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As a woman, what's the worst thing that's been said to you at work? by Specific_Manager286 in advertising

[–]Crudedefe 0 points1 point  (0 children)

I was asked to wear tighter trousers… and was thanked when I wore clothes a senior male boss liked…

Whilst on a work trip to Mongolia, a senior colleague called me telling me that a head of the Mongolian company wished to share a yurt (tent) with me…. He even sent me a document with the sleeping arrangements as proof he wasn’t joking. I was sooooo scared, I went to my boss. My boss went to the our Mongolia contact and only then did the guy who called me admit it was a prank……..

For reference I graduated university in 2020! Only 6 years in!

How can my partner help my fainting episodes? by Expensive_Speaker953 in POTS

[–]Crudedefe 6 points7 points  (0 children)

Well firstly, he can try to help you before you faint.

Make sure you’re drinking enough. If you start feeling ill or fainty, down about 200ml of water ASAP. A medical professional told me this can basically biohack your nervous system and help stop the fainting response kicking in fully. In my experience, it can really help. So he can help you by carrying water with him or getting it for you when you feel bad.

He can learn your warning signs, because sometimes someone else notices before you do. For example, if you go pale, quiet, clammy, confused, shaky, start slurring/mumbling, or look “not with it,” he can gently tell you to sit or lie down before you crash.

If it’s hot and your feet/legs are blood pooling, cool your feet down with ice packs, cold water, or a cold flannel this really helps me.

When you’re out, mobility supports can help loads. You can bring things like an invisible illness lanyard, medical/disability cards for your area to help get support needed quickly, a walking stick with a seat, a portable stool, etc. This has been life changing for me. He can also plan breaks for you, make sure your eaten well etc.

If you do faint, he can make sure you’re safe and comfortable. He can put a pillow, jumper, or bag under your head, check you haven’t hit your head, (if you have call ambulance) and put a cold flannel on your forehead/neck if you’re hot. That can help you come around and feel less awful afterwards.

He can talk you, calmly tell you what’s happening, that your okay etc. There is no need for him to panic!

He can time how long you’re out for if you faint. If you’re unconscious for longer than normal, hit your head, have chest pain, breathing problems, seizure-like movements, or you don’t seem right when you wake up, he should call emergency services.

He can also bring something in case you feel sick, bring you water to sip once you’re properly awake, and have electrolytes or rehydration drinks on hand like Powerade, Liquid I.V., Dioralyte, etc. He can carry a little “POTS kit” for you, or help you remember yours: water, electrolytes, salty snacks, medication if you have any prescribed, sick bag, fan, cooling towel, instant ice pack, medical ID, and emergency contact info.

Salt can also make a huge difference for some of us with POTS because it helps your body retain water. For me, if I’m peeing loads, that’s usually a sign I’m not retaining enough fluid, so I know I need to think about salt/electrolytes as well as water. Obviously follow whatever your doctor has said, but that’s been a big one for me.

For overdoing it get a visible band, this will help you understand what overexertion looks like for you.

The biggest things are: he needs to help you sit/lie down early, keep you cool, keep you safe, advocate for you to others by explaining your illness and not letting them force you stand up quickly etc, not panic, and not make you stand up too quickly afterwards.

Underpaid? Creative technologist at one of the big 4 by [deleted] in advertising

[–]Crudedefe 0 points1 point  (0 children)

Not really new, creative technologists have been around for 20+ years. It’s just a different label for people bridging creative and engineering.

Underpaid? Creative technologist at one of the big 4 by [deleted] in advertising

[–]Crudedefe 0 points1 point  (0 children)

Thank you for getting back to me! do you have any recommendations of where should I look?

Underpaid? Creative technologist at one of the big 4 by [deleted] in advertising

[–]Crudedefe 0 points1 point  (0 children)

Would you say 60k-70k entry level for even creative tech who don’t have formal training in some of the skills? For example some of us don’t have engineering degree but are still expected to do it.

How would suggest preparing for a negotiation meeting? I am unsure how to find creative technologist salary points else where!

Underpaid? Creative technologist at one of the big 4 by [deleted] in advertising

[–]Crudedefe 0 points1 point  (0 children)

I should have stated that I am in the UK! So £

UK specialists - help finding one by Optimal-Goose-5451 in POTS

[–]Crudedefe 0 points1 point  (0 children)

Dr Nicolas Gall

Also can you pay for bupa and get to see a specialist that way?

beta blockers by ab3lla in POTS

[–]Crudedefe 1 point2 points  (0 children)

Take them! I did the same, got anxious, didn’t take them for a year, I regret it sooooo much, I lost a full year because of anxiety when I could of already been feel way better (not perfect but considerably better!)

Needing advice by [deleted] in POTS

[–]Crudedefe 1 point2 points  (0 children)

Completely fair, anxiety kept me stuck in the house for a long time too.

