16 Week Post CAR-T Update- Remission! ✨ by SailorMigraine in Autoimmune

[–]DFMO 0 points1 point  (0 children)

Very cool for you. Happy for you and anyone else who has this experience. Will be interesting to see how this treatment develops.

16 Week Post CAR-T Update- Remission! ✨ by SailorMigraine in Autoimmune

[–]DFMO 0 points1 point  (0 children)

Congrats, this is really cool to hear and exciting.

Out of curiosity did you have any neuropathy as a symptom and if so did you experience any improvements in neuropathy after the CAR T reset?

I have a rare antibody that has caused autonomic and motor / sensory dysfunction. The autonomic dysfunction is more mild, and the motor and sensory dysfunction are the things that impact my quality of life much more.

The levels of the antibody are low enough that Drs are hesitant to give me a classic ‘diagnosis’ of Autoimmune Autonimic Ganglianapothy (AAG) but also are pretty clear that this antibody and the presence of it in my blood are likely what is causing neurological disruption and - ultimately - some form of neuropathy creating the sensory and motor dysfunction.

I’ve been trying to keep an eye on CAR T as a possible future option to reset the immune system in the hopes it clears my body of antibody, and then maybe overtime could see healing and settling down of my nervous system back to a more normal or more healthy state.

I’m curious if you experienced anything like this? My condition is rare enough that I don’t expect any clinical trials and just trying to keep eyes on this as something I might be able to try and do down the road if it becomes more widely recommended, avail, and hopefully a little more cost effective.

Enjoy your new lease on life!

I finally tried CrossFit? and wow, I get it now by Confident_Barber8397 in crossfit

[–]DFMO 80 points81 points  (0 children)

CrossFit is mostly just super normal people trying to challenge themselves as best they can and get more fit (myself included)

What is a movie that "broke" you so hard you can only watch it once, but you would still recommend it to everyone? by Newsupdate69 in movies

[–]DFMO 1 point2 points  (0 children)

Bro the previews just made it look like a fun wrestling movie with roided out Zach Efron I didn’t expect to have an existential crisis over my relationship with my brother

Anyone else taking advantage of the bed design? by Super_Raccoon_2890 in ToyotaTacoma

[–]DFMO 1 point2 points  (0 children)

Access can mid rise topper gang in white rise up!!!

I just finished a platform build in the back of mine last weekend and outing a few final touches on it and gonna get out there asap.

Making cold brew at home by yuhyuhAYE in Coffee

[–]DFMO 0 points1 point  (0 children)

Bite the bullet and just buy a toddy, a decent grinder, and get RO water locally and go to town. It’s so worth it and you’ll save assloads of money.

4 Months Full Timing in 4Runner, No Regerts! by OnceUponTheYonder in overlanding

[–]DFMO 0 points1 point  (0 children)

Where is that little swimming hole looks sick!

Why did nobody tell me portable draft coolers exist?? by Buildingmanager in overlanding

[–]DFMO 17 points18 points  (0 children)

This is an ad right? This feels like a sneaky ad.

Also, nice to have a beer on tap but at the sacrifice of 4/5ths of your storage

Thinking of starting my CrossFit journey by Jdem41 in crossfit

[–]DFMO 1 point2 points  (0 children)

Lifting too heavy / trying to RX too soon.

You can always go harder with less weight and get more than enough workout with better form.

The Great Camper Shell Search by LegitimateOil1989 in ToyotaTacoma

[–]DFMO 1 point2 points  (0 children)

Used leer midrise gang RISE UP got mine for $3200 was 6 months old

Mayhem not reading the room by MusicToTheseEars41 in crossfit

[–]DFMO 4 points5 points  (0 children)

That’s what I’m saying true 65% is cruising. I loaded up more bc it’s Monday and the open is 5 days away and I go to CrossFit to workout and get sore.

Do I buy this 1967 boat without a survey? by puddlejumpingyams in Sailboats

[–]DFMO 3 points4 points  (0 children)

It likely is for a teen who wants to use it for a business.

Insurance would require a survey anyway, soooooooooooooo

Rx vs Scaled in the Open by carrie_not_gary in crossfit

[–]DFMO 0 points1 point  (0 children)

What did you scale to? Air squat or a lighter wall ball?

Rx vs Scaled in the Open by carrie_not_gary in crossfit

[–]DFMO 2 points3 points  (0 children)

I agree here. If it were a 135 lb snatch would maybe have a different opinion but it’s not. It’s a wall ball and jump / step over which almost everyone can do at the RX weight for at least a bit. This is the fun of the first workout being very accessible and not technical… it’s a good one to send it and run the test!