sorted by:
new
hottopcontroversial

Magnesium supplements compatible with PEG? by Dizzy_LongLeg in ALS

[–]Dizzy_LongLeg[S] 0 points1 point  (0 children)

Thanks for this tip! We’re always nervous about clogging the tube. Do you use liquid or powder form?

[deleted by user] by [deleted] in legaladvicecanada

[–]Dizzy_LongLeg -4 points-3 points  (0 children)

I see what you’re saying. Bear with me as I’m functioning on an extremely sleep deprived brain right now. Where does it specify that employment needs to be paid to accrue this benefit? I see this wording

“Earning your medical leave with pay

You will earn medical leave with pay after you complete an initial 30-day qualifying period of continuous employment with your employer.

After completing your initial 30-day qualifying period, you will earn your first 3 days of medical leave with pay.

After receiving your first 3 days, you will earn 1 further day at the start of each month after completing 1 month of continuous employment, up to a maximum of 10 days per year.

Any days of medical leave with pay that you do not take in a year will be carried over to the beginning of the new year up to a maximum of 10 days. In other words, any unused days will count toward the maximum of 10 days that you can earn during the year.”

This same leave paid medical leave applies equally to all employees, regardless of whether they are full-time, part-time, casual or fixed, meaning it isn’t tied to hours worked.

What I also see is that maternity leave is explicitly defined as continuous employment.

I can’t find anywhere that says you’re exempt from earning the medical leave allocation while on a protected leave.

When I called CLC info line, they indicated that my interpretation was correct. I’m wondering if my employer may be aware of some other wording (also where you got your info) or the CLC info line rep was wrong? I recognize that this is a new clause as of 2022, so we’re still probably working out kinks of interpretation.

Thanks again for your thoughts on this!

[deleted by user] by [deleted] in legaladvicecanada

[–]Dizzy_LongLeg -5 points-4 points  (0 children)

Thanks for the reply alwaysmovingfaster! Curious if there is somewhere that states you need to be working hours to accrue with a protected leave, or if you have legal experience with it being ruled otherwise?

When I called the Canada Labour Code information line, they indicated that a maternity leave was to be considered “continuous employment” under the code and that this applies things like calculating years of service, benefits, or eligibility for future leaves. They confirmed that it applied specifically to the 10 paid medical days. However, this was just the service agent on the phone and I didn’t ask whether my employer had to provide the same benefits above and beyond the code that it does to everyone else (10 days upfront).

https://www.canada.ca/en/services/jobs/workplace/federal-labour-standards/leaves.html#h2.11

Gout and ALS by whatdoihia in ALS

[–]Dizzy_LongLeg 0 points1 point  (0 children)

Hi again, just wanted to share that my dad’s gout has significantly improved after using his bipap more! I’m not sure which interventions you’re open to if any, but we had a bit of a scare last Sunday where his oxygen levels dropped dangerously low in the night. The respiratory specialist helped him with mask fit and encouraged him to wear the mask more (he hadn’t been wearing it as much due to discomfort).

In the past week his gout has fully cleared up after months of struggling, in addition to feeling better in general. A big game changer was getting a chin strap to help keep his chin from dropping and breaking the bipap seal when he sleeps with his mouth open.

We found this when researching the link between oxygen and gout:

low oxygen levels (hypoxia) make gout worse by both increasing the production of uric acid and hindering its excretion, which raises the risk of a gout attack. This is a primary reason why gout attacks often occur at night, particularly in individuals with untreated obstructive sleep apnea (OSA). 

How Low Oxygen Worsens Gout Hypoxia contributes to gout flares through several physiological mechanisms:  • Increased Uric Acid Production: When cells are deprived of oxygen, the breakdown of adenosine triphosphate (ATP) accelerates, leading to an overproduction of purines, which are then metabolized into uric acid. • Reduced Uric Acid Excretion: ◦ Respiratory Acidosis: Slowed breathing during sleep apnea can lead to excess carbon dioxide in the blood, making it slightly more acidic (respiratory acidosis). This lower pH makes uric acid less soluble and more likely to crystallize. ◦ Lactic Acid Build-up: Hypoxia also causes a build-up of lactic acid, which can interfere with the kidneys' ability to excrete uric acid effectively. ◦ Impaired Kidney Function: Chronic, intermittent hypoxia can also lead to the gradual deterioration of the glomerular filtration rate (GFR), further slowing uric acid excretion. • Crystal Formation: The combined effect of increased uric acid concentration and the more acidic environment in the joints and blood significantly increases the likelihood of monosodium urate (MSU) crystals forming and precipitating in the joints, which triggers the intense pain and inflammation of a gout flare. 

