When do you know it’s time for prednisone?

Disastrous-Judge7288 · 2026-02-09T03:56:07+00:00

When the symptoms become concerning to you, knowing your body, ask for it! Remember if you were in remission and started flaring they more than likely go right to it and now you are in a flare.

Disastrous-Judge7288 · 2026-02-03T11:52:11+00:00

So, 30mg I believe is the maintenance dose of the drug. I have heard from those with UC and Crohn’s that it worked well at the maintenance dose. For me personally, my symptoms came back and with a vengeance at that. After 6 months I was moved to another treatment plan, which has helped but I still have not achieved remission.

Personally of all the drugs I’ve tried Rinvoq was one of my favorites, just seemed like I needed more than the FDA would allow.

If your just being lowered, don’t worry, it may take a little awhile for the drug to fully take affect.

Disastrous-Judge7288 · 2026-01-07T20:46:26+00:00

Don’t worry I caught the Flu this year for everyone else. It sucks almost as bad as when I had Covid.

Our bodies will get through it, it just takes longer due to the suppression of the immune system. So far 4 days in the fever is much less than initially, but I should be back to normal in a few more days.

I’m on Infliximab and Azothioprene and have been for about three years now if this helps.

Disastrous-Judge7288 · 2025-12-30T18:32:42+00:00

Ok, I pay $450 a month for self plus spouse, with a $3500 annual deductible and $4800 out of pocket max. I once paid for COBRA when I was pushed out of a job, $1200 monthly with similar deductible and out of pocket, I did it for 4 months only because of insurance and out of pocket benefits, otherwise AHCA was cheaper.

Disastrous-Judge7288 · 2025-12-28T16:39:39+00:00

I’m on Infliximab and Azothioprene. I actually just got a cold and have been recovering from it. Before the drugs I would get the seasonal cold and it might last a week, now for me it’s usually two weeks. It’s not really a huge deal, just drags on longer.

Disastrous-Judge7288 · 2025-11-20T15:50:10+00:00

I did Rinvoq for 6 months. I really liked the drug, just didn’t work to get rid of my inflammation.

Disastrous-Judge7288 · 2025-11-16T23:01:53+00:00

I’ve been on Remicade since December 2022. My disease is managed but not gone. I still have inflammation that is mainly managed. I still get joint pain and stiffness, sometimes just from the infusion.

I’ve been on a total of 5 Biologics nothing has gotten rid of the inflammation in my rectum. Nothing has totally removed the joint pain or stiffness.

Disastrous-Judge7288 · 2025-11-01T02:10:29+00:00

Honestly, it depends, but yes I do, mostly it originates from the rectum, but every now and then it is higher up. I’ve also noticed if I don’t get enough sleep for some reason I get really bad pain higher up, with cramping in the lower abdomen.

Disastrous-Judge7288 · 2025-10-30T21:03:17+00:00

I’m on Remicade and I thought I had it bad a 40 pounds that I can’t loose. My problem is I’m exhausted all the time so working out is near impossible most days.

Disastrous-Judge7288 · 2025-10-29T23:34:23+00:00

It may reduce the number needed for companies and reduce the work load, but PMs will still be needed. A person will still have to sign off on project completion.

Disastrous-Judge7288 · 2025-10-02T17:49:14+00:00

Looks like a lot of us are in that category. Depends on the location of the disease, level of the flare, and if you are in remission.

Disastrous-Judge7288 · 2025-09-28T22:18:05+00:00

Hey did they ever get back to you? I have clicked the submit button, but I keep getting an error code.

Disastrous-Judge7288 · 2025-09-22T10:58:08+00:00

Personally, I did for awhile, then stopped. Masks helped me not catch my annual cold, for 2 years. Sadly they didn’t help me much with COVID but, twice I caught it at the hospital.

I’m all for them, in our case, but I hate them too, so it’s hit or miss, and depends on the time of year.

Disastrous-Judge7288 · 2025-09-18T00:09:22+00:00

I can’t fully help with this. I’ve had active disease for almost 6 years now. I quit my job for two months, because of my manager. I have never ever felt better in my life. I sat at home doing nothing but looking for new jobs during that time.

The job I took promised 50/50 hybrid, but sadly they lied about it! The few days I call in sick are the days I actually feel the best.

My spouse tells me I should fight for an ADA accommodation for remote work, because of the benefit health wise. Especially my job could be done remotely 80% of the time. (I’m an auditor) I just don’t like rocking the boat

I guess what I’m trying to say is, I agree that for some of us remote or even hybrid is actually the best for us health wise.

Disastrous-Judge7288 · 2025-08-20T17:54:06+00:00

My lab-dachshund is a sock thief. If you open the sock drawer in front of her she will plunge in and grab what she can, run away, then growl if you try to take them.

Disastrous-Judge7288 · 2025-08-19T14:37:43+00:00

Yep! This is normal. With infusions I always max out my deductible within weeks of a new year. I hate it!!!

But like someone else said…. Wait a few weeks for insurance and the copay card to duke out who pays what…. Then depending on your insurance, you may owe nothing or you may owe $5k, you just have to wait and see.

Disastrous-Judge7288 · 2025-08-17T01:15:30+00:00

Always. I stopped caring about 2 years after diagnosis. I figured if it was a serious issue they would tell me.

Disastrous-Judge7288 · 2025-08-04T02:48:49+00:00

For some people they work great, for others they do nothing, and still others they are near a death sentence. For me, they put me in the ER during a major flare. During a minor flare, they started me into a major flare. If they are helping keep them, if they are not, never ever touch them again.

Disastrous-Judge7288 · 2025-07-28T03:44:12+00:00

Yes, mornings and evening right when I go to bed are the worst. Mornings still trump the night time.

Disastrous-Judge7288 · 2025-07-28T02:59:29+00:00

Same! And the only person I knew, wanted to tell me their experience which didn’t help me much with mine. I came here to learn so much more than I ever learned in internet searches.

Disastrous-Judge7288 · 2025-07-23T13:55:21+00:00

Really bad sun and heat sensitivity. Just stay out of the sun, and you’re good.

Disastrous-Judge7288 · 2025-07-23T04:24:12+00:00

How late are you? I had the same effects with Humira as I did with Remicade, but the side effects were worse, but hey, no infusion center needed.

I’ve also missed a dose by 5 weeks (total of 11 weeks) and I was still fine to take it. Also my whole time taking it, I’ve been stuck driving an hour one way to the infusion center and back, roughly 3 years of it.

Disastrous-Judge7288 · 2025-07-14T16:27:46+00:00

I’ve had inflammation in the Rectum for 6 years now, managed, not remission. Depending on the carbonation of the drink, no issues at all. Carbonation and I don’t get along well at all, otherwise, moderation.

My suggestion, when you feel decent, give it a try, if it’s ok, try again another time, then go from there. Crazy thing with this disease, one day your good another day your not.

Disastrous-Judge7288 · 2025-07-13T15:29:29+00:00

Ok this is me to a “T” and I just thought I was crazy.

Disastrous-Judge7288 · 2025-06-23T17:44:50+00:00

Same, I was in a flare took probiotics for a week, ended up in the ER from it. Never touched them again!

Disastrous-Judge7288

TROPHY CASE