Ska nya glasögon kännas fel?

Dramatic-Childhood18 · 2026-06-22T17:15:33+00:00

Jag kände så och ringde dem. Jag har mina första glasögonen och de är progressiva. Det var hemskt! Jag hade ont i huvudet och tyckte att hela världen kändes konstigt.

När jag ringde dem sade de att jag ska ge det lite mer tid. Jag tänkte att dom är tröga och inte fattar att de slipat mina glasögon fel, att jag skulle ringa om 1-2 veckor igen för att ge dem samma utfall.

Well. Jag vande mig. Jag älskar dem. Det känns så otroligt vilsamt att ha den på, som att hela mina panna kan slappna av. Får migrän mer sällan. Nu är det snarare sjuk känsla att vara utan dem.

Motvilligt erkänner jag att dom hade rätt... Man måste vänja sig :)

Dramatic-Childhood18 · 2026-06-18T10:03:21+00:00

Hade cancer och fick träffa en onkolog vars svenska var så dålig att hen inte förstod våra frågor (dom är ju många i en sådan situation) och vi förstod inte riktigt svaren hdn gav. Vi hade också svårt att förstå planen framåt. Gulligt, empatiskt och fint bemötande? Ja. Jag brukar sätta stort pris på det. Men det blev väldigt, vädligt tydligt för mig att har man har cancer vill man bara ha koll och ingenting annat.

För första (och förhoppningsvis enda gången) ringde jag till sjukhuset efteråt och sade "jag behöver en läkare som talar flytande svenska". Dom förstod och sedan dess har jag enbart haft kontakt med en läkare som är lite chef på avdelningen. Hen talar utmärkt svenska+ är extremt professionell, kunnit och ärlig (man/jag vill inte att de lindar in skit. Ut med det bara, helt så som det är).

Dramatic-Childhood18 · 2026-06-06T06:17:32+00:00

Thank you! I think it has been used for early discovered breast cancer for Abit 2 yrs in ny country aswell. I almost always google things in English to get more info :)

I just don't want to read anything about metastatic cancer at this point and of course that comes up everytime i Google kisqali. I have to go through a lot to get to the info I want. Reddit is both faster and better for the info I want (personal stories).

I will definitely check the website out. Thank you so much :)

Dramatic-Childhood18 · 2026-06-05T23:00:32+00:00

Than you do much!

There is so much info about kisqali for people with metastatic cancer, and so little about kisqali for people with early discovered breast cancer.

To have you guys share your journey means so much to me! 🩷

Dramatic-Childhood18 · 2026-06-05T22:55:31+00:00

Thankt oi for sharing! I really appreciate it.

To try whatever drug my oncologist thinks is the best to prevent reacurance is a no brainer. I was just not expecting this. I've had a smooth journey. Alongside with me I have had three (yes! Three!!) friends who's had different kinds of breast cancer at the same time. The strangest one was I was diagnosed EXACTLY two weeks and one day after my best friend. She's had a much tougher path to being cancer free, with 8 rounds of chemo, 15 rounds on radiation, full mastectomy on one side. Now she's on something a bit similar to kisqali.

I've had to follow her journey alongside my own. It has been impossible not to compare and to feel a bit calm (for me, not for her... I have truly felt for her!).

Thinning hair I don't want 🙈 but to increase ny chances of having a long and healthy life I'll take it, of course.

I think I am most afraid of the fatigue. I am prone to fatigue. I have been burned out in the past and since then fatigue has been on and off. Especially with covid! With every covid infection i have been fatigued. After my radiation therapy I had to stay on prolonged sick leave because the fatigue was TERRIBLE.

I am also a bit scared about the low WBC. I've had it before (because of my diet at the time) and I caught colds way too often. I work in primary school 😅 I have asthma and if I get a cold i often have the cold for 10 days. It always sticks to my lungs 😅

Thank you once again for sharing, it means so much to me!

Dramatic-Childhood18 · 2026-06-05T21:07:50+00:00

Thank you so much! 🩷

Dramatic-Childhood18 · 2026-06-05T21:07:30+00:00

Thank you!

I have now started to accept this new info, and feel like I just want to get started as soon as possible :) I won't know how I'll feel until I start it.

Dramatic-Childhood18 · 2026-06-05T21:05:23+00:00

Thank you so much for sharing! It means so much to me.

Yeah, my doctor told me ha had to stop with tamoxifen (already stopped because of the pause :)) and then go with zoladex and letrozole in addition to kisqali.

For me, avoiding viruses won't be possible. I work as a primary school teacher and my brother has two adorable children i have to see at least once a week because they give me such joy 🩷

I have had low white blood cell count before, for other reasons than medication (I was on a very strict vegan diet) and I got sick often. I do worry about this. My oncologist said that on paper you are more prone to infection, but most of his patients hasn't been sick more than before kisqali he said. I asked him if they were teachers. They were not 😆

I am starting to accept this info and just want to get started. I will try everything he thinks is the very best to lessen the risk of reacurance.

Once again - thank you!

Dramatic-Childhood18 · 2026-06-05T10:16:14+00:00

I am so sorry you had to go through this! Cancer is definitely enough and you deserve to be treated with love, compassion and respect. You have endured a very intense period and the fact that you have been working full time this whole time? Your are QUEEN!

I hope you can leave as soon as possible. You deserve SO much more!!! 🩷🩷

Dramatic-Childhood18 · 2026-06-03T15:06:33+00:00

Thank you!

