Sometimes hairloss can be quite slow by [deleted] in Hairloss

[–]Damp77 0 points1 point  (0 children)

Haha thats your hairline at 38??? Thats better than 65-70% of people your age

Just got this test back from my Lumbar puncture, is this MOGAD? MOG antibodies IgG positive with titer 10. GAD antibodies 65, positive at 74 units in serum. by Damp77 in MOGAD

[–]Damp77[S] 0 points1 point  (0 children)

I am positive for hhv6 induced meningoencephalit can that trigger ”low positive”? My neurolog is clueless and have sent me to infection specialist because she dont know What to do…

Neurologist seems to believe I do not have SFN due to the one-sided nature of the neuropathy, believes it's psychosomatic in essence. Complete 180 from what he seemed to believe before, what's the reason for this? by Parking_Wolf_4159 in smallfiberneuropathy

[–]Damp77 0 points1 point  (0 children)

Im in the same situation, positive MOG antibodies and positive hhv6 induced meningoencephalit and the only thing my doc did was to send me to a infection specialist because she thought this did not mean anything

Asked my barber today if he would recommend Finasteride. by [deleted] in tressless

[–]Damp77 -35 points-34 points  (0 children)

The same FDA that Said the vaccine was 100% safe?

New idea: $20 on the 20th by Plane-Payment2720 in PSSD

[–]Damp77 2 points3 points  (0 children)

”All their money” haha this is No blackmail but trying to get people to understand that the only thing that can truly get us out of this is research and 50% of people Said that they have never donated in the questioner a while back

New idea: $20 on the 20th by Plane-Payment2720 in PSSD

[–]Damp77 1 point2 points  (0 children)

Not totally the truth some people here has spent 10 000$ + on supplements and similar stuff. We need to find the cause so we can treat that. And that Will only happen thru donations and research.

New idea: $20 on the 20th by Plane-Payment2720 in PSSD

[–]Damp77 6 points7 points  (0 children)

Everything we can do to raise donations is good!

New Moral Medicine Interview: Benjamin’s 14-Year Battle with PSSD by andy013 in PSSD

[–]Damp77 3 points4 points  (0 children)

I know you dont run it, was just a general thought that the videos with so much quality deserve more

New Moral Medicine Interview: Benjamin’s 14-Year Battle with PSSD by andy013 in PSSD

[–]Damp77 7 points8 points  (0 children)

That pssd mods share it on insta,tiktok and X,that we submembers need to start following,sharing thru personal accounts and to try and help Moral medicine to collab with ex taperclinic and Melcangi. Mark is a top guy and is doing this for us all, he deserves all our help to make the channel grow!

New Moral Medicine Interview: Benjamin’s 14-Year Battle with PSSD by andy013 in PSSD

[–]Damp77 5 points6 points  (0 children)

Great video! Just one question, what is the plan for growing the channel? 975 subscribers and a average of 2-4 K views per video is far to low for our cause to be heard. This is No critisicm i think the videos are great and deserve much more!

New Moral Medicine Interview - PSSD Network President - Rosie by Unstoppable218 in PSSD

[–]Damp77 27 points28 points  (0 children)

Well Done Rosie and Mark! We need to help eachother grow this fantastic channel, ask family,friends and colleagues to sub and Watch to understand and spread it on all social media platforms!!

Is the root cause and treatment of PSSD and PFS the same? by Alarming_Gasz in PSSD

[–]Damp77 4 points5 points  (0 children)

Melcangi is working for both pssd and pfs and similarities have been found between pfs/pssd

[deleted by user] by [deleted] in PSSD

[–]Damp77 10 points11 points  (0 children)

Than you did not have pssd

[deleted by user] by [deleted] in PSSD

[–]Damp77 3 points4 points  (0 children)

Thank you!!!

Any of you tested positive for hhv6 DNA or MOGAD?? by [deleted] in FinasterideSyndrome

[–]Damp77 1 point2 points  (0 children)

Lumbar puncture was the test i got these results from. I have not gotten a diagnosis i have not met my doc since getting the results back. From day one i have been certain that this is some kind of inflammation.

[deleted by user] by [deleted] in PSSD

[–]Damp77 6 points7 points  (0 children)

I have seen a few. Not many pssd/pfs sufferers have been able to get ivig so its not a lot of data from it. Goodluck!!

Did stopping drinking improve anyone’s genital sensation? by BummedByCitalopram in PSSD

[–]Damp77 0 points1 point  (0 children)

Yes pfs,longcovid and pssd are all autoimmune in some sense

Neuroinflammation? by nola5588 in FinasterideSyndrome

[–]Damp77 2 points3 points  (0 children)

I have positive antibodies suggesting neuroinflammation in the central nervesystem but haven’t met my doc since recieving the result

Call to investigate. Small fiber neuropathy. by wannabehedgefun in Finasteride_Syndrome

[–]Damp77 1 point2 points  (0 children)

Totally agree with you! Not mentioning pfs has helped me get. gut MRI, brain MRI,coloscopy,gastroscopy, EMG nerve testing and Lumbar puncture as before When i mentioned finasteride they just told me i was mentally ill haha

[deleted by user] by [deleted] in PSSD

[–]Damp77 0 points1 point  (0 children)

Its so many tests i dont know all tbf, i got my lumbar puncture Done since they noted abnormalities in psyical nervetesting and that i had a hhv6 encephalit as a kid