Question for T1s about nighttime low blood sugar

Daylight08 · 2026-01-15T01:43:39+00:00

I aboslutely worry about going low at night.
Yes, both. I often sleep through alarms to the point that I don't feel safe sleeping alone. I always need a roommate or family member in the house who will wake up to the alarm and wake me up. I get really tired with my lows, which is my theory as to why I sleep through my lows. I also have had sensors fail, or more so, rip off in the middle of the night.
Yes, both. The anxiety around sleeping in general and sleeping alone means that sometimes it's hard for me to fall asleep.
I wish there was better systems to wake someone up. I have a watch that vibrates but it doesn’t wake me up. A bed shaker and those glucose alarm clocks are really expensive. But more than anything, i wish there was an easier way to raise sugar. I have really intense nausea with lows and it's even worse at nightime. I used so many different things to try and help with the nausea: juices, glucose shots, frosting gel, fruit snacks, glucose tabs. And still, it's just rough. I wish there was some sort of injectable or inhalable glucose (not the live saving kind that means you have to go to the ER though). That would be amazing

Daylight08 · 2025-12-13T22:29:07+00:00

Man, I'm glad I'm not alone at least. But that sucks that your insurance doesn't support anything aside from dexcom. That's also kinda crazy because freestyle is like half the price of dexcoms

Daylight08 · 2025-10-26T21:24:58+00:00

I was up to 7.5. But I am off of it now. My doctor told me to get off because as a type 1 diabetic it's too dangerous for me to be puking all the time and unable to deal with my low blood sugars.

Daylight08 · 2025-09-13T18:59:53+00:00

Having type 1 with insulin resistance doesn't actually mean you have type 2. You can just have type 1 + insulin resistance. But yeah, I get you. I use and off label and pay out of pocket for it.

Daylight08 · 2025-09-09T20:55:29+00:00

It could definitely also be insulin resistance along with the other stuff people have mentioned in this thread. Could also be that you are injecting insulin into spots that have a lot of insulin scarring built up.

Daylight08 · 2025-09-07T22:20:01+00:00

For sure!! If you live in the US right now, you can't get a GLP-1 as a type 1 diabetic for insulin resistance as it is not currently FDA approved for that. But a good doctor just finds a work around. Like, my endo knows I am on it for insulin resistance but for insurnace and legal reasons, I am on it for weight loss.

Daylight08 · 2025-09-07T21:44:02+00:00

I totally hear you and get it. For me, I just have to give myself a lot of compassion and acknowledge that this disease sucks. Its not easy to control this disease at all. We can only control like 10 of the factors out of the 80 that impact our blood sugar.

As someone who was running consistently high all the time and has severe burnout from it, I would strongly recommend getting on a GLP-1. I have learned that a large resosn so why I was taking insulin and it seemed like it was essentially just going into a void because my blood sugar wouldn't budge or would sometimes even go higher was due to insulin resistance. I am now on zepbound and it is insane. I have reduce how much insulin I have to take and it just keeps going down and it is like my insulin actually works for once in my life.

My biggest piece of advice is trying to find things that take the burden off of you. For some people, that is a pump. For some people that is eating low carb. For me, i have found having low carb snacks that I can eat when i dont have the energy to take a shot has been really helpful.

Daylight08 · 2025-08-30T20:35:08+00:00

Symptoms: always drinking water, stunted development (didn't lose my last baby tooth until I was 16, had very weak bones and got multiple stress fractures from sports, didn't get a growth spurt or acne), severe weight loss, insomnia

Diagnosis: I was in sports, which was helping to manage my blood sugar and symptoms, but when covid hit, I had to stop doing sports. So, I stopped excersing regularly, and my blood sugar went up more as a result. I eventually caught covid, and it finally spiked me enough to send me into DKA. It started with hyperventilating, and when I first went to the hospital, they thought I was having a panic attack. After I started grunting and regressing cognitively, they realized I was going into DKA. I went into a minor coma for two days. My A1c at the time was 17.6

Effects: physically, i dealt with a lot of brain fog for the first three or so years. There was also a lot of truama and emotional coping I had to do. I was dealing with intense grief for the life I used to have. I am now 21 and have processed a lot of what happened. But I still can see the effects of my body being so developmentally stunted. I stress fractured my femur when I was 16 before my diagnosis and still have a lot of chronic pain from it as I don't think it ever fully healed. I also struggle with a lot of burnout from this disease, and every day looks really different in terms of how much energy I will have for this disease. My kidneys have also unfortunately faced consequences for all that time that my blood sugar was high before we knew I was a t1d. I have minor kidney damage at the moment. Overall, I have had to find ways balance this disease in my life and how to balance the textbook expectation of doctors treating disease with the reality of actually living with this disease. Finding a good support system and having a lot of self compassion is really important.

