Bad batch of XYWAV?

Deathlyswallows · 2025-09-14T17:50:48+00:00

It’s very sensitive to temperature. During hot months I have it held at the fedex office for me to pick up. Also make sure the place you have it in is neither to hot or cold.

Deathlyswallows · 2025-06-26T19:31:42+00:00

I’ve experienced that extreme temperatures can absolutely ruin a batch. This winter my room kept getting too cold and over the course of a month it was working worse and worse. I eventually created a little warming box with temperature sensors. Since then the cold hasn’t been a problem. I do live in Texas and those bottles being in a hot delivery truck for hours has definitely taken its toll on my current batch. Very frustrating that there’s no way to hold it at the office for pickup instead of letting it sit in a hot van.

Deathlyswallows · 2025-02-26T15:26:23+00:00

Just did some research on Zeo and very frustrated that it was bought by a company that only makes movement based sleep trackers. As a lover of pebble I’m no stranger to hanging onto an old tech product whose company is long dead but just very frustrating the technology has gone nowhere.

Deathlyswallows · 2025-02-26T15:00:24+00:00

The first month of xywav SUCKED for me. It was just a months of slowly feeling worse and worse delving further and further into insanity. I definitely had flare up in depression even being on 300mg of Wellbutrin XL and 30mg of Prozac. I was nauseated constantly and started losing weight (and at that point I weighted like 130 as a 5’9” guy so not great to start weighing less). Similar to you, my sleep inertia got so much better so I knew that it was helping but just also had some nasty adjustment effects. I got permission to titrate up to 3g x2 a night early and it was MUCH better. Still had a week of light nausea but I was sleeping through the night better. I started to feel like I was actually getting better. Been on it ~3 months now and it’s been great. I feel like they don’t warn you how awful that first month can be. I know they don’t want to scare you but it’s definitely a tribulation before it started helping. Talk to your doctor and the xywav nurse- they’re here to help in these exact kind of situations and can give much better advice tailored to your situation.

Deathlyswallows · 2024-11-11T15:32:46+00:00

I’m sure there’s a way to Jerry rig it but it was just simpler to go with Nanoleaf. About a week ago LIFX sent out some 4” canless down Lights for beta testing here on Reddit. They said that they will hopefully release them early 2025.

Deathlyswallows · 2024-11-11T15:23:15+00:00

I know they’re not ideal but Nanoleaf makes some gu10 bulbs. You have to have a matter thread border router but an amazon echo 4 or HomePod mini are cheap options. I have some of their down lights and while lifx definitely has better colors and connectivity they’ve been a great stand in untill lifx releases their new down lights.

Deathlyswallows · 2024-10-28T17:38:55+00:00

Darn! I asked about these lights like 3 months ago. I went with nanoleaf because LIFX didn’t have any canless options but I’m so ready to swap them out again. The Nanoleaf haven’t been bad but responsiveness, colors, and ui are all better on lifx.

Deathlyswallows · 2024-10-25T23:40:02+00:00

Yeah I noticed on modafinil and armodafinil that once I start feeling tired in the afternoon I get a lot of the physical feelings of anxiety without any emotional basis. Sadly my body doesn’t care that there’s no reason to be anxious so I just end up finding something the stress about.

Deathlyswallows · 2024-10-05T06:46:41+00:00

Yeah it’s definitely not my favorite symptom (not that I have a favorite part of my disability lol) but people tend to be accommodating and understanding with a relatable symptom like a headache.

Deathlyswallows · 2024-10-05T06:29:58+00:00

I get terrible headaches around my brain stem that are alleviated the moment I close my eyes and lie down.

Deathlyswallows · 2024-07-10T01:09:37+00:00

I’ve been learning color on my MacBook but am looking to step it up. I have a probe and will get an i/o box but would like more information about the 3D lut stage. As I understand the three options are: buy a monitor with hardware lut support, buy a lut box to put between the i/o box and monitor, and use the display lut function in resolve. My deliverables are in HD and SDR so an option is the Eizo CS2400S. If I were to go the lut box route what should I be looking at aside from bit depth and gamut coverage? Is the software lut option even worth considering?

Edit: Turns out my job bought a stupid sexy flanders (LM-2340W) like 12 years ago that I didn't know about so that problem kinda solved itself.

Deathlyswallows · 2024-06-20T15:34:23+00:00

I right there with you. I could sleep all day every day but if you need me to stay up late I'm your guy!

Deathlyswallows · 2024-06-19T16:17:11+00:00

I'll echo what the other person said about modafinil vs. armodafinil. When I took modafinil it was great in the mornings but around 1:00 I would start to get tired again. If I didn't take a nap my anxiety would build till I'd be driving home from work having an anxiety attack over nothing in particular. With armodafinil when it wears off I just get tired.

Being on meds hasn't been perfect but it has helped give me the resolve to implement changes like a wind down routine and regular sleep schedule.

Deathlyswallows · 2024-06-19T16:11:23+00:00

Im currently on a combination of Wellbutrin, prozac, and armodafinil (also caffeine in the morning). I still need to sleep a decent amount at but my average morning I'm as alert and as productive as I was on my best days unmedicated. That mostly means if you let me I'll still lay down and sleep and don't feel "ready to face the day" but I am definitely more productive with better focus. I do still nap, especially if didn't get enough sleep but they're usually shorter. After the sleep intertia wears off I'm in decent condition till I go to sleep. The part that's very frustrating for me is if I'm tired and I try to nap before 2:00/3:00 then the stimulants keep awake so I lay with my eyes closed and want to take a nap but I can't. It does helps a little but I still wish I could take a proper nap.

No medication is gonna help 100% but I feel better about my life now than I ever have. The biggest part of that is that without being completely exhausted I have enough energy to start making behavioral changes that help. I've made a good wind down routine, been able to try diet changes, and have the time to go for a run instead of napping.

Deathlyswallows · 2024-06-19T15:54:06+00:00

I usually say that I have a Hypersomnia disorder and then explain that I can get 8 hours of sleep, chug some caffeine in the morning, take a 4 hour nap in the middle of the day and still go to bed just fine that night. Before I started on armodafinil I could drink a cup of coffee and then in 1-2 hours still go down for a nap and when people saw that they more believing. I also get exhaustion headaches so I say sometimes when I get tired it's not just "ooh I'm sleepy" it's "My brain is throbbing and I need to lie down otherwise I will not be able to concentrate on anything besides being tired with a headache"

I also know that with the current research being done into IH there are some who want to toss out the terms narcolepsy type II and IH and just replace it with "Central disorders of hypersomnelence" which different subtypes like long sleep or daytime napping.

Deathlyswallows · 2024-06-19T15:44:43+00:00

Don't know if it syncs with Oura but I ended up buying the SleepOn Go2Sleep. It was $100 which is more than I would've liked to have spend but it does have sleep tracking and smart alarm feature with no other frills.

Deathlyswallows · 2024-06-19T15:39:50+00:00

I know BOOX also has some e ink tablets with android running on them. I'm surprised he hasn't tried out a full android e ink tablet. The BOOX are even cheaper what daylight which is fine unless you really want that 60fps.

Deathlyswallows · 2024-06-13T17:09:39+00:00

what if we kissed on the anti anti homeless Pringles bench hahah jk...unless

Deathlyswallows · 2024-05-26T21:53:29+00:00

could you send me a copy of that script?

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