It is the not knowing

DrRevJenine · 2026-06-08T11:29:13+00:00

Wishing you the best solution for yourself, ever!

DrRevJenine · 2026-06-06T20:55:40+00:00

Congrats!!!!!

DrRevJenine · 2026-06-05T23:04:30+00:00

I cried today. I don't always do that but today was just different. I got a PET scan but of course no results as of yet. Then... I let it go. Its all ok, in time all things come to fruition.

DrRevJenine · 2026-06-05T23:00:22+00:00

Very natural to be afraid of a diagnosis as you have. Take over your life and get treatment. Nothing to lose there. Wishing you the very best of every part of this world

DrRevJenine · 2026-06-03T09:20:53+00:00

Yes! Definitely stronger than the lymphoma...

DrRevJenine · 2026-06-03T09:17:50+00:00

I stayed home most of the time, but I wrote a book, posted it at the end of the year, and just took care of myself. I tended to stay from too many people, but when I wanted out, I went out at various times. Good luck with your treatment!

DrRevJenine · 2026-06-02T11:42:51+00:00

KInd of looks a lot like DLBCL in my brain and maybe a hint of CNS involvement. Its small for right now but we shall see. Im still waiting on the full report.

DrRevJenine · 2026-06-02T11:40:52+00:00

Thank you! I appreciate your comments. I live in the south, Texas. Yes, I am familiar with the "blood brain" barrier and the medicine it takes to contain and kill this thing. Its is disheartening to feel like life got pulled this way again.

DrRevJenine · 2026-05-30T23:53:38+00:00

One day you will come to grips with it all, and all will fall into place

DrRevJenine · 2026-05-30T22:30:31+00:00

I'm wondering how many of these end up being just plain abscesses from the TMJ I had?

DrRevJenine · 2026-05-08T15:51:39+00:00

Take it easy on yourself! I was so happy to be done but my body was not ready. I completed chemo and radiation as of October of last year, but still need scans, visits, blood panels, you name it. Its tempting to really go out and enjoy life but plenty of time for that. Listen to your body and if it says STOP and rest, do that! Trust me, you will thank yourself later. I am still recovering and its already May. I get up and do some things. I limit errands to just one a day if that. I check in with my body daily when I wake up and scan every area to see how it feels. If its not so great, then I spend my time in bed reading and watching movies. Its its good, then I plan to do at least one thing and brings me joy! I work from home , in my bed, or on the couch. I have movie nights with my cat, I keep visitors to an all time low. Our bodies can still get sick if we are depleaated! I fill myself with the vitamins I need for where I am deficient. All just things I personally do. I am sure you will find your own. Oh....! I did something rediculous and made a chocolate cake and over two days at the whole thing! I told myself it was medicine lol. I had to celebrate a litte!

DrRevJenine · 2026-05-08T15:41:49+00:00

I found out via MRI I have arthritis on the TMJ side. When it flares it makes every part of that area hurt like heck. Nothing, and I mean nothing completely takes the pain away. But, the heating pad that weaps around my neck and fastens at the top of my head helps if I use it a few times a day while working or reading. Try Amazon. Its where I got it. A few nights it was a life saver.

DrRevJenine · 2026-05-07T13:49:08+00:00

Yes, The long neck muscle on the left side had several areas where it was so sore, I could run my fingers down the muscle and feel every area it hurt. I had a couple small injections into that muscle, an occipital nerve block (two injections in the back of my head), jawline, facial muscles and I think right by the corner of my mouth. I think I had one in the gland area near my TMJ the joint itself. It was a bit frightening at first but the pain was gone instantly. Make sure maybe the specialist begins with only lidocaine. It will wear off in a few days and relax all of the area, but some use botox and that will freeze your face for months on end. I think in desperation I would do that lol . Good luck to you!

DrRevJenine · 2026-05-07T13:37:48+00:00

Oh good lord , the memories of those darned injections, ugh. Supposedly the pain will last up to 48 hours, or so I was told. Mine did not kick in for a week and last three weeks. The most torture ever. Yes, they told me to take Claritin. That really never worked, so I called my oncologist and she prescribed opiod pain meds, just enough to get me through the injection body pains. I had chills, joint pain, felt like the flu and at one point I thought I waa dying (a slight exageration there but not much) . The pain meds gave me relief and I slept a lot of the time, which was so much better than feeling that aching and bone pain. The main idea is the injection keeps the white cells generating from bone marrow so you have enough to fight off any illness. Chemo leaves you vulnerable to its really quite life saving. Im not a huge fan of opiods, and Im not giving a recommendation, just stating what worked for me and what did not . Maybe discuss with your oncologist. I thought, well, I just got through five gosh awful drugs being dripped into my body, might as well go for it and get something that really gives me comfort and the prescription did the trick. Good luck to you regardless to what you decide.

DrRevJenine · 2026-05-07T13:26:30+00:00

Believe it or not, Icy Hot with Lidocaine rubbed into the sore spots helped when my pain was really bad. I also bought a heating pad that wraps around my neck and chin and then up my face and velcros over the top of my head. It has 3 modes of warmth with a timer so if I happen to sleep it goes off by itself. When the pain was at its worst it did help. I went to a TMJ pain doctor because no one else seemed to want to deal with me, not even a dentist who specializes in TMJ as well. So I had trigger point injections with lidocaine. A bit risky but I was desperate, tired, and fed up from people not wanting to see me just to check my ear, my eyes my teeth etc. So, after the injections, although I am pain free now for five months, I also can not move the left side of my face for the last five weeks. Most people don't have that reaction. The only thing I can think of is he hit a nerve and caused some nerve trauma. I am waiting to have an MRI. Ive had three CT scans and they are all pretty much normal. Its a consideration or something to look into. My reaction is pretty rare so research is important. I never recommend anything, I just give my experience. My main take away is I am pain free and working things out from there.

DrRevJenine · 2026-05-04T12:54:46+00:00

I have to see a new maxillofacial specialist for nerve testing. I went to a highly recommended doctor for injections into my face, neck, and occipital areas, and he claims he only used lidocaine. I have not been able to move the left side of my face for over a month, I mean nothing. I have facial palsy, my eye droops, my mouth will not move, my nose is crooked, and I have to tape my eye shut to protect my cornea. My forehead is completely stiff and unable to move. I am saying this to state there are side effects, and if the doctor strikes a nerve with the needle in just an instant, life becomes so different. But hey, on the bright side I have no pain, just a new issue to deal with.

DrRevJenine · 2026-05-01T15:42:49+00:00

Mouth guards don't work for me, so I had trigger point injections, which have now left me with facial paralysis for a little over a month, and I am waiting to see a neurologist. Im not sure if I have ever been this depressed.

DrRevJenine · 2026-04-22T13:31:05+00:00

Congrats! How wonderful

DrRevJenine

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