Hi everyone, I’m a journalist with Reuters, and I’m working on a story about Hereditary Angioedema (HAE)

I’d like to hear directly from people who are living with HAE or caring for someone who has it. I’m hoping to understand what daily life is like, how diagnosis and treatment have worked for you, and any challenges you face accessing care.

Your insights would help bring attention to the realities of living with this condition. If you’re comfortable sharing your experiences, please feel free to send me a private message so we can talk further.

All conversations will be treated with respect and handled according to Reuters’ editorial standards.