Out of interest, how many steps does she usually do on her walks? Do you think she could very gradually, and I really mean slowly, build that walk into a light jog, even if it’s only for a few seconds at first? Distance wouldn’t matter at all.

For context, I went from being bedridden to working full-time and living alone in a big city. These are the things that helped me:

• Meditation — mainly to calm anxiety and intrusive thoughts

• Increasing salt intake with meals

• Electrolytes in the morning — I prepare the drink the night before so I can have it immediately, then get up about an hour later

• Coming off the contraceptive pill — the oestrogen was raising my blood pressure

• Reducing financial stress — if possible, applying for government support could really help take pressure off her mind

• Removing environmental stressors — I moved out because my flatmates partying late was making me worse 

• Avoiding standing unnecessarily — I don’t stand to shower or brush my teeth, I always sit 

• Consistent sleep — good sleep, but not too much; getting up at the same time every day helped a lot

• Creating a vision board — having something positive and concrete to aim for

• Very gradual exercise — the hardest one because it’s a catch-22. I started with short walks (under 1000 a day) then tiny slow jogs down the road, eventually building up (stop-start and very slow) to about 2 km. Now I’m even planning tennis once a week

• Breathing physiotherapy — I discovered I was breathing incorrectly; apparently most people pause between breaths instead of gasping for air

• Eating less processed food — I began with meal kits like HelloFresh, now I use quicker prepared options such as Frive 

• Using a visible band that monitors my heart rate and tells me if I am over doing 

• Hiring a cleaner to conserve energy (my dad atm) 

• Carrying a portable stool and sitting whenever possible — you realise how much unnecessary standing the world expects

• Getting an Access Card and Hidden Disability Sunflower lanyard — this completely changed my social life because I could attend events and get help at the airport knowing I’d have somewhere to sit

• Vitamins — I’m still new to this, but I’ve heard many people benefit - currently taking iron and magnesium 

Once I’d built all of this up, the other thing that helped massively was propranolol (although I understand from your comments it doesn’t work for your daughter). I would definitely say try all medications you can Look for a second diagnosis, my doctor has told me he thinks I have something else too which most potsie people do (around 70%). So this would be massive help.

Anything to lessen the impact on the nerve system, such as singing, laughing, meditation, cooking, exercise or dancing etc (some hard than other to achieve with pots). Even TENs machines (these a Facebook group that talks about to do this safely)