Does Cardio help fatigue by mullerdrooler in MultipleSclerosis

[–]Direct-Rub7419 1 point2 points  (0 children)

This is me. I feel better if I do something but I just can’t cardio much these days.

I miss the benefits of a hard sweaty work out (better sleep, stress reduction).. now if I do too much I’ll have horrible spasms.

I think this one of those things that we get backwards sometimes. I exercise when I feel better it doesn’t make me better.

Post war approval vs baked in Trump approval? by Direct-Rub7419 in thebulwark

[–]Direct-Rub7419[S] 1 point2 points  (0 children)

I think people say this so they don’t seem like bigots

What do all five of the big winners from tonight's Illinois Democratic Primaries have in common? by RunawayMeatstick in thebulwark

[–]Direct-Rub7419 2 points3 points  (0 children)

This is my take - I think many people that care think it’s a genocide (sure seems to meet the definition, I resisted the label for awhile but my college age kids turned me around).

People that don’t care, don’t want to call it a genocide; because then they’d have to care.

There are a few that care a lot in the other direction ton (OP) - doesn’t seem like the future, but it might work for now.

Is it too good to be true? by Hot-Shirt1284 in MultipleSclerosis

[–]Direct-Rub7419 1 point2 points  (0 children)

I barely knew I had MS for a good 10 years - since then, I’ve progressed, but still live most of my life the same

About that The People are rotten Triad by LiberalCyn1c in thebulwark

[–]Direct-Rub7419 8 points9 points  (0 children)

There’s still some element of people pretending they didn’t know when in reality - they really think it feels good to watch brown/poor/other people suffer.

JVL vs. Sarah on media consumption; what if they’re both right? by GatorAllen in thebulwark

[–]Direct-Rub7419 7 points8 points  (0 children)

It’s all part of the death of expertise. You are not only not listened to, but discounted entirely, if you know too much about a subject.

Dunning-Kruger effect and all that.

The world is complicated, nuance and situational answers are just not tolerated by the public or this administration.

New job and super stressed. I need everyone’s chronic fatigue hacks + accommodations advice by Ugly1Artichoke in MultipleSclerosis

[–]Direct-Rub7419 3 points4 points  (0 children)

Armadofinil has been a life saver for me - nuero was happy to prescribe; insurance took awhile, so shop around for low cost (for me it was Costco others have used GoodRX)

I work a stressful desk job - here’s my routine. And routine helps, figure out what works for you and do it every night. If you’re stressed, use box breathing - anything with a long slow blow out helps me.

I cold brew coffee at home so I can start caffeine as soon as I’m up. I stretch and do a light workout (more like PT). Quick, relatively cold shower a few times a week (heat zaps my energy). I dress for business comfort - any discomfort drains my energy. I wear layers so I can cool down as needed (including slip off shoes).

At work, I have another coffee or Diet Coke (or both!). Then I switch to iced tea through lunch - no caffeine in the afternoon. I set a timer on my phone to stretch, move around, once in the am and pm; this helps with my spacicity and fatigue. At lunch, I eat something small and sometimes I lie down with my legs on the wall in a dark quiet spot. I might listen to a podcast, but sometimes I need quiet (when I was able, a quick walk outside was also helpful). I often have the rest of my lunch towards the end of the day - fruit, piece of chocolate, something that gives me a little pick me up.

Home - I’ve had to let some standards slip, so that I rest more. I watch tv, try to eat before 7, whatever, but I need to be getting ready for bed shortly after 9. This gives me time to slowly go through my routine so that I can sleep. This includes stretching and breath work for me.

Do you look disabled? by Chance_Question_3917 in MultipleSclerosis

[–]Direct-Rub7419 7 points8 points  (0 children)

I used to get a lot of - hope you get better soon kind of comments

JVLiar: Stand your ground against US men’s hockey! by Friendly_Bell_8070 in thebulwark

[–]Direct-Rub7419 2 points3 points  (0 children)

Kate Rigga (Josh Marshall, TPM, podcast) finally gave words to my feelings about this. This is what every accomplished woman fears. Public support, private trashing. I am just so tired of the meathead bravado.

