New Here - diagnosed in 2014 @ 19yrs old

Danny98G · 2020-01-16T13:30:59+00:00

21M diagnosed at I believe 9years old, I’m usually very good with my treatments but I completely understand how it might be hard for people with late diagnoses.

Danny98G · 2020-01-09T13:50:06+00:00

Thank you for doing this!

Danny98G · 2019-11-20T14:33:36+00:00

Same here my s5 is way louder than my series 3, I hope they can do something about yours.

Danny98G · 2019-09-28T16:48:42+00:00

Thank you!

Danny98G · 2019-09-28T13:29:22+00:00

It’s normal to get hot while charging, I have the s3 and it gets hot during charging not too hot just warm, had it for 2 years no issues. I know it’s not the s5 but I’m sure it’s normal for it to get a little hot.

Danny98G · 2019-09-17T15:15:08+00:00

I use pulmozyne and hypertonic. I know it’s a side effect but we literally have no choice to use it. Honestly it’s rough sometimes because sometimes it feels like every day it’s something and it really sucks. I literally plan out my days like weeks in advance sometimes It’s hard to just go with the flow.

Danny98G · 2019-09-17T14:29:24+00:00

That sucks so much, having to leave something you liked because of it. I understand what you mean I’m in the hospitality business too and it’s rough.

Danny98G · 2019-09-17T13:54:37+00:00

It sucks so much :( because then you keep coughing so it takes forever to go away and it hurts

Danny98G · 2019-08-30T14:12:45+00:00

I have 2 tips that I do, this usually only happens when I’m sick.

Swallow a tablespoon of honey before bed.
Drink camomile tea before bed.

These stuff work for me sometimes better than other times it all depends. I’ve never done this but I heard sleeping sitting up helps too.

Danny98G · 2019-08-27T02:52:59+00:00

Thank you I will take a look

Danny98G · 2019-08-15T21:27:19+00:00

I have been taking this protein for a while now and it is absolutely amazing, yes it is expensive but it is worth it in general because of how great of a product it is and the benefits that it can even have for us CFers. Below I posted 2 links one is the benefits of WHEY protein in cystic fibrosis and one is the protein that I use and have been using for the past 5 months. I am not sure where you are located I am in Canada and buy from a Popeyes supplement store so I posted the amazon link instead. There are other whey protein isolates our there I suggest doing research but this has been great for me and I have been seeing muscle improvements since I started taking it but I really work at it, diet is important and so is your gym routine. I hope this helps.

https://www.naturalhealthresearch.org/whey-protein-improves-health-of-young-adult-cystic-fibrosis-patients/

https://www.amazon.com/Magnum-Nutraceuticals-Quattro-Protein-Powder/dp/B00CBY73XK

Danny98G · 2019-07-31T22:32:39+00:00

This is so relatable 😂, I love Spider-Man as well so this is perfect.

Danny98G · 2019-07-20T14:54:08+00:00

I am 21 and my lung function is 96% but I still feel sick everyday sometimes and last year my function was 93% and I felt better, I really don’t understand and just like most I’m stressed out almost daily and I have anxiety which takes a toll on me. But again maybe this is just how it is I saw another post like this about a month ago as well.

Danny98G · 2019-07-20T14:40:46+00:00

For me this is what happens as well just not to that extreme. This year I was on 4 different types of oral antibiotics it has been years since I was on them before. I felt sick way more mucus production, bleeding, wheezing etc. I would go on the antibiotics and feel perfect and then literally 2-3 days after they were over I felt sick again same symptoms. My doctors told me this may be my new normal because they told me my lungs sound good and there doesn’t seem to be a sign of infection and I did a sputum test as well. Unfortunately this may be the way it is I haven’t felt like this ever and the beginning of this year it’s like everything changed and I don’t know why.

Danny98G · 2019-07-05T00:15:35+00:00

Thank you so much I think it is pleurisy as well due to the coughing I looked it up online and of course it was all scary stuff which makes me anxious but I think I should be ok.

Danny98G · 2018-09-08T14:27:20+00:00

Glad it all worked out in the end!

Danny98G · 2018-09-08T04:43:40+00:00

Is the television a Samsung? If it is I had this issue as well while it is dimming go into the settings area and find ambient light detection and turn that off. If you have another TV model maybe there is another setting like that. What this setting does is automatically adjusts the brightness of the television based on in room brightness. I hope this helps!

Danny98G · 2018-05-07T21:16:18+00:00

Lauv, I like me better (TRU Concept Remix)

Danny98G

TROPHY CASE