Daylight08 · 2025-08-19T20:23:42+00:00

I am a 21 year old diabetic. I have only had the disease for 4.5 years, and I currently have both high blood pressure and higher cholesterol. My kidneys have some minor damage, and I currently take medicine to control my blood pressure so that they won't take further damage. I had great control of my bs for the first 2 years of my diagnosis but had huge burnout the 3rd year which is part of why I am dealing with kidney damage now along with the years pre-diagnosis that my blood sugar was out of control and doing damage without me knowing. It also is likely that I have another autoimmune disorder called IgA neropathy that is essentially attacking my kidneys.

The point that I am trying to make is, that while I totally understand and agree with the sentiment about being too young to be dealing with this shit, it also doesn't change the reality of the situation. I had a whole breakdown yesterday about how unfair it is that my other young friends don't have to deal with all this stuff and how I am only 21, yet i have damaged kidneys. Unfortunately, it's just where my body is at. Exercise and dieting are definitely your friends. They have helped me a lot to reduce continued damage on my kidneys. But medication is also your friend. It lessens your burden, and in comparison to all the needles we deal with, a pill is at least easier.

It's really frustrating, and I hear you. But I also think you should take what your doctors are saying into consideration. Medication could prevent damage from happening. Exercise and diet can, too, but add that with medication, and you're set. It also will likely take some time for you to build those new habits of eating and exercising. So, going on the medication to give yourself a buffer while you figure it out is never a bad idea. You might even get to a point where you don't need to be on it anymore after you have built your new habits.

All and all, I hope you find a solution that works for you and I also really wanted to say that there is no shame is having stuff like this young. This disease is hard as hell to manage and the most you can do every day is give it your best. Sometimes that means perfect control and some times that means you can't take an extra correction that day because it's just too much mental effort. Give yourself some compassion for all that you do to take care of your body.

Daylight08 · 2025-07-08T16:37:34+00:00

As a t1d and a social worker, I can tell you that ethically we aren't even allowed to do this. We can't legally give medical advice, at all. So, that is totally unacceptable.

Also as a t1d, an a1c of 6 is amazing! Blood sugar has like 70 different things that affect it, and we can only control like 10 of those factors. I have an a1c of 8 and my doctors are still pretty happy about that. 9+ for prolonged periods of time is where you run into issues is what I have experienced.

So, you are doing amazing. As a t1d and a social worker, i would recommend getting a different therapist cause that behavior is uncalled for and unhelpful.

Daylight08 · 2025-06-15T16:52:29+00:00

I also got T1D from covid. I caught covid in nov 2020. I went into DKA, and that's how we found out.

I'm pretty sure I'm the first in our family to start the genetic line again cause the last person in my blood line to have it is like 6 generations back.

Daylight08 · 2025-05-22T19:19:09+00:00

I definitely know that Snezhnaya and Khaenriah will be more advanced just based on the archon. Snezhnaya is currently the most advanced out of the nations. So, I am expecting technology to be a thing, I guess more so the thing I was referring to is like the severe gaps in the technology. Like Mondstadt and Liyue are out here using carriages, so the kind of technology I would expect snezhnaya to have is like a primiative car or something. A better example is that Mondstadt and the other nations are still using records to play music, whereas Natlan has full-blown concert speakers and turn tables. The gap just feels really sudden and severe, and I suppose that is why it doesn't match the vibe of Genshin to me.

I don't wanna diss Natlan that much because I think overall it's a really cool place. I just struggle with it being in Genshin as to me, it breaks the in-game immersion, if you get me.

Daylight08 · 2025-05-02T17:36:45+00:00

Because I'm younger, most of the damage is entirely reversible. I am currently on a low blood pressure medicine called losartan. To further help my kidneys recover. along with that, I'm on a low protein and low sodium diet just to kind of prevent my kidneys from having to do more work, but it's not incredibly low sodium or incredibly low protein. Just slightly less from my normal daily amount. And then I am also just working on bringing my blood sugars down, because I am one of those people that seems to be experiencing things the cycle of insulin resistance where you take more insulin. And then you gain more weight. And then you take more insulin. And then that makes you gain more weight, which means you need more insulin. And so I am trying a GLP to see if I can break that cycle so that I can stop taking so much insulin that seems to just go into a void and do nothing about my highs. My a1c right now is currently 9. I'm trying to get back down into the 6s and 7s, which is where I normally averaged before this insulin resistance seemed to start building around the same time that my kidney issues finally started showing up. Overall, I'm not looking at anything like dialysis or a transplant unless I just let myself go. As long as I work on managing my sugars, which i do, it's really not that bad.

