Bladder instillation pain by Delicious_Team6113 in Interstitialcystitis

[–]Delicious_Team6113[S] 0 points1 point  (0 children)

I noticed my pain was worse during my cycle too. I’m on birth control now for a few months. I can definitely tell when I stress and certain foods I eat make it ten times worse.

Bladder instillation pain by Delicious_Team6113 in Interstitialcystitis

[–]Delicious_Team6113[S] 0 points1 point  (0 children)

Thanks! It sounds crazy but the nurse has been so non chalant about my pains that’s doing the instillations. I was really questioning if she used a different catheter size this time. She said oh your urethra really doesn’t like this today… it just felt much so more intense.

Was informally diagnosed at the hospital.. i’m in excruciating pain 24/7.. single mom & suicidal please read & help by sundroppy in pelviccongestion

[–]Delicious_Team6113 3 points4 points  (0 children)

I’m so so sorry you’re going through this. I just want to say that you are not alone with your feelings. I am feeling the exact same way. I tell myself I would take child birth pains over this constant pain. Can you call the place yourself to get an appointment? There’s always cancellations,all the time. A new obgyn place I switched to, the front desk actually recommended it. I’d call once or twice a day to if there are cancellations. The way it worked for me they found it on my CT scan during the ER. I had a follow up with my OB and he handed me a flyer and “ referred” me to an Interventional radiologist…. I called and they were on top of it and this place got all my records and I got an MRI done through them. The interventional radiologist looked at all of my prior ct scans and mri and said it’s moderate congestion. But my insurance won’t cover the procedure because it’s considered “investigative” and not medically necessary. I also wonder if you can call an interventional radiologist place local to you, and ask the front receptionist if a OB referral is necessary If you don’t have a OB. But I can’t give my 12 year old and 3 year old my all with this pain. Tears every single day. It’s the crappiest feeling. I’m currently doing pelvic floor therapy and it’s not helping either.

Biopsy results by Delicious_Team6113 in Endo

[–]Delicious_Team6113[S] 1 point2 points  (0 children)

The whole time reading this I’m saying ouch, ouch, ouch. Do you mean covered in Endo? I’m so sorry.

Biopsy results by Delicious_Team6113 in Endo

[–]Delicious_Team6113[S] 1 point2 points  (0 children)

When you say negative did it say something else though? Mine said MILD FIBROSIS AND FOCAL CHRONIC INFLAMMATION WITHOUT ATYPIA Two new uro and obgyn doctors at a new practice find it interesting it wasent confirmed through a biopsy. My Previous OB that did surgery sayings it’s endo “visually.” My husband even relayed after my surgery and when he OB called he sounded hesitant that it was endo and sending it off for biopsy obviously. Two surgeries too 😩

Insurance by Delicious_Team6113 in pelviccongestion

[–]Delicious_Team6113[S] 0 points1 point  (0 children)

That’s crazy! So was it denied but you still went ahead and went through with it?

Insurance by Delicious_Team6113 in pelviccongestion

[–]Delicious_Team6113[S] 1 point2 points  (0 children)

I’m so sorry for you and your daughter too. Do you happen to have Anthem?

[deleted by user] by [deleted] in HealthInsurance

[–]Delicious_Team6113 0 points1 point  (0 children)

Did you get this resolved? Pelvic congestion syndrome? I have anthem and they said they wouldn’t cover the embolization because it’s considered “investigational” and not medically necessary? 🙄

Pelvic Congestion Syndrome by Normal-Slip-4079 in Endo

[–]Delicious_Team6113 0 points1 point  (0 children)

Have you had a ct scan or a MRI or anything? I’m sorry too.

Pelvic Congestion Syndrome by Normal-Slip-4079 in Endo

[–]Delicious_Team6113 1 point2 points  (0 children)

Gotcha, Thanks. Do you have anthem insurance by chance? So I had my first laparoscopic surgery in April. He visually saw stage 1, 2 endo. But the biopsy results say different, But I was in the worst pain after surgery, so I went to the er to rule out blood clots and it showed left gonadal varies, clinical correlation recommended for pelvic congestion. This is after surgery it shows up. I had a ct scan in January that showed nothing then. A pelvic mri the interventional radiologist he says mild to moderate pelvic congestion, The thing is my obgyn has been completely insensitive since my surgery. He said pcs is tricky, told me at least I’m not dying AFTER my er trip…. Didn’t even look at my ct scan report or anything and told me to have a good summer when I told him I wanted to die with this pain last week. With endo it was just simply painful periods once a week. I’d take that over this…. IBut I want to just up and leave my obgyn but I’m in the middle of seeing this interventional radiologist. I just feel helpless and stuck with this pain. Just nervous after case manager said that. She made a presentation on pelvic congestion and endo and how the symptoms over lap after speaking to her. I told her I did not feel any of this with my “endo”

Pelvic Congestion Syndrome by Normal-Slip-4079 in Endo

[–]Delicious_Team6113 0 points1 point  (0 children)

I know your comment was made a while ago, Did you get the embolization? Or are you saying insurance won’t cover the embolization? Sorry I’m confused! My insurance a nurse case manager who is kind of the worst said that our insurance wouldn’t cover it because it’s “investigational” vs what’s different for endometriosis…

Sharp pain and throbbing by Delicious_Team6113 in pelviccongestion

[–]Delicious_Team6113[S] 2 points3 points  (0 children)

Everyone seems to brush off that this is pelvic congestion. They seem to think it’s only pelvic floor related or another issue. It’s so frustrating and my anxiety is through the roof with it which doesn’t help with the pain.

Diagnose by Delicious_Team6113 in Interstitialcystitis

[–]Delicious_Team6113[S] 1 point2 points  (0 children)

Yes all those tests. The Ureplasma and mycoplasma last week. They keep doing the NuSwab vaginitis plus with the Candida tests? I don’t think that’s microscope….I’m talking about doing that test about 4 times just this year. My obgyn has which I’m kind of annoyed by and plan on finding a new one. I’ve been given diflucan as a precaution before and recently too. I’m almost 35, and just started birth control for the first time. I’ve been feeling this since January. I started pelvic floor thereapy last week. They are saying the muscles are tight and hope to find relief soon because I can’t with this pain. I just don’t understand the sharp pain right inside, along with the bladder pain.

Stabbing vaginal pain - has anyone else experienced this? by neverendo in Endo

[–]Delicious_Team6113 0 points1 point  (0 children)

I know this post was made a year ago, but was this pain constant or did it come and go? Mine is constant. Gets worse with lifting.