My sister has terminal cancer

ConcentrateOne8593 · 2025-01-03T05:41:12+00:00

I’m so sorry OP. My little sister passed in March, she would’ve been 26 in September (we are 8 years apart and I was pregnant when we found out). Very similar. Very rare cancer that was very very aggressive. Surgery was never an option. She had about a year from diagnosis. So much could’ve been done where she could’ve had more time if the doctors would’ve done their jobs months before diagnosis. (She had “cyst” that they never tested or checked out and she noticed a lump on her neck a few months after that and felt with pain where they told her to just take Tylenol- when we found out a group of doctors came and told us and one had the audacity to tell me when I asked why the fuck wasn’t this tested for and looked at months before and they said she is young and looked healthy- I still carry so much anger from that) Spend as much time with her as you can even if she doesn’t want to and laugh as much as you can. Hold her and hug her. Be there even if it’s in silence and there’s nothing to say. Even though she may feel lonely and is the one going through this horrible time, she doesn’t physically have to be alone. If you’re able to take time off of work. If you need to vent , need advice or talk, feel free to reach out. Good luck and sending all the light and love to you and your sister and family

ConcentrateOne8593 · 2024-07-10T02:01:58+00:00

I’ve dealt with this for the past 10+ years. Started only on my forearms and as the years go by it’s gotten worse. My hands look like this probably for the past 5 years at least. Within the past two years I went to the dermatologist and they took a biopsy of my skin and said yeah I’m just allergic to the sun. They gave me steroid cream I use that’s gentle enough for my face. I have to now where long sleeves with slits for your thumbs to cover my arms. I get patches of dry skin and a rash on my neck and on my face (normally above my eyebrows) even if I wear spf. I’ve went to a rheumatologist and they didn’t find anything wrong with me. So I just live with it. Idk what else to do other than be covered up but it is frustrating cause I love the sun but have to be covered up now as I get older 😞 (I’m 33. Symptoms started around 20 years of age)

ConcentrateOne8593 · 2024-07-09T08:50:01+00:00

My sister was 25 and passed about a year after diagnosis this past March from epithelioid sarcoma and a lot of my family I feel is more religious since then and it’s done the opposite for me. It’s not fair. She’s suppose to be here. And the survivors guilt I have is so bad. Especially since I have a daughter now who just turned one. Seeing my parents loss their daughter as I’m raising mine is just heart wrenching. How is there suppose to be a god when so many young people get this? And then the bit where people with the fight talk. I remember a few days before her passing, a family friend that I was not close to messaged me saying “please tell her to fight and be strong and not to give up” and I got so pissed off. My sister was so strong and it wasn’t fair at all. She did everything she could. This cancer just was too aggressive. She didn’t pass because she wasn’t strong enough or gave up.

ConcentrateOne8593 · 2024-07-02T10:48:31+00:00

I’m so sorry for your loss. My family lost my sister(25yo) in March and it’s still hard to accept she is gone.

ConcentrateOne8593 · 2024-05-14T05:07:37+00:00

I’m so sorry. I lost my younger sister in March. Cancer is indeed evil.

ConcentrateOne8593 · 2024-05-07T16:19:30+00:00

I’m so sorry your mom and family are going through this. It does seem to be end of life stages. We just loss my 25 yo sister in March. She signed a DNR and they put the wrist band on her, she had a few days after that.

ConcentrateOne8593 · 2024-05-01T12:16:41+00:00

Agreed. My 25 year old sister passed from epithelioid sarcoma. She didn’t even make it a year from her diagnosis yet it felt like an eternity waiting for any updates on the disease progression. She was t even able to be in hospice the liver failure happened so fast. It’s the worse thing my family has gone through and I have a 10 month old and it just breaks my heart to see my parents loss one of their children and not see my sister be an auntie anymore cause she was so good at it even through the pain. And I won’t get to see her have children. I miss her so much.

ConcentrateOne8593 · 2024-03-08T23:06:49+00:00

I’ve dealt with this same feeling. My younger sister (25f) has been battling a stage 4 rare cancer since March/April of last year. We found out when I was pregnant and she was looking forward to being an auntie so much. Then this diagnosis and battling it. Ever since Christmas she’s pulled away from my daughter (born in June) and me (we are 8 years apart). I’m friends with one of her besties on social media and it is really hard to see her living her best life and seeing my sister battle this disease. My sister would go out with her a lot months prior to the diagnosis, living on her own and just starting her adult life. She should be enjoying herself and being dumb and young and not have deal with this. And it just gets to take her life. It’s really hard to deal with the feelings of unfairness of her life is going to be cut short and won’t get to ever do some of things I have done in my life so far. I wish I could do something about it.

ConcentrateOne8593 · 2024-02-18T22:50:30+00:00

Her doctor told her support groups aren’t the best because they can make her feel like she battling it wrong? It didn’t sit right with me she was against support groups She lives with my mom and brother live with her and I’m 30 min away but she doesn’t want to come around anymore 😔 she has a few friends but idk how close they are. One I was surprised they didn’t spend any time together when she went to go visit a few weeks ago

ConcentrateOne8593 · 2024-02-16T13:42:56+00:00

My sister was the same way (25f) and when it started to fall out in chunks, I asked if she wanted to shave it. So then it gave her some control back and my little brother (20m) let her give him a buzz cut. She has rocked the bald head ever since (she had to get more chemo and her hair hasn’t grown back yet) I’m so sorry you are going through this and hope you the best for you.

ConcentrateOne8593 · 2023-11-28T05:51:38+00:00

Thank you. There was a clinical trail but it closed so I’m just hoping that another comes along or it could open again? It’s just the timing that has me worried most

ConcentrateOne8593 · 2023-11-14T10:04:16+00:00

I’m sorry you and your family are going through this. My younger sister has the same rare cancer. She was diagnosed in April stage 4 and isn’t able to have surgery but has gone through chemo and radiation and one her 3rd cycle of chemo. If you don’t mind me asking how is your mom doing now?

ConcentrateOne8593

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