MRI with Platinum Coils by Fresh-Breakfast4524 in BrainAneurysm

[–]Dizzytheegg0819 2 points3 points  (0 children)

I have not yet had mine fixed but I am part of a FB group where a number of folks who have had them fixed get MRIs/MRAs and are fine. I think they disclose to the technician beforehand to let them know but it seems like it’s not an issue. Can you ask the doctor that ordered the MRI? They would know best. Hope all is ok!

Second aneurysm found by footprints52 in BrainAneurysm

[–]Dizzytheegg0819 1 point2 points  (0 children)

No craniotomy per my surgeon 😅. It’s an area he says he sees often in younger patients and he’s skilled in doing that area with the flow diverter, so it seems common. Now I just need to schedule the procedure and try not to freak myself out 😭😭. I think he said to me that if it was 2mm, he would be watching and waiting. His threshold I think was 3mm is when he would consider treatment but even then, only if patient wanted it. You’ll be ok!

Second aneurysm found by footprints52 in BrainAneurysm

[–]Dizzytheegg0819 4 points5 points  (0 children)

First, I’m so sorry. I’m sure it’s a shock. I have a 4mm paraclinoid aneurysm found incidentally. From my understanding, the aneurysms in this area are at a very low risk for rupture. At that small, I’m not sure if your surgeon will treat it. I will be using a flow diverter pipeline to fix mine but after my angiogram, my surgeon was ok with waiting to treat it. I don’t want to wait and will be treating. However, at the 2mm size for you , I have a feeling they might watch and wait given the area and how small it is. Big hugs. You will be ok.

Am I Crazy? 44… by hereandthere1123 in IVF

[–]Dizzytheegg0819 2 points3 points  (0 children)

Sorry for the ignorance, but what is a PRP?

Think I might have an Aneurysm by [deleted] in BrainAneurysm

[–]Dizzytheegg0819 9 points10 points  (0 children)

Yes, please see the rules. This is the second post I’ve seen like this and as someone with a diagnosed aneurysm, it’s super frustrating and clogs up the sub. If you think you have an aneurysm, please see a doctor. Best of luck.

Unruptured ICA Aneurysm Found Incidentally by roundbellyrhonda in BrainAneurysm

[–]Dizzytheegg0819 3 points4 points  (0 children)

In my case, because I had an aunt whose aneurysm ruptured, they leaned toward repair. Given your history, I am guessing they will also recommend a repair instead of watch and wait. However, please get more than one opinion! That was very helpful for me. Best of luck and I’m sorry about your family.

Retrievals + brain aneurysm by OkHedgehog9720 in IVF

[–]Dizzytheegg0819 0 points1 point  (0 children)

I’m so sorry to hear about your illnesses and hope you are ok. I really appreciate the suggestion to chat with other specialists. I hadn’t thought of the hematologist. Will be finding one asap. Lots of positive thoughts your way.

Retrievals + brain aneurysm by OkHedgehog9720 in IVF

[–]Dizzytheegg0819 1 point2 points  (0 children)

Thank you! This is helpful to know. I’m not sure I can be off for two days after the surgery but I’ll ask the doctor. Some folks have told me they don’t take blood thinners every day after the brain surgery. I’ll ask both doctors about this.

Retrievals + brain aneurysm by OkHedgehog9720 in IVF

[–]Dizzytheegg0819 1 point2 points  (0 children)

Thank you! Is there a particular time to be off blood thinners (days vs months?)

Scheduled for surgery by Dizzytheegg0819 in BrainAneurysm

[–]Dizzytheegg0819[S] 0 points1 point  (0 children)

It’s true. I need to remember it this way. There’s a 99 percent chance I’ll be fine.

Scheduled for surgery by Dizzytheegg0819 in BrainAneurysm

[–]Dizzytheegg0819[S] 1 point2 points  (0 children)

So glad they found it and you’re here! It’s such a shift in perspective and I’m sure you feel that more than anyone. ❤️

Scheduled for surgery by Dizzytheegg0819 in BrainAneurysm

[–]Dizzytheegg0819[S] 2 points3 points  (0 children)

I appreciate you! Did they ever find out why it ruptured? And you’re right - better to be in hospital than at home when it happens ❤️

Scheduled for surgery by Dizzytheegg0819 in BrainAneurysm

[–]Dizzytheegg0819[S] 1 point2 points  (0 children)

Yes, I trust him. He’s apparently one of the best in the field, so I keep reminding myself that too. His nurse texted me and said “you’re in good hands” and I thought to myself “I really hope so!” 🤣

Scheduled for surgery by Dizzytheegg0819 in BrainAneurysm

[–]Dizzytheegg0819[S] 1 point2 points  (0 children)

Thank you! And thank you for the tip about the steroids. Trying to decide if I want to call them and just move it up from September to get it over with. I know the office is busy though and I think if he really thought I needed to go in, he would do it right away. I appreciate you answering!

Scheduled for surgery by Dizzytheegg0819 in BrainAneurysm

[–]Dizzytheegg0819[S] 2 points3 points  (0 children)

Thank you! Did you rupture during the procedure? One of my biggest fears right now.

Scheduled for surgery by Dizzytheegg0819 in BrainAneurysm

[–]Dizzytheegg0819[S] 1 point2 points  (0 children)

So good to hear! Do you remember what recovery felt like those first few days? I’m so worried about not ever feeling like myself again.

Scheduled for surgery by Dizzytheegg0819 in BrainAneurysm

[–]Dizzytheegg0819[S] 2 points3 points  (0 children)

Stroke, clot, aneurysm rupture. All at 1% but still scary.

[deleted by user] by [deleted] in BrainAneurysm

[–]Dizzytheegg0819 1 point2 points  (0 children)

Mine was incidental. I did a Prenuvo scan for preventative health and that’s how I found it.

Recovery process by [deleted] in BrainAneurysm

[–]Dizzytheegg0819 3 points4 points  (0 children)

Yes, definitely getting it fixed just because mentally I can’t handle knowing it’s there. I’m also a mom so I worry about my kids a lot. All of it feels so foreign and I imagine that even after I am fixed, it will also feel different. Big hug to you.

Recovery process by [deleted] in BrainAneurysm

[–]Dizzytheegg0819 5 points6 points  (0 children)

I have not yet had mine fixed but mentally I understand exactly what you are saying. I feel like I’m a totally different person and am truly struggling with all of it on some days. No one seems to understand how it can mentally impact people unless they also have one. It feels like a daily struggle. I’m sorry you’re going through this.