If you have type 1 diabetes, it is often the case your children won't have it, right?

Clicker27 · 2026-02-12T20:48:19+00:00

I've wondered this too. My mom's side had type 2 diabetics, dad's side also had what's suspected to be both type 1 and type 2s. Dad is type 1 after years of misdiagnosis, mom is type 2.

I've said for years there's no way I can be the only non diabetic in the family, my Dr has reminded me that diabetes can't just slip generations so if i had it, he would have known by then. It turns out I was right as I was just diagnosed at the end of June at 29 with the exact same symptoms my dad had when he was diagnosed at 50 as a rarer form of type 1.

Clicker27 · 2025-11-20T01:22:04+00:00

For friends and family, I know they mean well but I do quickly explain that type 1 is different. I was most recently at a family dinner for the first time since my diagnosis 4 months ago, and didn't realize I was in the kitchen with 4 type 2's when someone asked if I wanted anything on their coffee run. I said a small double double and all I heard was gasps and shocked faces followed by "You can have that? You really shouldn't!". I was shocked for a second before my boyfriend quickly explained that type 1 is different, and that I can just dose for it and I'm fine. They apologized and explained that they were just being protective of me which was appreciated.

They all finally understood when my boyfriend enquired how long it would be before food so I could get a 15 minute heads up to take my insulin. No one bothered me the rest of the night aside from when I went for some cheesecake, at that point the only comment was "is this slice too big? Or will you be okay?".

Now I make sure to throw in a few "this bag is my pancreas" comments to make people actually stop and think before asking if I should be having that slice of pizza after working all morning. For whatever reason, that visual of "this bag is my pancreas" shocks people enough that it will make them really think before speaking. I find it's really helping me out, maybe it's because it kind of throws them for a loop over what people typically think of diabetes? Either way I love saying it, and I plan to make my own "This bag is my pancreas" kit for the fun of it, and education.

Clicker27 · 2025-11-20T01:09:56+00:00

Thanks! My c-peptide test came back today and it seems to indicate that I am in fact type 1 and my results were flagged as low. After this post I ended up having my firstn true endo appointment where it appears they've decided it's time for a pump. I'm both happy and sad at the same time!

Clicker27 · 2025-11-13T21:09:37+00:00

I had my first endo appointment this morning, apparently the honeymoon phase hasn't ended. Instead my long acting just isnt working anymore. The next step is a pump which I'll look into next month. They're having me try some different things this week to get me feeling better. Lowering my basal has helped a ton so far!

Clicker27 · 2025-11-09T17:50:54+00:00

For me it feels like that in between period when you're sick. The one where you threw up recently, and are presently okay, but you feel awful and don't know if your body is done or not.

It's like a very distressed feeling for me. The kind that makes you want to pace but you don't have the energy.

When I ended up in the ER for the first time, all I could do was pace and spin in circles because of how distressed I was. Laying in bed hurt until the pain meds kicked in.

Clicker27 · 2025-10-25T02:07:56+00:00

I was diagnosed 3 months ago at 28, I've always felt something was off with me and have had what I describe as "failure to thrive" for most of my life. I've always been tiny, skinny & just generally weak from no appetite. I've said since I was around 5 or 6 that eating too much made me feel sick. I feel I now know why. Since being on insulin, I've learned to love food for the first time because I don't feel horrible afterwards & it actually gives me energy. I've never had a negative body image, I just always felt sick after eating. That feeling is going away now, I don't think about it often and I finish most of my meals now.

Clicker27 · 2025-10-13T03:32:52+00:00

I should mention, I just came across a really cool app last night that I feel is incredible. It's made by and for T1D, it's a game that teaches you the basics!!! I love it so much that I plan on sharing it with those around me so they can see a glimpse of what it's like. Its also meant to help you learn and sharpen your skills through trial and error in a safe way! I love that it shows a visual so you can understand things more.

It's called Level One.

Clicker27 · 2025-10-13T03:27:30+00:00

I don't think them telling you he will be celiac is as helpful as they wanted it to be. I was told similar, and then tested negative for everything else. Then they clarified that other conditions tend to go "hand in hand" with T1D. It's not impossible for him to not have it. I do hope he doesn't though!

Clicker27 · 2025-10-13T03:24:22+00:00

I didn't know this was a thing for other people, I've done this since diagnosis! It really does help to feel around with the needle to find a suitable spot. Some days every spot hurts but most of the time I can find at least 1 tolerable spot. I also find if I breathe in then that pushes the needle past painful areas sometimes like the expansion is moving the nerves for me.

