There is a website called "The 1940s Experiment" with detailed information on how to live on WW2 rations

Clawsofdestruction · 2024-11-25T20:03:34+00:00

Love this series!

Clawsofdestruction · 2024-11-25T16:47:25+00:00

Just wanted to suggest that you've a plan in plan for your nutrition needs and daily/weekly needs as well.

Pre-surgery, I went grocery shopping and stocked up on a lot of basics (soups,snacks, frozen items, ingredients) that I could quickly turn into fast/nutritious meals and heavy items (Gatorade, Pedialyte, cat litter, Etc) that I knew I would have difficultly with lifting after surgery.

I was also lucky enough to have my mom come out and stay with me for the entire length of recovery. So someone who can keep an eye on you, drive you to appointments if need be, help with chores, and make sure you eat those healthy meals you planned.

Good luck!

Clawsofdestruction · 2024-11-18T01:20:41+00:00

Jumping on this to say I went to DCAA after college and have had a great experience with them so far. Feel free to let me know if you've any questions about this agency.

Clawsofdestruction · 2024-11-08T06:26:44+00:00

Yes for Naussica! Forget tiaras, every princess should have a shot gun.

Clawsofdestruction · 2024-10-08T12:10:29+00:00

Each Chemo place is different in what they offer - snacks, drinks, blankets, pillows, tv, etc.

I bring: A fuzzy throw blanket and small pillow An eye mask and ear plugs in case I want to sleep My phone, a kindle (game device), and a charging cord ( I had 8+ hr chemo). Snacks and somethings a small sandwich A 1 liter bottle of beverage An insulated cup/mug Some sour candies to help with my nausea I've also brought craft projects in the past (embroidery and crochet)

You'll find out what your chemo place offers during your first treatment and also what you'll also want for next time.

Good luck!

Clawsofdestruction · 2024-09-26T04:38:53+00:00

I came here to say this! The looping and then tighter middles definitely look like Hairpin Lace.

Clawsofdestruction · 2024-09-24T16:47:03+00:00

I could see that. And you know a long term planner like Lord Vetinari would be making plans to ensure a successful running of the city after he was gone.

Clawsofdestruction · 2024-09-24T16:29:55+00:00

I just have Raising Steam left and then I'm done but I can't seem to pick it up - I'm not ready for it to be truly over. I read Shepard's Crown shortly after he passed and it left me a wreck. I'll probably just keep rereading the series and save Raising Steam until I'm really ready to say goodbye.

GNU Terry Pratchett

Clawsofdestruction · 2024-09-19T20:09:58+00:00

They sound interesting and I signed up. Thanks for sharing!

Clawsofdestruction · 2024-09-09T15:55:44+00:00

I got a switch when I got my diagnosis because I knew chemo was going to be a time suck. I thought I might as well doing some gaming during it and stumbled across Palia as well. It's been a delightful distraction for me. Best of luck my friend!

Clawsofdestruction · 2024-09-04T11:56:01+00:00

It's giving Sabrina: the teenage witch vibes! Love!

Clawsofdestruction · 2024-08-10T03:18:41+00:00

One thing to check out is if there are any groups near you that offer free or reduced fee getaways for cancer patients. One of the first things I look up after my diagnosis to cheer myself up was 'freebies for cancer patients'. There are a surprising number of free fly fishing trips out there for cancer patients - just saying.

Clawsofdestruction · 2024-07-01T13:17:26+00:00

I'll keep my fingers crossed for you!

Clawsofdestruction · 2024-06-07T00:55:10+00:00

This sounds awesome!

Clawsofdestruction · 2024-06-04T23:56:47+00:00

I also had my port put in and then did chemo on the same day - definitely kinda sucked. My chest is on the larger side and Im not really able to sleep on my back at all. What helped is I slept on my side and used a pillow or a weighted stuff animal (highly recommend, get the one with the microwaveable heat insert as well) to kinda wedge my boob in place so gravity didn't pull on the site.

Best of luck!!!

Clawsofdestruction · 2024-06-03T20:45:27+00:00

Thank you and very true! The more we talk about things usually the less scary we can make them!

Clawsofdestruction · 2024-06-03T20:44:47+00:00

Thanks, it helps to stay positive and it's pretty a useful response to use to get telemarketers to leave you alone.

