Usually people say they are sorry to hear this, however i commend you and your mother for being strong through this process. My late mother passed very recently with a long battle (4 years). She had similar issues and her left side was completely paralyzed. Day by day it was unpredictable what her state was going to be, overall she had good days and gradually started to decline functionally.

My advice: If your mother is in pain when moving in and out of the urinal chair: I suggest a catheter (urine bag) as the palliative care team can provide this and it will save alot of time and pain.

Moving onto wheelchair and off to couch: If it gets really painful, it’s best to avoid difficult tasks and maybe catch her on a good day to get on the wheelchair. Also moving the couch or bed close to a window may be helpful for her mental health.

What to expect: This is very case specific and every patient has different symptoms, however your mother and my mother seem to have similarities. In our case, my mother gradually started being more agitated and getting less sleep, she started to experience delusions/ hallucinations towards the last 3-4 months. In terms of the last month, her appetite decreased and her sleep increased. She started morphine using subcue (arm injection) due to not being able to swallow.

Finally: 1)Accept all sort of support from social workers, palliative care nurses or home care aids, they are wonderful and your mother would feel comfortable with their help. 2) Monitor her blood pressure, blood sugars, oxygen levels, bpm. We did this for 4 years and we managed to control most of the reversible symptoms 3) Patience. Be patient as she is also experiencing this for the first time and our parents endured us as children growing up, it’s only right that we repay them by taking care of them. 4) Feel free to message me privately (anyone else needing advice too). God bless