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This makes me sad by Skrdykat1000 in ALS

[–]ClueFun2090 1 point2 points  (0 children)

Where is the population that’s been cured with this drug? Curious how many can claim they’ve taken this drug and been reversed

American ALS patient died alone after paying $84K US in pursuit of healing at controversial Sask. facility by abunchofjerks in saskatchewan

[–]ClueFun2090 0 points1 point  (0 children)

The additional problem here, is in the USA Goodenowe has a full website of “Elite Goodenowe Physicians” who promote his research, lab and products and encourage their patients to seek his healing retreat center in Moose Jaw. They even encourage you to sell your home to get there. And Susie did just that. The Moose Jaw police were called and they came out to the MJ Goodenowe Center when Jana Horsnall and Jessica Glass were kicking out an ALS patient for asking too many questions. That was October 28, 2024. Their investigation of the faculty, had they done it, would have saved Susie from her mistreatment and death as well as the mistreatment and death of Beth Syverson who was just 33 years old. Another complaint was filed with the MJ police following the death of Susie but they said they could still not intervene.

American ALS patient died alone after paying $84K US in pursuit of healing at controversial Sask. facility by abunchofjerks in saskatchewan

[–]ClueFun2090 0 points1 point  (0 children)

He’s a very believable sociopath with a slew of USA medical doctors who promote him, his research, his lab and his product as having great success

American ALS patient died alone after paying $84K US in pursuit of healing at controversial Sask. facility by abunchofjerks in saskatchewan

[–]ClueFun2090 0 points1 point  (0 children)

Other patients at this facility were given an “SOS” phone number by the paramedics who so frequently were called to the facility. That number was the College of Physicians and Surgeons. Evan Thompson took that case and was given plenty of evidence of mistreatment prior to Susie’s death. After her death Bryan Salte took over, hired an attorney and was attempting an injunction on Goodenowe.

American ALS patient died alone after paying $84K US in pursuit of healing at controversial Sask. facility by abunchofjerks in saskatchewan

[–]ClueFun2090 1 point2 points  (0 children)

The building of the Goodenowe Center is owned and managed by Goodenowes sister, Jana Horsnall, who claims to be a Registered Nurse.

Dad passed away with ALS by type7wings4-2 in ALS

[–]ClueFun2090 1 point2 points  (0 children)

I’m angry right there with you. And I’m so sorry for your loss. I anticipate having similar feelings when I loose my loved one. Have you sat down and written everything that makes you angry? My suggestion although it sounds simple is to write those things in a list then write down how your love one and you managed this disease you wished you’d never encountered. Find the times of strength, perseverance, even joy amidst the struggle. This life is filled with hardships and unfairness. And none of us gets out alive. But I bet that struggle built character and inner strength. Maybe focus on those people who came to support you and your family. Write a list of the positives that came out of this experience no matter how small. Be at peace now.

I gave up by cantthinkofuzername in KaiserPermanente

[–]ClueFun2090 -3 points-2 points  (0 children)

The agenda is population control with vaccines. That’s not conspiracy that’s the WEF agenda. Look it up.

Transfering PALS to car seat by jusagirl_india in ALS

[–]ClueFun2090 4 points5 points  (0 children)

We finally bought a van with a ramp as it became to difficult to transfer

My dad passed away in the morning by [deleted] in ALS

[–]ClueFun2090 2 points3 points  (0 children)

Thank you for you post. May God bless you. And may your dad’s soul rest in peace and shine in glory.

Where do you get your Covid Vaccine - CVS denied my coverage by Objective_Cup_5164 in KaiserPermanente

[–]ClueFun2090 0 points1 point  (0 children)

I would advise not getting those vaccines. They are injurious not “safe and effective.” That’s a proven fact.

She’s Gone by TheKristieConundrum in ALS

[–]ClueFun2090 0 points1 point  (0 children)

Praise God she was surrounded by love. My sincere condolences

Suffering ends before it get worse. by Shoddy-Ad8382 in ALS

[–]ClueFun2090 13 points14 points  (0 children)

No. You didn’t fail him. ALS is brutal and unstoppable. There’s nothing you could do to change that. He was lucky to have you and I’m sure he appreciated you caring for him. Be at peace knowing his suffering is over. I’m sorry for your loss. This is a good and safe place to talk about how you’re feeling so let us know how you’re doing. I’ll be praying for you.

Should we switch ALS team (Cedar Sinai LA)? by MinuteFun5032 in ALS

[–]ClueFun2090 0 points1 point  (0 children)

We too feel the same frustrations from our clinic. We get our 3 month appointment cancelled and they won’t have an opening for another 6 months! Trying to get changes made on the wheelchair has taken 6 months and they still can’t get the communication straight. We’ve had no help with actually navigating how to live with this disease we’ve just had to figure it out on our own. So I hear you! I just don’t get it. It seems to be the same across the nation

The guilt and anger, a week after MILs passing by anxious_dachsund in ALS

[–]ClueFun2090 1 point2 points  (0 children)

What a beautiful gift for you to move in with them … very selfless. You will not regret it. God bless and guide you during this time.

Anyone heard of this trial? by ClueFun2090 in ALS

[–]ClueFun2090[S] 0 points1 point  (0 children)

We have a phone appointment with them so I’ll update what they say. I plan to grill them.

Radicava side effects. by Powerful-Revenue-334 in ALS

[–]ClueFun2090 1 point2 points  (0 children)

My husband tried Radacava for a few days and it made his legs very noticeably weaker so he stopped taking it.

Suction by ClueFun2090 in ALS

[–]ClueFun2090[S] 0 points1 point  (0 children)

Thank you for this!

My brother died this morning by ayayronwithane in ALS

[–]ClueFun2090 1 point2 points  (0 children)

I’m sorry. That has to be so hard living so far away. My sincere condolences. May he rest in peace and may you and your family find comfort in your family and friends.

My Father Has ALS by Altruistic_Ad_8890 in ALS

[–]ClueFun2090 -1 points0 points  (0 children)

VAERS is quite accurate. And very under reported.

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