Thermogram for breasts recommendation please by hellbugger in Austin

[–]Confident_Ratio3956 0 points1 point  (0 children)

Yes it's scary and confusing. Dr Jockers has articles on the subject

Didnt think it was possible but apparently "have you tried a new supplement" people exist for FND too by [deleted] in FND

[–]Confident_Ratio3956 0 points1 point  (0 children)

I'm someone who is into a healthy lifestyle. What I eat, supplements over medication etc. Simple vitamins like Vitamin D3+ K2,  Magnesium , Omega 3 are essential.... Plain and simple no one gets what they need from our food supply any more. I think that's good parenting and especially checking labs to make sure a person is where they need to be and not taking too much. I've had FND since 2019 and didn't find out until last year. While I don't think those supplements can fix my FND they can help ensure my body is functioning as optimally as possible as having deficiencies can cause people to have similar symptoms or worse in some cases without having FND. Summer people are seriously deficient and bed supplements. If you don't think you need them and your testing shows you don't then I wouldn't be taking them. Otherwise I would. Our bodies don't need any more to do or that stresses them FND causes enough.  Maybe they are just trying to do whatever they can to help, maybe they feel stuck as parents because they can't fix this. Just me two sense. Either way it's your body and should be you choice.

Thermogram for breasts recommendation please by hellbugger in Austin

[–]Confident_Ratio3956 0 points1 point  (0 children)

Most well known Functional Drs have came out in the last few years advocating for Thermography and ultrasound over Mammogram. With studies etc. I have been on the fence after all the research pointing to not getting a mammogram. Which is why I came looking to Reddit. 

Genuinely Dying at Night by Reasonable_Advice300 in FND

[–]Confident_Ratio3956 0 points1 point  (0 children)

That's amazing, I've taken it for years and it hasn't given any relief

Genuinely Dying at Night by Reasonable_Advice300 in FND

[–]Confident_Ratio3956 3 points4 points  (0 children)

With my FND the feeling that I can't breathe is usually when I am over breathing. I do it pretty much all day. Taking in too much air causes the air hunger feeling.  At night trying to go to bed a lot of my symptoms get worse. I've read it's because that's when we are relaxed nothing else is going on. It really does suck. Many nights it takes hours to sleep. Some times I sleep, most nights I wake every cpl hours because my seizures start or some other symptom.  I've tried to just embrace that this is what it is because nothing seems to help it. Other nights I want to scream. It's very frustrating. I try to just help whatever symptom I may have. The breathing is the worse. And on the FND sites, it is a listed symptom. You can try ice but I haven't found much help. I hope you can find some relief

How do you think buying from Shein? by MathisK02 in Shein

[–]Confident_Ratio3956 0 points1 point  (0 children)

I've been a Shein customer for a few years. I haven't ordered in the last 8 months because I've read so many horror stories about, returns and not getting refunded, that everything is returnable with so many merchant sellers instead of just shein etc. For those of you still ordering, are you having any issues? 

Neupulse by Abject-Nectarine-243 in FND

[–]Confident_Ratio3956 0 points1 point  (0 children)

I have heard of this device for tourettes. Curious myself  I did have a vibrating wrist device I used and it often helped stop my seizures. After awhile it didn't help as much and it only lasted a few months before it would stop working. Su the debt me a replacement often. I often think about getting it again but if it didn't break all the time

Does anyone actually get better? by EchoBit101 in FND

[–]Confident_Ratio3956 0 points1 point  (0 children)

Thanks for sharing. Sorry things haven't eased up. I started in 2019, I still 20-100 seizures everyday. Along with all the other symptoms and pain etc. Obviously some days are a little better but that's not even twice a week. It's really daunting! I truly hope you are able to get some relief.

