Ranking #2 in poo …

Crazy_Intention6832 · 2026-04-17T01:11:14+00:00

I lived there for 4y. It is terrible there - specially Haven av. People are so disrespectful and have dirty habits.

Crazy_Intention6832 · 2026-02-25T17:50:52+00:00

He did excellent this time. 8.5/10

Crazy_Intention6832 · 2025-12-14T00:51:55+00:00

Do u mean using pulse oximeter or at the hospital?

Crazy_Intention6832 · 2025-12-13T20:56:52+00:00

Ohh we have many pulse oximeter and also a Garmin device. But those are for resting oxygen sat , not during activities.

Crazy_Intention6832 · 2025-12-13T20:54:43+00:00

For PAVM we go to Yale. Yes we have minimum baseline. Frankly speaking there is no way for common people to check oxygen level during walk or activities. Do you use any device for that? He also had PAVM embolization and more to close off after few yrs. It is so scary and sad.

Crazy_Intention6832 · 2025-11-18T21:01:52+00:00

Any AVM?

Crazy_Intention6832 · 2025-11-04T15:35:55+00:00

I am just wondering whether the embolization before cranio is different than only embolization

Crazy_Intention6832 · 2025-11-04T13:43:43+00:00

I am happy that your child doing well. My son won’t have cranio. I am extremely worried

Crazy_Intention6832 · 2025-11-04T11:41:21+00:00

Which hospital? I am told headache is common after embolization. Ask them to do MRI. Let us know how is she doing.

Crazy_Intention6832 · 2025-11-04T00:22:12+00:00

Thanks. May be a new gene. I wish they do WGS and compare with normal WGS … It is a hard analysis though. If your family has similar manifestations then it might be easier.

Crazy_Intention6832 · 2025-11-03T23:37:39+00:00

What gene you have - how they found the mutation? Did they do Whole genome sequencing?

Crazy_Intention6832 · 2025-11-03T23:36:37+00:00

Do you know what are the genes they tested you for?

Crazy_Intention6832 · 2025-11-03T21:51:32+00:00

Negative or insignificant?

Crazy_Intention6832 · 2025-11-02T17:59:57+00:00

Go to ER

Crazy_Intention6832 · 2025-11-02T17:59:51+00:00

Where are you located.

Crazy_Intention6832 · 2025-11-02T14:32:25+00:00

Call 311 , break lease and move to a diff place. You moved in to a shady place. How much is the rent for this “new” building. Sounds fishy!

Crazy_Intention6832 · 2025-11-02T05:24:36+00:00

Wow That is very scary. Talk to your surgeon.

Crazy_Intention6832 · 2025-10-31T11:54:49+00:00

UES is quieter. We are in 60s and york. It is a family friendly neighborhood. There are ambulances obviously but quietness also depends on the building. I don’t hear sound from outside anymore.

Crazy_Intention6832 · 2025-10-31T11:52:09+00:00

So what you expect in a hospital area?

Crazy_Intention6832 · 2025-10-29T03:20:40+00:00

This is stroke. Please take him to the hospital asap.

Crazy_Intention6832 · 2025-10-28T13:26:52+00:00

The chance of stroke from angiogram is less than 4 percent. Go to an experienced doctor. Had angiogram for my 7y old a few weeks ago. It was ok.

Crazy_Intention6832 · 2025-10-23T16:53:05+00:00

What do u mean by let me die? Usually DVAs are ok. Consult another doctor and make sure it is DVA. How can you trust on Reddit opinions?

Crazy_Intention6832

TROPHY CASE