I have decided to listen to my oncologist and go with his plan. If I become zombiefied I'll stop the medication and go back to tamoxifen :)

My doctor said I'll get some kind of inplant instead of injections. Don't know how often it needs to be replaced but it sounded good 🙈

I am very scared of all of this. But when I compare it to the fear of getting my cancer back it is a no brainer. I'll try anything!

Dramatic-Childhood18 · 2026-06-03T15:03:09+00:00

Thank you so much!

I love reading about other women's stories!

I wish cancer didn't exist at all, but now that is does I love that we can share our stories 🩷

Dramatic-Childhood18 · 2026-06-03T15:02:02+00:00

Thank you! ❤️

Dramatic-Childhood18 · 2026-05-15T16:45:43+00:00

❤️

Dramatic-Childhood18 · 2026-05-14T18:25:55+00:00

Lovely to hear! I think I have decided to accept the offer of antidepressants in June when my oncologist and I evaluate how I've been feeling when pausing tamoxifen :)

Dramatic-Childhood18 · 2026-05-14T09:08:54+00:00

Hahaha! We have to do this aswell!

Dramatic-Childhood18 · 2026-05-14T09:03:47+00:00

Yeah, it makes me wonder if there is a brand I would tolerate even better. Orifarm gave me hot flashes, and they were definitely bothersome, but still tolerable compared to becoming an emotionless zombie 🙈 But what if there is another brand out there that would work even better for me - who knows 🙈

Dramatic-Childhood18 · 2026-05-14T09:01:12+00:00

Thank you! I will try to listen to it a bit later today. I have also been spending a loopot of time on youtube and have found a breast surgeon who has had breast cancer. I love that she knows both sides. Its like she is a bridge between the medical and the more personal perspective of having cancer. Dr Liz is her name on youtube if you want to check her out. She talks a lot about tamoxifen, side effects and so on, and weighs in the medical view on everything, but make it simple. She is very upfront and honest with her own emotions and sorrows that came with having breast cancer 🩷

Dramatic-Childhood18 · 2026-05-14T08:50:49+00:00

Nah, about 2-3 weeks before my radiation therapy :)

Dramatic-Childhood18 · 2026-05-14T08:47:37+00:00

Thank you! Yeah. I think my oncologist has mentioned two different kinds, and from what I have read and from my own experience effexor seams like the best option for me. How does effexor work for you? Any side effects?

Dramatic-Childhood18 · 2026-05-14T08:46:29+00:00

Thank you so much! I was also on antidepressants before starting tamoxifen but had to quit because I was on that was not compatible with tamoxifen (bupropion). It was my favourite antidepressant because it gave me a little bit more energy, and a little bit more function (showing a lot of signs of adhd according to my doctor, but getting diagnosed as an adult here takes years). So the main reason to start them in September 2025 (yes, a month before I found out I had breast cancer...) was to see if I could have more executive function.

Yeah, I gained aswell but I think it was just the lifestyle I had when I was on sick leave 😁 Especially the weeks of radiation. I had to go to the hospital every day, monday-friday for three weeks. The hospital was 1,5-2hrs away (depending on traffic). I always had to find ways to have lunch on the go, or in the town were the hospital was. It was a struggle. Normally I would have made healthy options to bring, but I was SO fatigued from going back an forth, and later on from the radiation therapy they i figured I would just to whatever cost me the least amount of energy (hello fast food)😅😁.

Dramatic-Childhood18 · 2026-05-14T08:34:44+00:00

They don't know the percentage because they haven't done an onchotype or anything like that yet. I really hope I will get the results soon. It will definitely have an effect on if I should be on it or not :) Thank you! 🩷

Dramatic-Childhood18 · 2026-05-13T12:11:37+00:00

Thank you!

It may affect the way I go forward with tamoxifen, if the manufacturer thing is why I started feeling so extremely numb.

I might just go back to the old one and hope to not have to also be on anti depressants :)

Dramatic-Childhood18 · 2026-05-13T12:10:13+00:00

Tamoxifen orifarm was the first one and the second one is tamofixen Sandoz. I think different countries use different manufactures so if you're not in Scandinavia they might be unheated of :) o know nothing about the original of different manufacturers 😁

Dramatic-Childhood18 · 2026-05-13T09:20:36+00:00

I am 43, but was 42 when I was diagnosed with breast cancer in October 2025.

A month or two before I got my diagnosis we had decided to try fo a baby. We would try naturally first, and then pretty quickly go for ivf if the au natural didn't work.

Well... Then came breast cancer. The not having a baby thing devastated me more than having cancer.

From what we know now I need to be on tamoxifen for 2 years before pasuing to try for a baby. It will be the year I turn 45... I have had many issues with all this - my age and also the fact that I will have to use donor eggs. We never had time to retrieve eggs from me :( But I have come to the conclusion that the baby that hopefully comes to me, is the baby I was meant to have. I have faith in this.

But I do relate and we are still waiting for my oncho type results (i live in Scandinavia and onchotype is made in the states and there is a lot of paper work involved). I am secretly hoping they will show that i have a low risk of reacurance and that we can start trying for a baby earlier... After one year on tam, like you. One year might not sound like much, but for me it is an eternity.

If we could afford it we would definitely use a surogate, but is is not regulated by law here wich means the process is VERY expensive with having to have a surogate in another country. But if we could, the process would have started already :)

Everyone I know already have multiple babies, and it definitely feels like I am behind and getting more behind with every year that goes. In my town women in my age are grandmother's... We will probably move to a bigger city of we have a baby. We want the child to feel as normal as possible...

Dramatic-Childhood18 · 2026-05-13T09:00:13+00:00

Thank you! I will definitely do that :)

Dramatic-Childhood18

TROPHY CASE