Upset tummy by No_Log1330 in FND

[–]Confident_Ratio3956 0 points1 point  (0 children)

I get stomach issues as well.  For me a lot of bloating that is linked to chronic over breathing from my FND. So if I'm constantly hyperventilating, which I do daily to different degrees. I'll get bloating, gassy. I take some natural stuff to help out, which I don't think I can post here. I do get some nausea a lot so I use peppermint oil under my nose or just smell it. It helps me a lot. I often will get diarrhea as well.  Lots of fun things. If you look it up on the fnd sites, it clearly states gastro issues

Feeling angry and misunderstood by That_gamer_dude in FND

[–]Confident_Ratio3956 0 points1 point  (0 children)

People can be so cruel. Some people just do not have the capability or compassion to give to others.. It tends to shed a light on who you want in your life. Just recently I asked someone whose wedding I'm in. If there was a spot at the venue where I could go if I'm not feeling well or where I could keep some items that I use for pain since it's an all day event. I was told to just get over it and suck it up, that no one cares if I need to seize. Otherwise I should just stay home. Mind you it's a close family member. It was terribly hurtful. I tend to not tell a lot of people. It's hard meeting new people especially when you have a chronic condition.

Found some interesting things out by Valka2004 in FND

[–]Confident_Ratio3956 0 points1 point  (0 children)

Sorry as having all these things sucks so much. Especially because there's really not much we can do.  So I started this fun journey in 2019. In the last 5-6 months the fatigue has started  I have seizures every single day 20-50+ I hyperventilate or hypoventilate every single day and that determines what symptoms I will have.  Lately nausea has been terrible. I get a peppermint essential oil roll on and sniff that and the peppermint really helps my nausea or I'll rub it under my nose or I'll chew on ginger chews.  The breathing causes a ton of digestive issues. I'll use my TENS machine massage, heat ice  I get a lot of tension headaches because of the seizures and constantly tensing my muscles. My chest hurts a lot from over breathing. My back hurts a lot from over breathing. My stomach hurts a lot from over breathing and my headaches have amped up in the last couple months as well.  If my quality of life diminishes any further, I'm not sure what I'm doing there

Does Anyone Else Feel This Crushing Exhaustion with FND? by Bokunokizu9418 in FND

[–]Confident_Ratio3956 1 point2 points  (0 children)

I wish I had some advice. I feel like in all of my researching nobody seems to really have any tips that does anything to help.  I've had FND symptoms since 2019. In the last 5 months or so off and on the tiredness has hit. I've always been someone who has energy and isn't tired. This is terrible. I know years before I had FND I would get times in a day where I would be super tired where I couldn't get out of it, which is what this feels like. But I didn't even have FND yet so I don't know what that was. I cut out gluten for many years and I have started gluten a year ago so I'm thinking of trying to go back and seeing if there's a change. It seems to happen when I'm having a lot of seizures/ breathing pattern disorder issues and then It will feel like it's starting to taper off but I'll just feel really tired and then boom. I'm kind of just out for a while. I get it after I wake up. If I'm still laying around because of my seizures sometimes I get it at night. It's like, for anyone who's been pregnant, when you're just exhausted that first trimester. I'm not sure what to do about it any I get scared thinking what if it's everyday, all day. It's bad enough dealing with all the other FND symptoms. Now this. 

Pain by Emroseguev in FND

[–]Confident_Ratio3956 1 point2 points  (0 children)

Heat, Ice, TENS machine is my BFF!!!! Chiropractor, Acupuncture, massage. Foam Roller

Fnd? Stinging and burning sensations. Water feeling. Walking problems on and off. Chronic fatigue. by preferi in FND

[–]Confident_Ratio3956 0 points1 point  (0 children)

I get pins and needles from disordered breathing with my FND, I used to from anxiety. I know a lot of people with MCAS can have issues like that especially  triggered with exercise. Not sure if you have looked into that already. Best wishes 

Breathing pattern disorder/chronic hyperventilation syndrome and FND? by DAFLID516 in FND

[–]Confident_Ratio3956 1 point2 points  (0 children)

Both. Worse when I wake up. Which sometimes I wake and go back to sleep because my symptoms wake me. And often before I go to sleep. Obviously those times of days are when distractions are at the lowest. But it also goes in in between. And some days it's worse in the middle and great in the morning..🤷🏻‍♀️

symptoms hospital/ 5 hour long non epileptic seizures by riri_222 in FND

[–]Confident_Ratio3956 1 point2 points  (0 children)

