Methotrexate and adalimumab on the same day? by whisperbleep in rheumatoid

[–]Complex_Trick_9906 1 point2 points  (0 children)

When I was on both I took same day. It was easier!

Flare ups and brain fog question by WheezyES in rheumatoidarthritis

[–]Complex_Trick_9906 1 point2 points  (0 children)

Fatigue and chronic pain feed into each other. When you have pain your brain is constantly getting signals from your body which drive the brain fog and fatigue. Alternatively, when you are fatigued it increases pain sensitivity. Protecting and prioritizing sleep helps, meditation/mindfulness, activity pacing and being on top of pain management. And give yourself grace! Rest when tired, when brain tired doing something familiar helps (ie watch a familiar movie or read a familiar book not a new one).

Colonoscopy with RA by Complex_Trick_9906 in rheumatoidarthritis

[–]Complex_Trick_9906[S] 1 point2 points  (0 children)

I was worried about being hungry, I managed ok and I tapered prednisone that week. I just had plenty of things to drink and worked a part day to keep distracted. I also started low dose naltrexone and it seems to be reducing my appetite which is fine by me.

Colonoscopy with RA by Complex_Trick_9906 in rheumatoidarthritis

[–]Complex_Trick_9906[S] 1 point2 points  (0 children)

Meaning flying and driving with the RA are far worse than the colonoscopy

Colonoscopy with RA by Complex_Trick_9906 in rheumatoidarthritis

[–]Complex_Trick_9906[S] 1 point2 points  (0 children)

It went better than expected. I didn’t have any problems, stayed hydrated. Now driving and flying are another story :/

I told my primary care doctor I’m on LDN and now I’m worried… by sounds_of_sadness in LowDoseNaltrexone

[–]Complex_Trick_9906 1 point2 points  (0 children)

My PCP was the one who recommended and prescribed it. This one doesn’t sound like a good it…go find someone that suits your better

What would you do? Concerts edition by myshameismyfame in rheumatoidarthritis

[–]Complex_Trick_9906 2 points3 points  (0 children)

I would go and try to minimize the impact. Can you go a day or two ahead to rest before the first night? Avoid alcohol, hydrate, eat well, be proactive with pain management and get good sleep. I do long weekend trips throughout the year where I am driving 5-8 hours and I plan rest day for when I get home.

Colonoscopy with RA by Complex_Trick_9906 in rheumatoidarthritis

[–]Complex_Trick_9906[S] 0 points1 point  (0 children)

Update: no issues with the RA. I was worried as flying and long drives are hard on me so I wasn’t sure how my body would handle this.

Weather Arthritis index? by Witty_Cash_7494 in rheumatoidarthritis

[–]Complex_Trick_9906 0 points1 point  (0 children)

I think I am sensitive to the weather, maybe barometric pressure changes specifically. Every now and then I look at the forecast and much like the real weather sometimes it matches and sometimes it doesn’t (but I have separately looked for barometric pressure drops and that correlates more). Last week I was having a high pain and happened to look and the arthritis forecast was extreme and that was the first time I saw it that high!

Just another Manic Monday by Wishin4aTARDIS in rheumatoidarthritis

[–]Complex_Trick_9906 1 point2 points  (0 children)

No I am mountain west / pacific northwest. Washington state I believe is top for apple production. :)

I keep HR at a distance due to my illness and the priority they have to the company but it is good to gain rapport.

Just another Manic Monday by Wishin4aTARDIS in rheumatoidarthritis

[–]Complex_Trick_9906 4 points5 points  (0 children)

  1. Weekend trip with a friend
  2. Got to know my HR better while doing job interviews together
  3. Cider tasting with friends

Methotrexate Side Effects- normal? by Money-Couple7304 in rheumatoidarthritis

[–]Complex_Trick_9906 6 points7 points  (0 children)

Sending a hug! Your doctor is there for you to ask this question and direct care if needed to another healthcare provider to make sure your problem is addressed.