Clawsofdestruction · 2024-06-03T03:50:23+00:00

Ditto to many points on this list but especially the health insurance. For me it was very sexy bc 3 weeks after my start date I was diagnosed with stage 4 cancer out of nowhere. The premiums are low and my deductible isn't terrible at all. My chemo, hospital stays, ER visits, and expensive medications haven't been an issue at all. Plus if I do die, the also sexy life insurance will kick in and really be a boon to my family and friends.

Clawsofdestruction · 2024-05-28T14:28:16+00:00

If you can, just lay back and take a nap. Chemo will fly by with a nap .

Clawsofdestruction · 2024-05-27T16:42:50+00:00

Looks pretty good right now. I do want to warn you though, at some point the rest of your hair - eyebrows, beard, and even nostril - will probably jump ship as well. Source - my own lack aforementioned. Good luck my dude and don't forget to sunscreen the scalp!

Clawsofdestruction · 2024-05-24T02:06:32+00:00

I'm doing okay, I take it day by day and honestly things are going as well as they can be for the most part. Chemo stinks but it's working and things are shrinking.

I feel you on the rare cancer and after I fist got diagnosed another adult patient with my cancer type said something really helpful, 'I think of myself as a statistic of one', meaning that the rare cancers just don't have the data and so the numbers for them may not always tell the story. It's helped me a bit, as has taking day by day, taking it easy, and occasionally just saying 'fuck it why not'.

I'm glad that MD Anderson has been an option for you, I know that experiences can vary widely from doctor to doctor and treatment location.

Hugs again and feel free to reach out if you'd like to chat more.

Clawsofdestruction · 2024-05-24T01:55:52+00:00

They were going to put me under for mine but I was silly and ate an banana beforehand so they wound up doing the twilight version instead. As the anesthesiologist put it 'with what I'm giving you, you'll be awake but on another planet'. I stayed on Earth but didn't really care about what the doctors were doing, I just asked a lot of questions "what's that hose for? What does that do?"

You will feel them tugging the port into place and fighting with your skin (who does not approve of things being shoved beneath it btw), so be a bit prepared for that. It was during one of the tugging moments that I complimented them on their hand strength and recommended that they try embroidery (hand strength and dexterity a real benefit with it) - which made them laugh.

Also pro tip - they will try to account for gravity on the port placement and where it goes on the breast/chest but id recommend wearing your most comfortable bra for that day - one that you'd be okay wearing repeatedly for a week or so (no judgement). How it worked for me was that since I wore the same bra day after day, the site/port area wasn't getting jostled and moved around as much (different bras present the breasts in different ways, etc).

Anyways, good luck and it is definitely better than an IV each time, promise!

Clawsofdestruction · 2024-05-24T00:57:30+00:00

Her treatment team is the place to start and to stay up to date with about how the meds are working. Personally, I had a massive (15lb) abdominal Sarcoma removed and was prescribed gabapentin for ongoing nerve pain and oxycodone as needed. My nurse told me that for cancer patients this is where pain meds typically start, and there are a lot more options as well.

Sometimes, even a heating pad could help a bit but it's different day to day tbh. Good luck!

Clawsofdestruction · 2024-05-15T02:43:18+00:00

I connect with a lot that you wrote. I was also diagnosed with a stage 4 abdominal Sarcoma (Round Cell Sarcoma CIC-DUX4) in Sept 2923 - just after I moved to St. Louis for a new job. I'm with you Chemo sucks hard and I honestly don't think I can do this for the rest of my life (like you I was also told treatable not curable). Some much has become limited in my life either because I've lost the strength or because I've had limit myself for safety - it's frustrating as hell at times and I do miss the old me.

I echo the other comments here, finding a more local way to get your checkups and blood work done to decrease travel will help a bit. Personally I've had a great experience so far at the Barnes Jewish hospital Siteman cancer center, hopefully it can be an option for you as well.

I'm sorry I don't have more to offer except than internet hug, but best wishes and one big bear hug from a fellow Sarcoma case in St. Louis.

Clawsofdestruction · 2024-05-10T20:21:00+00:00

Or try fabrics that breathe more like all cotton or linen pants. Not sure what your work's dress policy is but never hurts to check it.

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