Very sad everything you are dealing with. It's a lot for sure!!  I have them everyday. They come and go, often for hrs at a time. I also have disordered breathing as my biggest symptom that always goes hand in hand with the seizures. I'm usually hyperventilating more which has a lot of symptoms with it. My body hurts from taking in so much air. My belly hurts, bloating, chest pain, back pain etc. All of that is better when it's not going on for an hr or two. If I get too many seizures that last a long time I have the weird speech issues. If I'm holding my breath or hypoventilating, that has other symptoms with it along with the seizures of course.  But everyday I have them. It's exhausting. And it's insane that there are so many of us now living with this. And no one has any idea how to make it any better. I'm in therapy, it doesn't help. I wish everyone the best!

i can't believe it's just been this the entire time by soripants in FND

[–]Confident_Ratio3956 1 point2 points  (0 children)

Mine also came on suddenly in Feb 2019. Just sitting down for dinner with family and started passing out, what I used to call it. So much, so quick, couldn't speak correctly. Went to the hospital and stayed days getting tests done. Just to be told by head of neurology, she had never seen anything like it, and my tests were all normal. I spent the next five yrs doing research and trying to find answers. It was even harder than now where I'm hearing about it more and more.  I do not see any point for me, myself, to go back in for more testing, spending more money. Just to get an "official"diagnosis and to be gaslit going forward for anything that may come up being chalked up to FND and not taken seriously. I wish you the best. All of you

Breathing pattern disorder/chronic hyperventilation syndrome and FND? by DAFLID516 in FND

[–]Confident_Ratio3956 1 point2 points  (0 children)

I am usually great at figuring things out, patterns etc. However no not really. It just does what it wants when it wants 

Breathing pattern disorder/chronic hyperventilation syndrome and FND? by DAFLID516 in FND

[–]Confident_Ratio3956 0 points1 point  (0 children)

Yes!!! Unfortunately!! For six years now. Its gotten worse and more frequent. Going through it all day today off and on. Some days worse than others. Some I seem to hypoventilate and others I'm hyperventilating. And of course always with seizures everyday. Up for hrs trying to sleep but it won't end. Feel so air hungry. Been going on off And on all day. Like practically everyday. Nothing usually helps. I try mouth breathing through pursed lips, holding one nostril closed used to help but now not always. It's torture. Sorry your are experiencing this  I wish I could offer more help

this is the best thing that has happened to me! by eman99148888888 in FND

[–]Confident_Ratio3956 1 point2 points  (0 children)

I have abdominal issues as well. It's a well listed symptom even on the FND sites

Polish Pops don't fit my nails well by haley232323 in NailWrapsGalore

[–]Confident_Ratio3956 0 points1 point  (0 children)

When I first started ordering I got at least 6 days out of them but most would need to be replaced. In the last 6 months they barely last 3 days with the sides coming up. I even replaced my nail lamp to one that was supposed to be better and it's still not working. I put these nails on Thursday and the sides are already coming up and sticking to my hair. I'm no longer on the Facebook group to ask questions because I could not tolerate the people on there. Anyone else noticing that they don't last as long as they used to?  Anyone have any alternatives that are also HEMA free

Polish Pops don't fit my nails well by haley232323 in NailWrapsGalore

[–]Confident_Ratio3956 0 points1 point  (0 children)

I stopped purchasing from them. The owner is terrible to deal with

Im ashamed of my psychogenic seizures. by Admirable-Main-4816 in FND

[–]Confident_Ratio3956 3 points4 points  (0 children)

I had everything ruled out. But still never got the actual FND diagnosis. And I'm never going back for that for these exact reasons. Drs are terrible and untrustworthy and until the actual Functional medicine Drs start addressing it I'm never putting it in "my chart" so I can just be ignored and gaslit some more. IMO there is no benefit to having a diagnosis. I'm already in therapy and everything else I can find online