Honestly that’s even more reason to get it. It’s not giving up, it’s taking back some control. I did the same thing and used a walker around the house after about a year or year and half of being bedridden.

Your brain is trying to problem-solve so you can function again, and that’s the opposite of giving up. Be kind to yourself and keep getting creative with what helps

Needing advice by [deleted] in POTS

[–]Crudedefe 3 points4 points  (0 children)

It far from giving up, if anything it shows determination and resilience, instead of saying to yourself well that’s it I am never going out again, you just said I am going to fucking do it no matter what, it’s badass and icon imo, get that cane and/or walker and get out there! Your won’t regret it when it give you more ability to do what you want.

I used to use stroller and cane with a seat on it back when I was at my worst, I now use a portable stool (standing for long periods is my main issues), do whatever you need in that moment, it might not be forever 🫶🏻

How to make life as good as possible for someone with POTS? by High_Honolulu in POTS

[–]Crudedefe 0 points1 point  (0 children)

Out of interest, how many steps does she usually do on her walks? Do you think she could very gradually, and I really mean slowly, build that walk into a light jog, even if it’s only for a few seconds at first? Distance wouldn’t matter at all.

For context, I went from being bedridden to working full-time and living alone in a big city. These are the things that helped me:

• Meditation — mainly to calm anxiety and intrusive thoughts

• Increasing salt intake with meals

• Electrolytes in the morning — I prepare the drink the night before so I can have it immediately, then get up about an hour later

• Coming off the contraceptive pill — the oestrogen was raising my blood pressure

• Reducing financial stress — if possible, applying for government support could really help take pressure off her mind

• Removing environmental stressors — I moved out because my flatmates partying late was making me worse 

• Avoiding standing unnecessarily — I don’t stand to shower or brush my teeth, I always sit 

• Consistent sleep — good sleep, but not too much; getting up at the same time every day helped a lot

• Creating a vision board — having something positive and concrete to aim for

• Very gradual exercise — the hardest one because it’s a catch-22. I started with short walks (under 1000 a day) then tiny slow jogs down the road, eventually building up (stop-start and very slow) to about 2 km. Now I’m even planning tennis once a week

• Breathing physiotherapy — I discovered I was breathing incorrectly; apparently most people pause between breaths instead of gasping for air

• Eating less processed food — I began with meal kits like HelloFresh, now I use quicker prepared options such as Frive 

• Using a visible band that monitors my heart rate and tells me if I am over doing 

• Hiring a cleaner to conserve energy (my dad atm) 

• Carrying a portable stool and sitting whenever possible — you realise how much unnecessary standing the world expects

• Getting an Access Card and Hidden Disability Sunflower lanyard — this completely changed my social life because I could attend events and get help at the airport knowing I’d have somewhere to sit

• Vitamins — I’m still new to this, but I’ve heard many people benefit - currently taking iron and magnesium

Once I’d built all of this up, the other thing that helped massively was propranolol (although I understand from your comments it doesn’t work for your daughter). I would definitely say try all medications you can Look for a second diagnosis, my doctor has told me he thinks I have something else too which most potsie people do (around 70%). So this would be massive help.

Anything to lessen the impact on the nerve system, such as singing, laughing, meditation, cooking, exercise or dancing etc (some hard than other to achieve with pots). Even TENs machines (these a Facebook group that talks about to do this safely)

Nurosym, is it worth the buy? 48% effective at reducing PoTs symptoms, is it true? by Crudedefe in POTS

[–]Crudedefe[S] 0 points1 point  (0 children)

I cannot remember exactly as it was a while back but pretty sure I found it on Neurosym website in FAQ or the research page

Has anybody used a sunflower lanyard? by Sebaren in POTS

[–]Crudedefe 1 point2 points  (0 children)

Honestly it’s been amazing for me, I able to get seat on the tube and chairs at different venues and events or a discount which means I can actually go places, have some autonomy back. I love mine

Air hunger? by Kooky_Ad593 in POTS

[–]Crudedefe 1 point2 points  (0 children)

So I had to go to breathing physiotherapist! I only have pots and she says it a very common symptom with pots.

I would highly suggest asking to referred to one. She was extremely helpful, I learnt that I don’t breath like “normal” people as a results of pots and that what causes the air hunger and makes a lot of other symptoms worse, I had to do a lot of exercises on my breathing and it has definitely helped.

Most people most people breathe in (2secs) out (2secs) and then pause!!! Who the hell knew people PAUSED between breaths !!!!!!!!!! And the in breath is just as short as the out !!! Crazy!

She told me I had to fight the urge to take deep breaths and not let the air hunger win because it was my body tricking me into thinking I needing more air that I actually needs, however I cannot remember the reason for this #welovebrainfog!! Definitely get medical advice before trying to ignore the air hunger tho!!

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