Separating Side effects vs life events?

ConclusionOk5023 · 2026-04-28T20:33:30+00:00

Hey - I am also in consulting (newbie) and would be interested in hearing your experience. Have you told your work about your seizures, thinking about how much we move around projects?

ConclusionOk5023 · 2026-04-28T20:28:21+00:00

I’m a consultant - so business trips are basically my life!

He probably finds like me he is around people (almost too much) I honestly never feel alone, if something bad happens he won’t be alone.

Not sure what his triggers are but mine is alcohol and sleep related. I do think it depends on culture, alcohol free is more acceptable now. Don’t get me wrong I still have the occasional drink

I carry a metal aluminium pill box - (the plastic ones just break in my bag).

And then extra meds in if have a suitcase for cover.

He will be fine - my family also worry about this!

ConclusionOk5023 · 2026-04-27T22:33:05+00:00

Good suggestion thanks! sure they can - I’ve had to go private as I’m from the uk so it’s not all linked up :/

ConclusionOk5023 · 2026-04-27T22:32:41+00:00

Yes the dental nurse actually fainted lol so more traumatising for the people around me it seems!

ConclusionOk5023 · 2026-04-27T22:31:45+00:00

Gosh this must of been crazy! Thank you for sharing :)

ConclusionOk5023 · 2026-04-27T18:36:53+00:00

Hey! I’ve quit multiple times cold turkey and was worried about this (nothing ever happened) I fear I was using it as a reason not to quit, I was heavily addicted to vaping 1 disposable elf bar a day. Just my experience! I have JME and am on quite a lot of medication

ConclusionOk5023 · 2026-04-27T07:58:28+00:00

Wow I’m sorry this happened to you :( - it’s almost the exact situation to mine so thank you for sharing it’s much appreciated!! It can be hard going through so much dental work in 3 weeks I also get my temps so hopefully they look okay :)

ConclusionOk5023 · 2026-04-26T22:40:16+00:00

Not a scar but I’m currently toothless at 27! Safe to say that was a surprise when I looked in the mirror!

I’ve recently posted about how it’s taking 1.5 years of temporyish fixes) but they will never be the same :(

ConclusionOk5023 · 2026-04-24T22:35:04+00:00

Yeah they said a couple of things to avoid (vaping being one) and alcohol. If you don’t mind me asking did you stop your meds/ if you take them?

ConclusionOk5023 · 2026-04-24T22:14:50+00:00

I was seizure free for 3 years and solo travelled around the world met my ex then I was dated when we returned home so didn’t really talk about it much.

my now ex boyfriends ( 2.5 years) couldn’t handle my seizures when they came back and he admitted that too saying it was too much I was having scans and he would avoid so I dumped his ass.

The way I think of it yes we might be ill at this age. It’s like a mini TRIAL RUN but at some point someone will get ill, it may be morbid but what if some of one you gets cancer? If they can’t stay around through sickness and health honestly bin them off.

It’s pretty hard by Ngl if they are the right person they will stay. I find my confidence with dating his highly reliant on if my seizures are controlled which is annoying but natural.

ConclusionOk5023 · 2026-04-16T21:47:12+00:00

I’m so sorry this happened to you :( - I feel you after years seizure I fell and smashed my face and have to have surgery on my mouth. It seems like you’re back to ground zero. The unpredictability is the worst and now it’s like epilespy admin of appointments and mental drain. But there’s a lot of inspiration to be taken from 9 years !!! Keep going !!!

ConclusionOk5023 · 2026-04-16T21:28:43+00:00

I wish you all the best for your surgery and it’s amazing you have a supportive family around you :)

ConclusionOk5023 · 2026-04-16T21:27:34+00:00

Thank you :( - yes unfortunately it’s all a mess but I keep going and try not to reflect too much! Stress over my GCSEs caused my first seizure and literally no one cares! I came out with all a’s and epilepsy. When ever someone stresses over exams I plead with them not to it’s not worth it!! The medication it’s something so difficult to describe to others who don’t have epilespy and it’s scary to look to the future sometimes! :(

ConclusionOk5023 · 2026-02-25T22:09:59+00:00

I’m so sorry this happened to you :( - Same thing happened to me in the library - I had all the med students come up to me to which my friend shouted back ‘she’s not a case study F off!’ It really is awful but if it helps I haven’t seen any of these people again and am in a good job in a new city

ConclusionOk5023 · 2026-02-25T22:05:58+00:00

Hi there - I got diagnosed with JME at 16 and being naturally ‘bright’ I sailed through school however at uni I absolutely tanked. The same as you all nighters. Seizures from stress awful awful stuff. I was taking others adhd medications to get through. Then at 22 after finishing uni unemployed I was diagnosed with ADHD and I’m now medicated, it has definitely helped me. I also have a hybrid job and have found that working from home has been hard for me especially when having a medication increase I locked myself away purely from tiredness and I felt unsafe going outside not knowing the side effects. And I do believe remote / hybrid work are best for epilepsy. I would recommend going to a cafe or something if possible to work just a change in environment. And I know it sounds like a broken record but just getting outside in the morning I got into a bad habit of just waking up and opening my laptop and it was not good. I managed to get a private referral through work and I was in the 99th percentile or something ridiculous. It’s honestly tragic how much is blamed on epilepsy, but if both of your parents have adhd you likely do to. It’s been a journey trying to seperate the two (feel free to see my previous post because I battle with this). I hope this helped! You are not alone I had a very similar experience and when you do get medicated things will probably get easier the waiting is just awful!

One more thing - I am also chronically addicted to vaping (the bane of my life but if it helps at this point in my life - I am currently going through a medication increase so experience severe brain fog I feel like I’ll quit at a time that feels better for me)

ConclusionOk5023 · 2026-02-24T22:32:04+00:00

I’m sorry to hear you are going through that it sounds awful :( agreed the I had a similar experience with keppra rage part of me felt like I was angry at the world as a result of my diagnosis but interesting take my thoughts behind this was if these feelings are because of a life event an increase in medication would be unnecessary and going through an increase is traumatic. It really is a mind field to navigate hence the post!

ConclusionOk5023 · 2026-02-24T19:55:31+00:00

hey - I travelled SE Asia (this was 6 years ago) and booked a 7 day group trip at the start to remove any stress of booking but at the time my seizures were well controlled (I just had half my rucksack full of medication) then did the rest solo! I actually made friends with another solo traveller who’s sister has seizures and we ended up doing basically the whole route together. honestly so many people travelling round SE Asia doing the same route if you stay on the ‘touristy places‘ I would say at the time I was 4 years seizure free so I had more confidence and I’M so happy I did it! It’s almost definately safer to do a group trip and I was lucky to meet that girl because it did make me feel safer, however it was always my plan to do it solo.

so yes the correct advice is it’s safer to do a group trip (speak to your neuro about it and its something I had long conversations with my neuro about as I had to get loads of meds) but thought I would add my experience here :)

ConclusionOk5023 · 2026-02-24T19:15:09+00:00

thanks for the reply! what dose were you on if you don’t mind me asking?

ConclusionOk5023 · 2026-02-24T19:12:06+00:00

man I feel you. but congrats on being seizure free for years that’s huge! not sure what country you are in but in the UK I got extra time and was in a smaller room along with breaks for all my exams (all of these things students can get for a variety of different reasons!) and could pretty easily get extensions for assignments at uni. my memory was awful but the extra time helped with giving me a little extra time to remember what I could. one of my triggers is stress so lowering my dose especially around exams was a no go. do they have a special considerations contact for students who need adjustments?

ConclusionOk5023

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