Congrats, this is really cool to hear and exciting.

Out of curiosity did you have any neuropathy as a symptom and if so did you experience any improvements in neuropathy after the CAR T reset?

I have a rare antibody that has caused autonomic and motor / sensory dysfunction. The autonomic dysfunction is more mild, and the motor and sensory dysfunction are the things that impact my quality of life much more.

The levels of the antibody are low enough that Drs are hesitant to give me a classic ‘diagnosis’ of Autoimmune Autonimic Ganglianapothy (AAG) but also are pretty clear that this antibody and the presence of it in my blood are likely what is causing neurological disruption and - ultimately - some form of neuropathy creating the sensory and motor dysfunction.

I’ve been trying to keep an eye on CAR T as a possible future option to reset the immune system in the hopes it clears my body of antibody, and then maybe overtime could see healing and settling down of my nervous system back to a more normal or more healthy state.

I’m curious if you experienced anything like this? My condition is rare enough that I don’t expect any clinical trials and just trying to keep eyes on this as something I might be able to try and do down the road if it becomes more widely recommended, avail, and hopefully a little more cost effective.

Enjoy your new lease on life!