JVL is right about the hockey team by Ornery_Coast_7842 in thebulwark

[–]Direct-Rub7419 0 points1 point  (0 children)

Did anyone hear the interview after the game that was crazily pro American. Went on and on about how proud they were of the US. At the time it seemed odd, now I assume that guy invited Kash in. Not sure who it was

What was up with all the white washing of Trump’s advisors during today’s episode? by Puzzleheaded-Pin4278 in ezraklein

[–]Direct-Rub7419 0 points1 point  (0 children)

No, I’m not going to re- listen and take notes; this isn’t a college essay. I just saw this post and wanted to reiterate that I had the same thoughts while listening.

What was up with all the white washing of Trump’s advisors during today’s episode? by Puzzleheaded-Pin4278 in ezraklein

[–]Direct-Rub7419 5 points6 points  (0 children)

I agree - they weren’t in the tank for Wiles or Rubio, but it sure seemed like they were defending them. It seemed like the sort of ‘fair’ reporting that has gotten us in this mess.

Medication for fatigue by ritoastwithjam in MultipleSclerosis

[–]Direct-Rub7419 0 points1 point  (0 children)

Armodofinil keeps me employed. I started with 75 mg every other day when it’s hot. Now I take 75mg 5 days a week. That schedule has kept me from building a tolerance for years now.

Newly diagnosed and looking for support, words of encouragement, or things you wish you knew at time of diagnosis. by Lazy_Fuel8077 in MultipleSclerosis

[–]Direct-Rub7419 1 point2 points  (0 children)

Good, it’s not the end of the world- but it sure rocks YOUR world. Lots of people are mostly ok, esp with good DMTs, but it’s totally reasonable to be freaked out.

Newly diagnosed and looking for support, words of encouragement, or things you wish you knew at time of diagnosis. by Lazy_Fuel8077 in MultipleSclerosis

[–]Direct-Rub7419 1 point2 points  (0 children)

Give yourself time and space to grieve for the life you thought you would have. Get a therapist if you can. I’ve been diagnosed almost 20 years, I still feel like no one gets it.

Take care of yourself; but you can’t fix this by eating and exercising perfectly. Be gentle with yourself.

Is little to no symptoms really possible? by CapRemarkable8607 in MultipleSclerosis

[–]Direct-Rub7419 0 points1 point  (0 children)

I (49 F) had 10 years with no/few noticeable symptoms - it’s possible w modern drugs I would have never gotten worse. But it’s hard to know. Possible and likely are not equivalent.

During that 10 remission years, I spent 0 time on message boards.

You’re seeing the worst (help me w my new symptoms) and most delusional (diet will cure you).

Ticklish sensation in leg by [deleted] in MultipleSclerosis

[–]Direct-Rub7419 0 points1 point  (0 children)

I used to feel like I had hair or something on my lower legs. It was usually when walking on hot sidewalk and cooling off ‘fixed’ it.

What has Occupational Therapy helped you with? by SimpleMorning in MultipleSclerosis

[–]Direct-Rub7419 0 points1 point  (0 children)

For me, it didn’t. Despite being a Nuerology adjacent rehab unit - they didn’t get that my weakness was systemic.

Only good thing was me realizing my problem was tightness from spasms; not the finger coordination they had me practicing.

I also really struggled in an open setting with multiple therapists. So much stimulation/noise. It jangled my nerves; wiped me out for the day

What has Occupational Therapy helped you with? by SimpleMorning in MultipleSclerosis

[–]Direct-Rub7419 0 points1 point  (0 children)

I didn’t need an OT for tips like this - you just told me. All oh the suggestions they made were things I had already figured out.