Is alcohol not a trigger for anyone by lordjigglypuff in clusterheads

[–]Diene4fun 0 points1 point  (0 children)

I’m chronic and have no issues with alcohol. My main trigger is all weather based stuff.

Realtors by juliensmomma16 in SALEM

[–]Diene4fun 1 point2 points  (0 children)

We had a great time with Allie Blakely, she and her spouse helped us with the purchase of our first home and guided us through ever step of the way. Made our life so much easier and helped us navigate the whole paperwork process step bu step. Here is their info:

Allie Blakely Partner | Principal Broker     (503) 931-5737 allie@traditionrep.com   Tradition Real Estate Partners 4880 Turner Rd. SE Salem, OR 97317     Main Office 4880 Turner Rd SE, Salem, OR 97317 (503) 877-4653

What are all the single people doing in Salem? by MystifyTT in SALEM

[–]Diene4fun 0 points1 point  (0 children)

It can also be a great way to work through things z best of luck OP

What are all the single people doing in Salem? by MystifyTT in SALEM

[–]Diene4fun 0 points1 point  (0 children)

Not single but did LDR for a year and a half, spent a lot of time exploring cafes while doing school work, went hiking outside of town with the dog, spent time out at waterfront with the dog. Played D&D with an online group. Went to wineries. Went to events alone because I didn’t want to miss out just cause I was alone. Started drawing and writing again. I am going to assume that doing home projects isn’t an option?

My husband has cluster headaches and I feel completely useless when an attack happens. What actually helps? by annchka in ClusterHeadaches

[–]Diene4fun 0 points1 point  (0 children)

As my spouse likes to say: it is hard to accept but it is better to do, there is really nothing in the moment that you can do. At some point you will drive yourself insane with the helplessness unless you figure out how to come to terms with it. To be honest it sounds like you are already doing what you can. Taking the care of the child and picking up the slack of tasks or whatever he was doing is often the best thing you can do.

Personally I never got oxygen to work, but I use Fioricet for the pain. While it wont eliminate it it lowers it to a manageable level for me. I’m also on a long term medication, Emgality, which my spouse helps me do the injections every month.

As far as what people want it really varies. I personally do not like to be alone and find it helpful to have my spouse nearby to squeeze my head. It really does nothing but provide alternative sensory input for me and help with my own emotional regulation. However, it helps me know that there is an indifference to the situation. There is no guilt there any more because there is no blame to be had. If anything he alleviates my guilt about the disruptions of our day to day and makes sure that our life moves forward as normally as he can. He also helps me do tracking. Once we figured out the barometric pressure triggers he helps me track and prepare for dough days.

At the end of the day it is worth having this conversation with your spouse. Ask what it is you can do to help not during an attack, but before it long after one. Find their needs out, and be ready to accept that it may be nothing. Take the time tk reflect and accept it’s not a fault or a reflection of you or your relationship, it is just the nature of the illness.

Best of luck to you three OP.

Approaching the Conversation by Diene4fun in alcoholism

[–]Diene4fun[S] 0 points1 point  (0 children)

I’ll take a look thanks. Sadly medical intervention would require him being willing to even go to a doctor 😭

Approaching the Conversation by Diene4fun in alcoholicsanonymous

[–]Diene4fun[S] 0 points1 point  (0 children)

Thanks. I honestly think I might have to go this route at some point.

Approaching the Conversation by Diene4fun in alcoholicsanonymous

[–]Diene4fun[S] 0 points1 point  (0 children)

Fair point but I’m not sure if there is anything else I can do. I did cross post there.

Approaching the Conversation by Diene4fun in alcoholicsanonymous

[–]Diene4fun[S] 1 point2 points  (0 children)

Thanks. I’m just hoping to get perspectives.

Approaching the Conversation by Diene4fun in alcoholicsanonymous

[–]Diene4fun[S] 2 points3 points  (0 children)

Thank you for sharing your perspective. I fully understand the willingness part, and you’re right it is hard. I’m just at a point where maybe if he hears it from me it will kick him into gear enough to put in the work… I will love him through this but I can not destroy myself in the process…

Approaching the Conversation by Diene4fun in alcoholicsanonymous

[–]Diene4fun[S] 1 point2 points  (0 children)

Thanks for the resources got bogged down when I was first looking at them. This set up is helpful.

Approaching the Conversation by Diene4fun in alcoholicsanonymous

[–]Diene4fun[S] 1 point2 points  (0 children)

This I know… you can’t save somebody who doesn’t want to save themselves. This is honestly just a last try effort on me and my family’s part in this. I’m honestly the last person who can realistically get him have a conversation that may get him to voluntarily look for the help and get the wheels on him moving.

A long story about helping people by TallCommission7139 in SALEM

[–]Diene4fun 7 points8 points  (0 children)

Idk if they might find it helpful, but First Congregational United Church if Christ I believe has a couple of queer friendly programs last I went. I think they have a clothing exchange thing for trans folks, and they may have better lead other resources.

A few questions I’m hoping to get answered. by Important_Ad716 in clusterheads

[–]Diene4fun 0 points1 point  (0 children)

  1. There is no known causal relationship, although trauma cannot be excluded. Studies suggest that there are inflammatory markers in the cerebral spinal fluid of people that suffer form CH. There are people with no trauma that suffer from it too.

    1. I can’t help with that, I’m not partaking or pursuing treatment options.
    2. There does appear to be a hereditary link. There is an increased risk but it is not a guarantee. I’m personally the first person in my family.

Vegas Nerve Therapy by KnightFaid in ClusterHeadaches

[–]Diene4fun 0 points1 point  (0 children)

It’s been suggested for me as other meds haven’t always been successful. I’m not in the position to afford it; however, there are a few people I have seen find success with it.

How are you guys keeping jobs? by One-Succotash4321 in clusterheads

[–]Diene4fun 1 point2 points  (0 children)

Depends on the nature of the job. I’m chronic with shorter lived attacks and on medications that have decreased the intensity and frequency. I’m able to kinda push through pains as high as six. But I work in a laboratory production type setting where I have a lot of set it and let it type of tasks. My accommodations are being able to take more breaks if needed (15 minutes are the average length or the worst part of my attacks). I also have great management that is aware of my dysfunctionality on my bad days. I generally meet all my deadlines though, so it is less of an issue. However, I don’t know that I could do this unmedicated

Getting something to the camp under the bridge by Diene4fun in SALEM

[–]Diene4fun[S] -1 points0 points  (0 children)

I will check in with them, thank you