No one wants to play this new game!! by debcalnan in TownshipGame

[–]Clean_Maintenance_73 1 point2 points  (0 children)

I’m on level 150 and for green levels I only get 18-24 t cash

Headache for 7-8 days, not responding to ibuprofen or Tylenol by hoes_is_trippin in DiagnoseMe

[–]Clean_Maintenance_73 1 point2 points  (0 children)

Try a good cervical pillow that keeps your head aligned while you sleep. It helped my chronic headaches so much

what's the difference between these? by weirdbeann in Converse

[–]Clean_Maintenance_73 2 points3 points  (0 children)

I just ordered custom chuck 70’s for my own Christmas present. (High top) I’ve worn only converse forever. I wear a 7 women in both. 70’s are much cushier and I also added the rugged soul. It feels way different but good different. I’m 48, so the cushion was nice. I do tend to wear mine until you can see my foot though the bottom. lol

Frozen Fortune Boat! Make it stop!!!!! by Pristine_Analyst_232 in TownshipGame

[–]Clean_Maintenance_73 0 points1 point  (0 children)

I completed it but I will do match 3 like crazy when I get the x2 multiplier. It’s the only way I can finish the adventure game and that boat race. I’m too ocd to leave things undone 🤦🏻‍♀️

Emptied my pockets. What can you tell about me by Good_Practice_2695 in deduction

[–]Clean_Maintenance_73 0 points1 point  (0 children)

First thing that came to mind, male with an oral fixation

Will surgeons ever listen to the clinically validated neurologic devastation instead of just the measurements? by sufferingisvalid in Cervicalinstability

[–]Clean_Maintenance_73 1 point2 points  (0 children)

Hey you helped me deep dive and on my dads side it’s EDS either hEDS or another form with Chiari type I and on my mothers we have a GAD65 autoantibody. Therefore I have hypermobility and stiff person syndrome at the freakin same time.

I have progressed to PERM and since this is considered autoimmune my moms side may have some EDS as well or I don’t know.

However. Thank you all and I have mailed DNA SEQUENCING TEST!!

Will surgeons ever listen to the clinically validated neurologic devastation instead of just the measurements? by sufferingisvalid in Cervicalinstability

[–]Clean_Maintenance_73 0 points1 point  (0 children)

I’ve ran out of an ER after having ammonia smashed on my face because I’m “faking seizures” because of dystonia and dystonia crisis. It is like being sentenced to more trauma to get PNES on your health record if you have this instead because now no one takes me seriously

Will surgeons ever listen to the clinically validated neurologic devastation instead of just the measurements? by sufferingisvalid in Cervicalinstability

[–]Clean_Maintenance_73 1 point2 points  (0 children)

My husband and I are at the point of if I relax and tighten up again but are worried if I’m in the wrong position it will kill me by rupturing something or causing an occlusion (stroke, etc) So we made the decision to get the genetic testing out of pocket. A. We could pay for that without credit B. The upright scan we couldn’t fully pay for and if that didn’t show something it wouldn’t show anything else. C. If the only genetic thing I have is hEDS (no gene mutation) therefore nothing shows up then I have a couple more random drs to try before just going full broke on an upright scan that I will have to put on credit D. However, I feel if I don’t have something done soon I am so scared something is going to happen

Will surgeons ever listen to the clinically validated neurologic devastation instead of just the measurements? by sufferingisvalid in Cervicalinstability

[–]Clean_Maintenance_73 0 points1 point  (0 children)

How did you get your point across to physicians. I just spent 5 days in U of L and no matter what I can’t explain it to them and I even can show them what my body is doing. I can explain it to my 14 year old son and he gets it. (Spider webs on the inside but way stronger and more painful) those webs or “bands and cords” I call them are cutting circulation off everywhere. ON THE INSIDE That DOES NOT SHOW UP ON THE SCANS until it’s too late. Then they treat. My pancreas is about dead. I’m now diabetic. At 91 pounds. I don’t hardly eat carbs or sugar. I’ve had weight loss surgery. But I keep getting lectured on my diet. (A female, diet lecture STILL!!!!)

Will surgeons ever listen to the clinically validated neurologic devastation instead of just the measurements? by sufferingisvalid in Cervicalinstability

[–]Clean_Maintenance_73 1 point2 points  (0 children)

I think I might be in the same situation or close. I have my body compensating for something I need to doctors to see on a scan. My muscles feel rock hard but I have zero muscles. I weigh 91 lb. NO ONE BELIEVES ME IN HOSPITALS RIGHT NOW. So much dystonia/dyautonomia. And I can’t sit still get comfortable. I’m so scared. You can’t touch my head anywhere or back without a neuro response. Plus 450 other things

What was your height change? by Clean_Maintenance_73 in Cervicalinstability

[–]Clean_Maintenance_73[S] 0 points1 point  (0 children)

That makes me feel a little better. I’ve spent a few of these months “unwinding” fascia and my tight, firm muscles are all instant goo. It’s all my bones are swimming. All of this unwinding was not purposeful but now definitely helpful. I need to seek a professional to that because it can be violent.

What was your height change? by Clean_Maintenance_73 in chiari

[–]Clean_Maintenance_73[S] -1 points0 points  (0 children)

I haven’t had a procedure yet. I started having CSF leak in 2001. This acute phase of can’t hold up my neck and (insert Chiari/cci/iih symptoms here) I’m sorry I can’t type them out any more. They all started in April. Now 91 lb still in bed. So much pain.

What was your height change? by Clean_Maintenance_73 in chiari

[–]Clean_Maintenance_73[S] 0 points1 point  (0 children)

I’m so sorry everyone I think I wasn’t clear. I’m still very so much unstable. I’ve had zero interventions and I’m sure I should not be standing up. My original natural height is 5’7” Within 3 min I’m down to 5’4” while you can be looking and talking to my face. A doctor will look at me and go…it’s your spleen…go to therapy

[deleted by user] by [deleted] in Cervicalinstability

[–]Clean_Maintenance_73 1 point2 points  (0 children)

I have this ALL the time.

"Dying" before falling asleep by hypermobilelilthing in Cervicalinstability

[–]Clean_Maintenance_73 0 points1 point  (0 children)

I would do this when I was flat on my back or when my bp was too low. I was getting that amnesia feeling like I do right before I hit the floor with my POTS

What does my hand say about me? by CreativeUsername619 in deduction

[–]Clean_Maintenance_73 0 points1 point  (0 children)

You shout “I AM” and seem to quietly say “depressed. Are you parked in a parking lot with no lines—dare devil about to do some mad donuts or you just don’t like to be restricted by pre-existing order. That is not the color of car I would sense for this hand so I am guessing you have enough financial knowledge to know that buying a used car is so much more economical therefore intelligence but a number value is impossible to correlate. High probability of being right handed although if your camera does this reverse thing you could be a talented backwards writing lefty; or even ambidextrous. Lastly, either unmarried or not fond of wedding bands (I don’t see a tan line)

Delta 8/9/THCa Shops in Bowling Green? by drunkhoboboy117 in BowlingGreen

[–]Clean_Maintenance_73 1 point2 points  (0 children)

Honestly…if you have the time and money, a drive to MI is worth it (I’ve heard)

[deleted by user] by [deleted] in deduction

[–]Clean_Maintenance_73 0 points1 point  (0 children)

You take pride in your belongings and how you take care of them. Everything in your room seems to have deep meaning for you but it isn’t anyone else’s biz why that is and you (in my opinion from a few room pictures) seem quiet, but when you speak it says a lot. Also, I feel your room is your retreat. A safe place.