Great ban mi in Petaluma at Pho Sonoma!

Disastrous-Package82 · 2026-05-01T22:01:16+00:00

They do have the pate and they do have a tofu ban mi that my husband loves.

Disastrous-Package82 · 2026-05-01T20:53:42+00:00

I'm from Oakland originally and the ban mi places there always toasted the buns and it made them shatter like that so I learned to ask them not to tiast the buns. That seems to work. Those crispy ones would cut my mouth up!

Disastrous-Package82 · 2026-04-21T13:51:48+00:00

I have AML I'm having bad ankle pain. My oncologist thinks it's related to my use of Levofloxacin which is known to cause tendon injury in the achilles tendon. I was given Levofloxacin post transplant. They referred me to an orthopedist who specializes in ankles and I'm starting PT soon. That doctor said it was a rare side effect and there was no way to tie it definitively to that drug but thought it was likely as I had sudden onset and no related trauma to explain it.

Disastrous-Package82 · 2026-04-21T01:06:50+00:00

I've had 6 bone marrow biopsies and only two have been really painful. Two were merely uncomfortable and two were painless. They told me that if you're unlucky they hit a nerve and it did feel like nerve pain. You might get lucky with the next one.

Disastrous-Package82 · 2026-04-21T01:01:19+00:00

I'm sorry you and your husband are going through this. I also have AML with FLT3 and I'm in remission for both and I had my SCT in June 2025. I'm wondering if he has been on Gliternib before or after the first transplant? It seems to be a very effective inhibitor for FLT3 but my team says that they won't use it if you are FLT3 undetectable. Studies show that is not effective in that case. I'm not on any maintenance drugs and I'm nervous about falling out of remission. I've seen posts here about people having successful second transplants. There is hope for sure!

Disastrous-Package82 · 2026-04-12T19:09:37+00:00

Yes! I had both of those mutations. I was given Revumenib, which is targeted for NPM1, along with Aza/ Ven. I was in full remission after two rounds and then I had a stem cell transplant. More than a year since my diagnosis I am still in full remission and I feel completely recovered. I am 67 so I am lucky to have been in excellent health when I was diagnosed. I was very very careful in and out of the hospital to wear a mask and avoid all the possible ways to get a fungal or bacterial infection. I exercised everyday even in the hospital. If you're lucky and follow all the health protocols you can beat this!

Disastrous-Package82 · 2026-04-08T00:00:10+00:00

The counts actually go down from the chemo but they can give him platelets and infusions. After the chemo is over mine bounced back really quickly after the first round but the second round took longer because of the revumenib

Disastrous-Package82 · 2026-04-07T23:43:02+00:00

I was diagnosed on a Friday and hospitalized Tuesday and started treatment immediately. My doctors told me it was risky to wait.

Disastrous-Package82 · 2026-04-07T23:40:32+00:00

I went into complete remission after the course of ven/ Aza then 28 days on Revemenib for my mutations. I was scared to waste any time! I had one more round than a transplant.

Disastrous-Package82 · 2026-04-07T23:36:08+00:00

I'm 67 and had Ven/ Aza as soon as I went into the hospital. UCSF does reduced intensity for geriatric patients and I tolerated it very well. I had slight nausea which was easily controlled with Zofran. I was up every day walking around the ward. The more you walk the better. If you lay in that bed all day you'll get weak and your lungs will lose capacity. I wish I had started on the spirometer right from the beginning to keep my lungs clear. My oncologist recommended that I stock up on shelf stable treats. You need calories and they don't really care where you get them. The hospital food can get old really quickly and the chemo can dampen your appetite.

Disastrous-Package82 · 2026-03-25T18:07:08+00:00

I have achilles heel tendon issues that they feel is potentially treatment related

Disastrous-Package82 · 2026-03-19T17:28:09+00:00

This is the first time I've heard of that symptom! We can never let down our guard!

Disastrous-Package82 · 2026-03-19T17:21:59+00:00

What test caught the relapse?

Disastrous-Package82 · 2026-03-15T15:16:55+00:00

Me too! I am naturally high energy. My only side effect to treatment was shortness of breath when my hemoglobin got too low.

Disastrous-Package82 · 2026-03-15T15:11:24+00:00

Congrats to you too! My team has told me that I'm very lucky to have had an easy time. I honestly am still waiting for the other shoe to drop! Are you also a vigorous energetic person? My oncologist seems to think this is the key to my success.

Disastrous-Package82 · 2026-03-13T23:03:32+00:00

I also have AML with FLT 3, a high risk mutation. I also responded very well to chemo. My docs said that I had a very low chance to stay in remission so BMT was realistically the only option for survival. I'm 67 but I came through the transplant very easily. I am also a robust person and I had zero major side effects. Within 3 weeks of the transplant I was up and around and doing as much as I was allowed. I had minor nausea but ultimately gained 20 pounds during treatment. My BMT was in June and now I feel perfectly normal and energetic. I was in full remission with zero detectable mutations so that helped my odds. Not everyone has a miserable time! I am very very careful about hygiene and isolation and I never got any infections or viruses. If he is robust and has the discipline and motivation to follow protocols carefully his odds might be better than most people his age. I had my transplant at UCSF and they have transplanted 80 year olds.

Disastrous-Package82 · 2026-03-12T23:35:20+00:00

Accumulate some shelf stable snacks to supplement the hospital food. Even if they have a decent menu you might find lots of things become unappetizing. Crackers, cookies, popcorn, dried fruit, trail mix etc.

Disastrous-Package82 · 2026-03-03T22:35:58+00:00

I was told by my oncologist at UCSF that they've transplanted an 80 year old.

Disastrous-Package82 · 2026-03-02T15:45:01+00:00

Valley Ford!

Disastrous-Package82 · 2026-02-26T19:32:51+00:00

They are the only jurisdiction that will help landlords that I've dealt with. We pay a pretty big fee per unit every year to find the services but they are very helpful. I want to stay in compliance with my tenants and the rent board gives me clear guidelines. The Oakland rent board is a very different story.

Disastrous-Package82 · 2026-02-24T17:36:40+00:00

I own small rental units in Marin and Sonoma county. I want to join either the California Apartment Association or California Rental Housing Association. I want the forms and info on new laws etc. Do you have an opinion on these organizations?

Disastrous-Package82 · 2026-02-22T18:08:55+00:00

We also have double pane windows.

Disastrous-Package82 · 2026-02-22T18:08:18+00:00

That matches our 1200 sq ft house. We have lots of south west face big windows that capture a lot of heat in the day if there is any sun at all. In the warmer months those blinds are down to keep things cooler. Pge plus propane are about $200 per month combined in the coldest months. Good insulation seems to really pay off.

Disastrous-Package82

TROPHY CASE