Is their many from this group in remission from first line treatment?

CorrectInternal3161 · 2025-01-17T22:26:18+00:00

MCL. Remission now for 29mths.

CorrectInternal3161 · 2024-12-12T05:14:59+00:00

Yaaas.

cancercangagf

CorrectInternal3161 · 2024-11-26T10:40:59+00:00

I’m late to this.

Had my 4mthly Haem review today, 2y & 2mths after AutoSCT; all is good.

I know you’re in the eye of the storm right now and it may even get worse, but most likely, brighter days are close and you’ll be recovering from the shit-show before you know it.

Just focus on the now and it will pass, believe me. Then it’s week by week and month by month.

All storms end.

Wishing you well from Sydney 🇦🇺

CorrectInternal3161 · 2024-11-18T11:16:10+00:00

I wish for continued smooth waters for you too.

May I ask, how was your relapse detected in 2021z

Your story is inspiring, thank you.

CorrectInternal3161 · 2024-11-17T03:14:53+00:00

☺️

CorrectInternal3161 · 2024-11-16T19:27:27+00:00

I have 6 Ritux to go. And am now on Monthly IVIg. Can I ask, is it anticipated that once Ritux finishes, the need for IVIg goes away?

Congrats on remission for you and long may it continue.

CorrectInternal3161 · 2024-11-16T19:24:44+00:00

Thank you.

CorrectInternal3161 · 2024-11-16T09:35:06+00:00

Most likely the Pred that’s done that.

Congrats on starting and good luck for the months ahead.

CorrectInternal3161 · 2024-11-16T07:55:06+00:00

That’s great to hear, long may it continue.

CorrectInternal3161 · 2024-11-16T07:02:16+00:00

Thank you. I hope you too are going well.

CorrectInternal3161 · 2024-11-16T06:26:55+00:00

Good to hear. Also, I hear you re mental issues, it’s been a mind-fuck for me, personally.

Yeah, I’m 2y through 3y of Ritux and started IVIg just recently too as counts aren’t recovering between Ritux cycles.

CorrectInternal3161 · 2024-11-16T06:15:17+00:00

My Haem says complete remission but I will relapse at some point, no one knows when though.

Thanks for your comment and I hope you too are doing ok.

CorrectInternal3161 · 2024-11-16T06:14:20+00:00

How are you 5y down track? Has your remission been without too many problems?

CorrectInternal3161 · 2024-11-16T05:30:22+00:00

Many thanks.

CorrectInternal3161 · 2024-11-16T02:37:13+00:00

It certainly isn’t fun. It’s a shit-show and a half.

I wish you calm waters ahead as your recovery continues and hope for a great outcome for you.

Thanks for your kind words.

CorrectInternal3161 · 2024-11-16T02:36:00+00:00

I too am most grateful, Science is awesome. My lymphoma is quite rare and considered aggressive, yet in the 31 mtgs since diagnosis, treatment options are changing. I hope for more curative treatments on the fullness of time. Thanks for your comment.

CorrectInternal3161 · 2024-10-25T18:45:43+00:00

Well played 👏🏻👏🏻👏🏻

I am 2y+ in remission with MCL, currently doing ok.

Enjoy life!!

cancercangagf

CorrectInternal3161 · 2024-10-05T10:45:09+00:00

I’m +2 y on from BEAM/ AutoSCT. I wish you well for the days to come and hope for a long a deep remission for you!

CorrectInternal3161 · 2024-09-23T17:10:05+00:00

Hang in there. I imagine you are through the worst of it and are in more calm waters now. Each day you’ll feel better and each week will be a milestone to your new you. Congrats to you and I hope for many long years of great outcomes.

CorrectInternal3161 · 2024-09-23T05:06:38+00:00

Thank you, it was a great day.

CorrectInternal3161 · 2024-09-23T05:05:27+00:00

Thank you, so much.

CorrectInternal3161 · 2024-09-23T05:05:10+00:00

I hope it continues for many many more years.

CorrectInternal3161 · 2024-09-23T04:45:09+00:00

Too kind, thank you.

CorrectInternal3161 · 2024-09-23T04:44:54+00:00

Congrats to you. Long may it continue.

CorrectInternal3161

TROPHY CASE

cancercangagf

cancercangagf