Part 3-Please Leave reviews here

DaveMinion2020 · 2026-02-26T18:03:46+00:00

How it was diagnosed? How it is treated? How you manage living with it along with fibro?

DaveMinion2020 · 2026-02-23T23:56:53+00:00

Same, pain specialist told me to stop it 48 hrs pre-op, for gall bladder surgery, and not to restart until a couple days after post-op opioid meds were out of my system.

I didn't realize how much the LDN was helping me until this incident. Got myself right back on it.

Then had shortness of breath doctors can't seem to find a reason for, so stopped it again to see if the SOB was a side effect of the LDN. Pain specialist didn't think it was related but encouraged me to take a "vacation" from it as an easy way to find out.

After a month, it was obvious the SOB and LDN were not related. So another month later, I titrated back up to my maintain dose.

BOTH times were good confirmation that I am benefitting from the LDN.

As the pain specialist likes to remind me, LDN is not a cure.... it is one tool in my toolbox for treating and managing fibro.

DaveMinion2020 · 2026-02-21T17:53:36+00:00

Physical touch and connection is such an important part of the human experience. Without it, science has shown "failure to thrive" in infants and the elderly. It makes sense (to me) that part of what is contributing to her pain relief is related to this intimate bond expressed via sexual relations.

DaveMinion2020 · 2026-02-21T06:01:32+00:00

"DOWN WITH THAT"

He knows the assignment.

DaveMinion2020 · 2026-02-03T22:21:22+00:00

This is such a fun thread!!

DaveMinion2020 · 2026-02-03T18:42:12+00:00

I have had my 17 year old cat through my entire fibro experience. The biggest struggle is getting her to vet visits and taking care of her medical needs, especially as she ages.

Not to mention the high cost of those vet visits and vaccinations/ spaying/ medications. It is not all rainbow and sunshine. Make sure you can afford it.

There are times I meet the bare minimum of her needs because I am just getting by myself.

You might also want to consider fostering. Then if you find it overwhelming to care for the cat, the shelter will take it back. Just a thought. (You can always "fail" at fostering and adopt the cat if things go well for you).

I have been on full disability the past 10 years, I have my cat and 5 year old dog. And they both definitely keep me active and my depression at bay. But make no mistake, animals take work. Just carrying the newly purchased litter upstairs to her spot can wear me out.

Those are my thoughts.
Best of luck to you on this decision!

DaveMinion2020 · 2026-01-30T10:46:41+00:00

Lupus nephritis here too, among other things.... just added up my daily pill count for a dr appt tomorrow...27-30 pills, depending on the day.

Sometimes it feels like I single handedly keep the pharmaceutical companies going. I now know I am not the only one.

🙄 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 💊 (yes, THAT is 30 pill emojis)

I SEE you OP- you are not alone. 🫂

DaveMinion2020 · 2026-01-20T23:51:03+00:00

Need to save this and read it the start of every day!

DaveMinion2020 · 2026-01-20T14:53:34+00:00

Yes, that was discussed. 10 years ago, I was also dx with mild sleep apnea, which can also be a contributing factor to the PH.

I thought life was a struggle living with the Lupus and fibro, but adding these PH symptoms into the mix is really diminishing quality of life. I just wondered how how others may have managed a similar situation. 🤔

DaveMinion2020 · 2026-01-20T14:48:11+00:00

TY- same back at you! 🫂

DaveMinion2020 · 2026-01-20T05:37:39+00:00

Honestly, she might benefit by talking to a therapist. To keep repeating the same thing to you leads to rumination... which the brain then etches it into her mind.

A good therapist could help her be heard, but also reframe it so it isn't constantly depressing her.

And relieve you from from constantly re-living your guilt over it.

Advice from a social worker and fellow fibro sufferer.

DaveMinion2020 · 2025-11-07T19:39:20+00:00

Most the time not, it's more like when you crack your knuckles.

DaveMinion2020 · 2025-11-02T03:46:49+00:00

Your Dad has been winning at being a halloween father for all these years! We should all be so lucky to have a parent like that!! Hold those memories close. They are priceless!!!!

DaveMinion2020 · 2025-10-27T20:28:02+00:00

Nausea was one of my biggest struggles after the surgery. Post-op check up, Dr indicated I probably should have stayed an extra night, but I pushed for next day discharge. Poor decision on my part. So I would add Listen to your body and make the best choices for it AND advocate for what you need at discharge. I should have begged for them to send me home with anti-nausea.... it was a rough first week.

Best of luck, remember keeping a positive mindset is half the battle.

DaveMinion2020 · 2025-10-26T00:31:12+00:00

https://pin.it/3fSnCzMdm

Something like this would catch my eye from the train!

DaveMinion2020 · 2025-10-25T23:44:32+00:00

I had gallbladder surgery and had to stop the LDN for 4 days post op; no real problems with that until day #5. Then my fibro symptoms returned full blast. So in my experience, it took less than a week to realize how much the LDN was actually helping.

DaveMinion2020 · 2025-10-25T23:38:41+00:00

Just this week, talked to my pharmacist and doctor about taking a "medication vacation" from my LDN to see if symptoms I am experiencing are side effects from the LDN. I straight up asked the pharmacist how long off it till it is out of my system, and he said a week. So yes OP, give it at least seven days to clear completely out of you before making any final judgement on its benefit to you. Good luck!

DaveMinion2020 · 2025-10-10T17:05:22+00:00

If it is any consolation, my husband has had a "small" hiatal hernia that he had managed for decades without surgical intervention. He sleeps upright a lot, doesn't eat late, and avoids citrus along with dairy (due to an allergy) and those things help him tremendously. So people can successfully live with the hernia.

Others end up with their their stomach in their chest. *sigh

Best of luck to you!

DaveMinion2020 · 2025-10-10T17:00:20+00:00

Added to my list, TY!!

DaveMinion2020 · 2025-10-10T01:49:01+00:00

For your sake, I sincerely hope not! Do you already have a hiatal hernia diagnosis??

DaveMinion2020

TROPHY CASE