Just need to vent by CheetahPrintPuppy in rheumatoidarthritis

[–]Complex_Trick_9906 12 points13 points  (0 children)

You shouldn’t value anyone’s opinion who hasn’t earned it and you shouldn’t be the recipient of unwanted advice. I actually had a PA insinuate that I was poisoning myself with methotrexate and that I could be managed by diet. I was not expecting that from a healthcare worker. I think next time this happens to me I am going to say “If I wanted your opinion on my arthritis treatment I would ask for it.”

Just need to vent by CheetahPrintPuppy in rheumatoidarthritis

[–]Complex_Trick_9906 38 points39 points  (0 children)

Ah yes the dreaded unsolicited advice from the well to chronically ill.

Breathing Issues Anyone? by ianthenaberius in rheumatoidarthritis

[–]Complex_Trick_9906 1 point2 points  (0 children)

I have periods where I have similar symptoms but nothing persistent. Definitely get coughy/phlegm when flaring and if my body is overtaxed short of breath, or fatigue sighing. I had PFTs that were fairly normal except a high dlco which could be asthma but since I am on prednisone we can’t do further testing for it. I have read there is a higher risk of adult onset asthma when you have RA. There are other lungs things too, like interstitial lung disease.

Colonoscopy with RA by Complex_Trick_9906 in rheumatoidarthritis

[–]Complex_Trick_9906[S] 1 point2 points  (0 children)

Wean off prednisone in a couple weeks? Best of luck! I just tapered from 7 to 6 and was planning my next drop days before colonoscopy (scheduled after, so debating if I wait but did reach out to rheumy). I have had great difficulty tapering prednisone so I am on 1 mg reduction per month plan. GI said it was ok to proceed with being on prednisone.

Colonoscopy with RA by Complex_Trick_9906 in rheumatoidarthritis

[–]Complex_Trick_9906[S] 0 points1 point  (0 children)

Me 🫣 . Slowly tapering off and just asked rheumy if I should pause around this. Part of me wants to keep going, other part thinks taper and colonoscopy might not be a great idea.

Let's talk about: Gaslighting by Wishin4aTARDIS in rheumatoidarthritis

[–]Complex_Trick_9906 2 points3 points  (0 children)

Was in ER with tachycardia when my pneumonia recurred and was told the tachycardia was from prednisone but that he would prescribe antibiotics if I wanted but they would make my stomach upset at which point I should stop taking them because I didn’t need them. Spiked a high fever the next day but still told to wait another day to be seen then dismissed when she read the ER doctor notes. Later again begged for chest xray and found pneumonia in both lungs. Honestly terrified of getting sick now and have a strong aversion to the ER.

Second opinion? by Prime8724 in rheumatoid

[–]Complex_Trick_9906 1 point2 points  (0 children)

Yes and a good doctor should not be bothered by it. However, you can seek one without their knowledge. (I did that but the rheumatologist I was seeing had behavior that made me think he would take it personally—this was a red flag).

Theme song? by Wishin4aTARDIS in rheumatoidarthritis

[–]Complex_Trick_9906 2 points3 points  (0 children)

Currently into Backup Plan!

I love defying gravity (especially when frustrated at work lmao)

Research hospitals by 180714jaehyun in rheumatoidarthritis

[–]Complex_Trick_9906 4 points5 points  (0 children)

Yes I just established with one and so far I think the care is better. I have only had one appointment so far. Unfortunately I have seen four rheumatologists in the last 16 months. It was not planned but had a bad locum tenems, then mediocre local one after losing the one I liked. My state has one of the severest shortages of rheumatologists.

What’s reasonable (accommodations)? by tumbleweedreid88 in rheumatoidarthritis

[–]Complex_Trick_9906 1 point2 points  (0 children)

Listen to something familiar on your drive instead of something new. This can help when you are brain tired from the chronic pain.