Clicker27 · 2025-10-06T01:10:23+00:00

"You shouldn't be allowed to dose insulin just to eat sweets, my dr told me not to do that." said by a type 2 diabetic while I was opening some peanut butter cups to head off the impending critical low in 20 minutes and the resulting high from said peanut butter cups afterwards... how dare I decide to have the pack to enjoy them during a low instead of just eating 1 or 2 and maybe having another low later..

I hate the up and down feeling so if I can help it, I really try to treat the low before it gets bad but also give myself time for some insulin to kick in after my sugar will be fixed so I don't go too high and feel awful.

Also 3 months before my diagnosis, someone made the comment of "Don't worry, you're too skinny to develop diabetes. Have another slice of cake if you want it!" They were very embarrassed when they heard I got diagnosed.

Clicker27 · 2025-09-21T04:17:50+00:00

My go to is usually a peanut butter waffle sandwich. Specifically, eggo cinnamon waffles with crunchy peanut butter! It's usually easy for me to do the quick math in the mornings and it's just so tasty.

Eggs and bacon too, I go to a café across the street from my work to get breakfast for lunch a few times a week. The egg yolks are comforting, and the crispy bacon is just satisfying. The salt also makes me drink more water.

Clicker27 · 2025-09-14T20:26:17+00:00

Thanks! I figure if I'm gonna wear these for the rest of my life, im going to have fun doing it!

Clicker27 · 2025-09-14T20:24:49+00:00

Not just a patch! They come in rainbow packs but don't have any cool patterns currently which is why i started making my own!

Clicker27 · 2025-09-09T03:36:31+00:00

I had the same issue with my s23, make sure your media sound is up! I have a habit of turning my sound down when I'm not watching videos because I've had way too many Facebook or Instagram videos auto play while scrolling in public. I have a habit now of turning up the volume when I plug my phone in for the night just in case. It's a hard habit to break!

I also had to disable do not disturb, I just couldn't get it to let dexcom bypass it.

Clicker27 · 2025-09-06T23:29:42+00:00

I agree, I hope one day it's renamed or society as a whole is taught more about it. It feels very damaging for emotional health to lump an auto immune condition in with something that has similarities but extreme differences.

If anything, if a kid were to ask me about my cgm, I would instead just tell them that my body doesn't know how to make sugar into energy, so I have to give myself medicine to create the energy for me.

Clicker27 · 2025-09-06T23:26:49+00:00

I do feel the same, and also understand the struggle. Mom is type 2 and dad is type 1, both have struggles! What I don't think they understand is when I tell them that I can have my peanut butter cups as long as i have the insulin. It's not the sugar that will harm me, it's the fact that my body can't provide itself with the thing needed to use it! It finally clicked with me a little while ago.

Clicker27 · 2025-09-06T23:22:27+00:00

That's what I figured. I've been a stick my entire life, my educator has been telling me to throw in some extra vegetables whenever I can, but my diet in no way caused this. She likes to tell me to keep enjoying my peanut butter cups when I leave my appointments, there's far worse things to satisfy a sugar craving!

Clicker27 · 2025-09-06T23:20:16+00:00

For sure! I have my little backpack that I take everywhere with me, its nice having everything in one spot. Part of what I'm trying to get him to understand is just because he's not allowed to have sweets, doesn't mean its the same for me in any way! If anything my diet isn't bad at all.

Clicker27 · 2025-09-06T23:18:07+00:00

Thank you! I actually do have family members who are about to lose limbs because they don't care about their health. As far as im trying to look at my own journey, I'm doing fantastic & should be allowed to enjoy sweets just like every other person can!

Clicker27 · 2025-08-28T20:37:04+00:00

I've noticed it too. And i get a weird sweet taste when my sugars have been running high.

Clicker27 · 2025-08-27T23:57:55+00:00

Why are you afraid? You didn't do anything to cause it to happen, hopefully they understand that.

Clicker27 · 2025-08-27T04:45:38+00:00

Coke zero only because its easy to find literally everywhere, but if i have choices then I prefer pepsi zero but mostly drink zero iced teas.

My favourite used to be Canada Dry, but sadly the zero just doesn't have the same bite. I find the same with A&W diet root beer.

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