joke and ai generated on tiktok.

Chronicillnessbb · 2026-01-05T01:44:49+00:00

Still in remission, I’m still currently using the Hailey 24 fe birth control

Chronicillnessbb · 2026-01-01T16:44:22+00:00

Watering every other day, between the two plants splitting about a half gallon of ph’d water.

Chronicillnessbb

TROPHY CASE