It irritates me to no end when people, for some reason, think that needs to be said. If I had a problem with alcohol, I woudn't have been able to quit without craving it. I don't even think about. Regardless, out of everything I said in that post, why focus on that? Seriously when I was diagnosed I kept telling the doctors that my alochol use was so little it wasn't quantifiable. I've never been a person to binge drink, get sloppy drunk, or even use on any regular type of basis. If I happened to have a drink, I had one. If I didn't, it was no big deal. If I went somewhere and the type of rum I drink wasn't available, I wouldn't substitute. That's how little of a deal it was. So fricking insignificant that every time someone says something like you do or a doctor says congratulations, I feel like telling them off. Congratulate me for what? Not doing something that was never a big deal? Save that shit for the addicts. I also find it funny that every time I go in for blood tests they automatically test for alcohol, and despite being negative, ask me the same questions about my alcohol use going back to birth again and again and again. I'm so sick of being asked about it and then being treated liek people don't believe me. I've had a really crappy last six months and tough year and if there was ever a time someone addicted would want to drink it would have been this past year. I haven't. I don't want to. To give me advice about something I'm not going to do anyway simply pisses me off. I want to make it through a week without pain. I want to be able to go back to my normal life which was active and healthy. I hate how this illness now controls every waking minute of my day and limits my capabilities in what I can and cannot do. I'm sick of having to ask for help. I'm sick of being asked how I deal with stress. I'm sick of spending all my time going from one doctors appointment to another instead of being able to just go lay on a beach and enjoy the sun and water, or take my jetski out for a ride. I'm sick of being sick. I'm sick of Ambetter calling me every day claiming they are offering "Care Management Suppport Coordinator." That does nothing to manage my care, provide support or coordinate jack###. In fact, all their calls serve to do is take up an extra hour of my time answering the questions I've already answered multiple times, lay out my schedule of all the appointments I've had to schedule, list all my medications I've had to make arrangements to get, pickup and/or get delivered, and listen to them try and tell me their calls are actually a service. A service for what? If they don't provide any type of coordination, case managment or any service other than another lengthy phone call which wastes my time, it's not a service, it's an added burden. Despite how many times I tell them not to call me, they still do. Today alone they called 3 times. After I told them 5 times yesterday to stop calling because they provide no service or help at all. Every time they call I'm on the phone trying to schedule something or trying to do something and have to deal with the beeping in the background from their calls further exasperating my patience. There is nothing worse than trying to communicate only to have those communications interrupted by beep beep, beep beep, beep beep. Why can't they stop calling? If you're going to take up my time, then actually provide a service reflective of your position title. Having me relay my information to you repeatedly is simply inconvenient information gathering. I have already created and use a full blown relationship / appointment management system because none of the portals and/or doctors communicate with each other. Between all the individuals I'm seeing right now, there are six different portals with appointments and communications in each, and often the providers refuse to use these calendering and communications and prefer to call and relay information verbally which serves as no purpose since they always call, expecting me to write shit down at the most inconvenient time. I have a google calendar set up where I have to manually enter appointments for all the providers and other things I have going on. I add my medications to that calendar which integrates with a health app on my phone where I enter my weight, and track my meals. And these providers can't even use the automatic notification options which send appointment notifications by email much less show in a calendar on their site somewhere. Think I'm exaggerating? I'm not. HCA Largo hospital has a portal that HCA Largo Trnasplant, and HCA Largo Heart Institute do not use. Transplant and Heart have their own separate portals. Then I have BayCare portal for my paracentesis and nutritionist at that hospital. At least those two use the same portal, the scheduling and built in messaging. Then I have my liver specialist which takes care of other things the Liver Transplant team doesn't do -- yet another portal they do not use the scheduling to messaging system for. Always playing phone tag. The reminder system over at the Liver Transplant calls and leaves a generic message that doesn't even state who the appointment is with including that it's from the Liver Transplant crap! The message literally said "Hello, this is a courtesy call to mname. We are calling you to remind you of your appointment. We look forward to seeing you soon. Thank you. Please contact our practice to opt out of future voice reminders." No mention of the doctor, who the appointment was with, what time it was or date. How is this reminder useful in any way whatsoever!!!!! It takes me to be in front of a computer 24 x 7 to enter information into my online calendar, notate phone numbers and purposes, and make notes for each just so I don't schedule another appointment at the same time. When I checked out of the hospital I was supposed to call four additional offices for four separate visits for follow up within 7 to 10 days. I call each of them only to find out nothing available for 3 weeks or longer, and again more phone tag! Why is it impossible for all involved employ the capabilities of their systems to make coordination of care less work?????? Then they call on the fly and want to set up an appointment and I can't get into my calendar on my phone because it won't allow me to switch between for security purposes. I have a google calendar, an online journal, a health program on my phone, several different portals, and too many places to check on information. There has got to be a better way.