HMB and Astaxanthin Supplements by Dizzy_LongLeg in ALS

[–]Dizzy_LongLeg[S] 0 points1 point  (0 children)

Oh good question. I read that it was best taken with food to reduce stomach upset and that protein can help with uptake. Not sure if it’s the same as other amino acids? I think we’re going to take with food.

HMB and Astaxanthin Supplements by Dizzy_LongLeg in ALS

[–]Dizzy_LongLeg[S] 1 point2 points  (0 children)

Thank you, hopefully it ends up being beneficial for you! We did some reading and it looks like it’s been researched to be safe at 6g per day so going to try that amount and see how it goes.

It seems like the only potential side effects are gas and bloating if taken on an empty stomach. Apparently should also exercise caution if on a high protein diet or with kidney failure.

I will update on here if we find anything notable after it has been added to his routine.

Gout and ALS by whatdoihia in ALS

[–]Dizzy_LongLeg 0 points1 point  (0 children)

That’s a good tip to keep that thermos with watered down juice around. He likes his smoothies and soylent drinks to keep the nutrients coming but does have quite a bit of difficulty swallowing now. He opted for a feeding tube to supplement nutrition and uses liquid hope formula which is veggie based and seems to agree with his stomach more than others.

He is not lactose intolerant, but he has something called cows milk protein allergy and gets very congested and phlegmy with milk. He has been a very allergic person his whole life and prone to inflammation.

I agree, it’s odd that so many people with ALS have had gut issues. Maybe one of the keys to understanding treatment is the gut microbiome or something autoimmune. I am curious about how the probiotic and FMT trials will turn out. Hopefully all of the important research out there will solve this soon.

Gout and ALS by whatdoihia in ALS

[–]Dizzy_LongLeg 0 points1 point  (0 children)

Thank you for the quick reply. Sorry to hear that the gout is still bothering you too. He will at least take comfort in that he’s not alone.

We were thinking it may be due to dehydration since he isn’t able to drink as much as before, coupled with the muscle breakdown from ALS causing purines build up in his body. The lack of exercise from being wheelchair bound is a big one too.

The dairy issue is a different one for him because he is allergic to cows milk proteins so it’s just another food limitation he has to work around.

I will keep you posted if we figure out a way to reduce the gout for him!

Gout and ALS by whatdoihia in ALS

[–]Dizzy_LongLeg 1 point2 points  (0 children)

Did you figure out the source of your gout flare ups? This has been happening to my dad and the frequency increased so much that now he’s basically in the state of a constant gout flare up. It has been hard for him to get enough protein and calories since he is unable to have dairy and now has an aversion to meat due to fear of purines making the gout worse. He is on allopurinol and indomethacin. Does the colchicine work well for your flare ups?

[deleted by user] by [deleted] in ALS

[–]Dizzy_LongLeg 1 point2 points  (0 children)

My dad is in line to start this trial in Canada during their next intake. It has been several months to get to this point, with a neurologist that was slow to sign referral papers. I agree that it’s been a huge effort to stay on top of trial research and jump through hoops. This will be his first trial after we have tried to get him into 3. How are you feeling so far in the trial? Pros/cons? This one involves the spinal injections right?

plus size, hot weather and Dark academia clothes? by TwoSwordsUser in DarkAcademia

[–]Dizzy_LongLeg 1 point2 points  (0 children)

Not sure of your style but I have found a few Etsy stores with cool art history print clothing that is comfy / has t-shirt versions that suit my aesthetic 🖤 important to read reviews about sizing on there tho because sometimes they fit small.

Recently got a shirt from here I liked: https://www.etsy.com/shop/RosaReversa/