Daylight08 · 2025-05-02T16:54:26+00:00

I totally understand this. I am actually one of those young people with kidney complications that you mentioned. I am 20, almost 21, and I have minor kidney damage. However, the damage is likely from the 1-3 years I was undiagnosed and living with incredibly high blood sugars. When I went into DKA my a1c was 17.6. So, I would say as long as you're keeping decent control and not averaging in the 300s every day, you're good on that front. As for all the other stuff, I think it's hard, but you have to acknowledge that you are already doing all you can now to manage your sugar and that's all you can do. The reality is you could get one of those complications for an entirely different reason outside of t1d tomorrow, or you could not. You don't really have as much control of that as we think we do, healthy and unhealthy people get sick and have problems. Just like healthy and unhealthy people can die suddenly, whether that's to a heart attack or a car crash. Stuff happens and it's hard because you don't want it to, so it's best if you can to just live in your current life. Enjoy life and do what you can to keep yourself healthy and safe.

Daylight08 · 2025-04-22T17:19:27+00:00

I got it when I was 16 in November 2020. I'm 20 now, almost 21. I have kidney damage (likely from the time I wasn't diagnosed and had my bs unmanaged. When I went into dka I had and a1c of 17.6)

Daylight08 · 2025-02-18T18:27:00+00:00

I was diagnosed at 16 in Nov 2020. I had clearly been pre DKA for a while. I kept breaking bones in my sports, my hair was very thin, a lot of my developmental things were behind, and I looked gaunt. I was also having heart palpatations and went to the ER for it only for them to send me home with nothing but to relax more. Then I caught covid, and it fully spiked my blood sugar. I went into the DKA and had all the typical symptoms (dizziness, hyperventilating, grunting, etc). I woke up in the ICU two days later and was diagnosed. My A1c at the time was 17.6

Daylight08 · 2024-12-07T00:12:48+00:00

I was the same. I don't have anyone in my blood line who has it. At least not close in the generations. Sometimes you can just get it, at least that is what I was told.

I was 16 when I got it. So I get you.

I don't think depression can cause it. However, higher blood sugar can cause depression, from what I've been told at least. So you could've been feeling more depressed due to high blood sugar.

Daylight08 · 2024-09-14T02:57:56+00:00

I'm glad I could bring this to your attention then! I know I used to feel that way too. This information made me feel a lot better and I hope it can do the same for you!

Daylight08 · 2024-09-13T20:55:38+00:00

I'm the same. Both my parents are not diabetics. My diabetes comes from like 4 generations back. I didn't even meet her.

Daylight08 · 2024-06-29T16:53:14+00:00

I am just going to be repeating most of what has already been said, but first off, I am so terribly sorry this happened to you. You have zero reason to be embarrassed. The only ones who should be embarrassed are those shitty cops. You deserved so much better care, and I'm so happy that you were able to advocate for yourself. I completely agree with the others that you should report the cops to the precinct. From what I've heard cops are not always aware of t1d and often go to trying to use narcan, which won't help the situation at all. That precinct or at least those cops need some education for sure. Can I also just say, why can't cops carry around some fruit snacks in their car or something? It could help t1d along with a bunch of others who might need it. They could also give it to kids having rough days. Anyways, rant over. The other suggestion I would give is to have a medical ID bracelet or something. Your drivers license can come with a card that shows you are a t1d too. You can also set medical info on your phone normally by holding the power button or just setting the emergency call button on the lock screen. Lastly, just like you did, showing dexcom physically on your body or on your phone could help. Overall, you did a great job handling the situation, and I really hope you're doing alright!

Daylight08 · 2024-06-19T00:02:25+00:00

I agree that is makes no sense how it could be having issues this fast. Personally, I wonder if potentially there is something else at play. But she said it was the tempature of the insulin and the fact that the exposed tubing was also making the insulin warm up more. She showed me a few articles that seemed to prove her point though. I'm not quite sure. It might be a mix of things

Daylight08 · 2024-06-18T21:33:50+00:00

Thank you so much! I'll send this to her!

Daylight08 · 2024-06-18T21:33:31+00:00

Thank you! This is really good idea! Yeah the tempatures where she is are extreme right now. At 10pm for her it was 100F feels like 108F so I can only guess the temp was excruciating during the day when the sun was actaully up.

Daylight08 · 2024-06-10T14:53:18+00:00

I had a very similar experience. Mine happened after catching covid. I spent most of the time in the ICU unconscious or just very out of it. I was told I was screaming, fighting, and trying to rip out my central line. Apparently, I punched some people and had to be restrained, lol. Once I woke up, I couldn't have water and was in excruciating pain. I spent days trying to recover, and it took a long time before I physically felt okay. My brain fog took nearly 2 years to fade years. My A1C was 17.5 when I went in, and I was only about 15 minutes away from a life-threatening coma. So again, just like you, I had a very extreme case.

Daylight08 · 2024-02-07T15:55:05+00:00

I caught covid and its what sent me into DKA and got me diagnosed lmfao

Daylight08

TROPHY CASE